J-pouch Life » technology http://www.jpouch.net Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Fri, 30 Dec 2011 05:31:30 +0000 en hourly 1 http://wordpress.org/?v=3.3 Colitis by Numbers: Days Since Module Tracks Flares, Tapers, and more http://www.jpouch.net/2009/09/08/colitis-numbers-flares-tapers/ http://www.jpouch.net/2009/09/08/colitis-numbers-flares-tapers/#comments Wed, 09 Sep 2009 04:46:26 +0000 Eric http://www.jpouch.net/?p=2111 Screen shot 2009-09-08 at 10.32.07 PMPeople always used to give me strange looks when I would tell them that it has been 485 days since my first surgery. I’m no “rainman” or anything, I just use a bunch of different forms of technology to keep track of my health. I’d like to start sharing them with you. Starting with the first one, well, aside from graph paper the first one: “days since”. It’s a “module” for Google’s personalized homepage, igoogle. You can add the module by clicking ‘add stuff’ from igoogle’s page or by visiting the author’s site here.

Screen shot 2009-09-08 at 10.31.54 PMAs you can see by the screenshot, it’s really simple. Sometimes simple is better. Most of the time simple is better. I like watching the numbers go up, and this helps me feel better too. Other possible uses for this could be: tapering on Prednisone, keeping track of how long it has been since your last flare, or just remembering when you last mowed the lawn!

I have a bunch of these technology tips, so check back for more of what I call “colitis by numbers.”

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]]> http://www.jpouch.net/2009/09/08/colitis-numbers-flares-tapers/feed/ 1 Jpouch Life is on Twitter http://www.jpouch.net/2009/07/22/jpouch-life-is-on-twitter/ http://www.jpouch.net/2009/07/22/jpouch-life-is-on-twitter/#comments Thu, 23 Jul 2009 04:40:00 +0000 Eric http://www.jpouch.net/?p=2093 Atwitter.com/jpouchlifell right, we did it, I know I know… well, we’re over on Twitter now with the handle JpouchLife. Will you still respect us in the morning? All jokes aside, Twitter is a really great place to connect with new people and spread our community understanding and awareness. Hope you’ll give us a follow.

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]]> http://www.jpouch.net/2009/07/22/jpouch-life-is-on-twitter/feed/ 0 Camera: From the Colon to Eye Socket http://www.jpouch.net/2009/03/12/camera-from-the-colon-to-eye-socket/ http://www.jpouch.net/2009/03/12/camera-from-the-colon-to-eye-socket/#comments Thu, 12 Mar 2009 19:49:34 +0000 Eric http://www.jpouch.net/?p=1557 bionic-eye-r-manThis is cool: Rob Spence, a film maker who damaged one eye as a child, will install a camera into the socket where his eye used to be.
A fan of the 1970s television series “The Six Million Dollar Man,” Spence said he had an epiphany when looking at his cell phone camera and realizing something that small could fit into his empty eye socket…

The camera he’ll install was originally designed for colonoscopies.

link

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]]> http://www.jpouch.net/2009/03/12/camera-from-the-colon-to-eye-socket/feed/ 1 On the John: Space Diapers to the Rescue http://www.jpouch.net/2009/01/20/on-the-john-space-diapers-to-the-rescue/ http://www.jpouch.net/2009/01/20/on-the-john-space-diapers-to-the-rescue/#comments Wed, 21 Jan 2009 01:41:05 +0000 Eric http://www.jpouch.net/?p=1287 Wearable Toilet: Japanese Invention

Wearable Toilet: Japanese Invention

Right on the heels of Lizz’s post come these high-tech space diapers: the wearable toilet project.

Engineers all over the world have focused their vast brainpower to overcome one major obstacle—space pooping. The Japanese think they have a solution with their fancy new wearable toilet.

Indeed, this is a far cry from the glorified Depends former NASA astronaut Lisa Nowak drove cross country in a couple of years back. These can detect when you relieve yourself, remove the waste with suction and clean you up after each use. They can even eliminate unpleasant sounds and odors.

Sounds? Odors? I know this is somewhat of a joke, but there were many times when I wished for a good night’s sleep and something like this.

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]]> http://www.jpouch.net/2009/01/20/on-the-john-space-diapers-to-the-rescue/feed/ 2 Care Pages http://www.jpouch.net/2009/01/19/care-pages/ http://www.jpouch.net/2009/01/19/care-pages/#comments Tue, 20 Jan 2009 02:28:08 +0000 Jenelle http://www.jpouch.net/2009/01/19/care-pages/ http://www.carepages.com/I know that, during my last hospital stay, my partner spent a lot of time keeping a lot of people in the loop about my condition. This time, I’m hoping to be able to do more of it myself, and I’m thinking of trying out this new site I found, Care Pages, which allows you to update your progress and have family and friends leave messages. Sounds like an effective way to communicate about your condition to all those who are concerned. The site is Care Pages.com and here is a story about how it got started and some people who have used it Story: Web site helps patients families, medical providers communicate

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]]> http://www.jpouch.net/2009/01/19/care-pages/feed/ 4 The Daily Stool Count, Joe’s Goals http://www.jpouch.net/2008/12/12/the-daily-stool-count-joes-goals/ http://www.jpouch.net/2008/12/12/the-daily-stool-count-joes-goals/#comments Sat, 13 Dec 2008 00:41:14 +0000 Eric http://ucstory.wordpress.com/?p=729 Joes Goals

Joes Goals

A fellow J-poucher, Dennis, who we introduced to you back in October of this year, has just successfully completed the J pouch operation! Congrats to Dennis from everyone here at UC Story.
Dennis mentions something in a recent post on his vlog:

And I’m starting a new feature for the next couple months: the Daily Stool Count. People seem really interested in how frequent and urgent j-pouches are, so keep watching as I keep that tally every day.

This reminded me how obsessed with numbers I am, so I dug through my files and was reminded of a great website, Joe’s Goals. Joe’s is designed to help you keep track of things like exercise and food intake. There’s a spot for inputting your own notes, and an easy way to keep count of your goals. I’ve used it off and on for a year or so, and while it’s not something I’ve used consistently, it might be an easy way to track your progress fresh out of surgery.

As far as my count is concerned, the first night in the hospital after takedown was zero, the next was 15 trips to the bathroom, and the rest are up on the graph posted above. You can see they leveled off rather quickly, and I’m still averaging 6-8. (I have a very strong liking for red wine, and having a few glasses seems to affect consistency but not numbers.) Hope this helps!

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]]> http://www.jpouch.net/2008/12/12/the-daily-stool-count-joes-goals/feed/ 2 Finding A Clean Bathroom http://www.jpouch.net/2008/12/10/finding-a-clean-bathroom/ http://www.jpouch.net/2008/12/10/finding-a-clean-bathroom/#comments Wed, 10 Dec 2008 06:02:00 +0000 Eric http://ucstory.wordpress.com/?p=720 diaroogle1For those of you in the Big Apple, Diaroogle helps you find quality public toilets from your mobile phone. From their description:

It’s for the discerning, on-the-go defecator who is brave enough to use a public bathroom, but still demands a hygienic and private bathroom experience. It is also a community authored database of Manhattan toilets.

And if you’re not in NYC, be sure to check out either the bathroom diaries or sitorsquat because, as that lovely children’s book reminds us, everyone poops.

Diaroogle.com – The Premier Toilet Search Engine.

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