Posts Tagged ‘prednisone’

Cleveland Clinic, Day 1

Wednesday, December 8, 2010 9:26 9 Comments

Well, I finally made the pilgrimage back to Cleveland Clinic (CC) to see the famed “King of Pouches”, Dr. Bo Shen. As one involved in the J-pouch/IBD community, I had, of course, heard of Dr. Shen before. He’s sort of the last desperate act for a lot of people who come from all over the […]

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Fear Monger, MD

Thursday, November 4, 2010 0:14 15 Comments

Hi, guys!  So, I’m still alive.  I thought I would give you a brief update about how things are going with lupus.  It pretty much sucks.  It’s not like I’m not used to pain and my body doing weird shit, cause I totes am. However,  I am used to it mostly being invisible to the […]

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Body, You Suck.

Wednesday, October 20, 2010 11:01 No Comments

Today is one of the days I hate my body.  It is just not working with me!  The good news is, we got to Dallas safely and without too much hassle.  Thanks to a two-week dose of the dreaded Prednisone, I had energy and the roid-rage needed to move 2,000 miles.  I was also allowed […]

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Commenter with Questions

Thursday, February 25, 2010 12:28 13 Comments

Hey Readers! We have a long comment from Cynthia C. and she has a handful of really great questions for the jpouch community. Would you take a few minutes to read her post and see her questions at the end. Thanks so much! Megan & Mark # Cynthia C. Cynthia C. says: February 23rd, 2010 […]

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Just Dance!

Tuesday, November 10, 2009 21:53 11 Comments

There’s that great line in the bible (or the Byrds song, whichever you prefer), “a time to weep and a time to laugh, a time to mourn and a time to dance.” Prior to my diagnosis of UC and, subsequently, Crohn’s, I was a devoted and passionate dancer.  It was my “thing.”  It was also […]

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Colitis by Numbers: Days Since Module Tracks Flares, Tapers, and more

Tuesday, September 8, 2009 21:46 1 Comment

People always used to give me strange looks when I would tell them that it has been 485 days since my first surgery. I’m no “rainman” or anything, I just use a bunch of different forms of technology to keep track of my health. I’d like to start sharing them with you. Starting with the […]

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Therapeutic Art Sessions

Saturday, April 25, 2009 18:39 10 Comments

Having medically induced insomnia is unpleasant (you’re a jerk, Prednisone). Sitting there on the couch, wide-eyed at 2 in the morning, you can’t help but think of random, stupid things. I wrote some of them down, mostly to remind myself that people shouldn’t make serious decisions that early in the morning: – I must wear […]

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Sunday, January 25, 2009 18:34 10 Comments

I was diagnosed with UC at the age of 19 after my freshman year of college. Things started progressing very rapidly and I did not respond to medications very well. I tried numerous medication including Remicade infusions and prolonged use of prednisone. After getting very sick one weekend I was admitted to the hospital on […]

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Just a quick note about Prednisone

Saturday, January 17, 2009 10:31 11 Comments

I just wanted to make a quick note about Prednisone, as many people with UC (and many other diseases) end up taking it. Back when UC was a very minor part of my life, my biggest fear (because surgery didn’t even seem like a possibility) was having to take Prednisone. I try to talk to […]

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