J-pouch Life

Hey Readers! We have a long comment from Cynthia C. and she has a handful of really great questions for the jpouch community. Would you take a few minutes to read her post and see her questions at the end. Thanks so much! Megan & Mark # Cynthia C. Cynthia C. says: February 23rd, 2010 [...]

There’s that great line in the bible (or the Byrds song, whichever you prefer), “a time to weep and a time to laugh, a time to mourn and a time to dance.” Prior to my diagnosis of UC and, subsequently, Crohn’s, I was a devoted and passionate dancer.  It was my “thing.”  It was also [...]

People always used to give me strange looks when I would tell them that it has been 485 days since my first surgery. I’m no “rainman” or anything, I just use a bunch of different forms of technology to keep track of my health. I’d like to start sharing them with you. Starting with the [...]

Having medically induced insomnia is unpleasant (you’re a jerk, Prednisone). Sitting there on the couch, wide-eyed at 2 in the morning, you can’t help but think of random, stupid things. I wrote some of them down, mostly to remind myself that people shouldn’t make serious decisions that early in the morning: – I must wear [...]

I was diagnosed with UC at the age of 19 after my freshman year of college. Things started progressing very rapidly and I did not respond to medications very well. I tried numerous medication including Remicade infusions and prolonged use of prednisone. After getting very sick one weekend I was admitted to the hospital on [...]

I just wanted to make a quick note about Prednisone, as many people with UC (and many other diseases) end up taking it. Back when UC was a very minor part of my life, my biggest fear (because surgery didn’t even seem like a possibility) was having to take Prednisone. I try to talk to [...]