Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

Posts Tagged ‘community’

Jpouch Life is on Twitter

Wednesday, July 22, 2009 21:40 No Comments

All right, we did it, I know I know… well, we’re over on Twitter now with the handle JpouchLife. Will you still respect us in the morning? All jokes aside, Twitter is a really great place to connect with new people and spread our community understanding and awareness. Hope you’ll give us a follow.

This was posted under category: about this site Tags: about this site, community, meta, technology

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Frustrating Decisions…And Not Giving Up 0 Comments Since Thursday, May 23, 2013, 13:42
Post-Op/Pre-Op Op Ed 10 Comments Since Tuesday, April 2, 2013, 8:16
FML(A) 8 Comments Since Monday, March 4, 2013, 10:13
The Architecture of my Ass 7 Comments Since Monday, February 11, 2013, 8:46
Where it Belongs, huh? 11 Comments Since Wednesday, January 23, 2013, 16:25

Hey Gretchen, I had my colon removed three years ago. I took me about 2 1/2 years to really figure my diet out to a science. You a...

Hi Marie, I have been reading the posts on here I have learned some great information but don't really relate to most of them bec...

Hi Gretchen I have FAP and had my surgery in 87 high school graduation present :) More than likely the pain is coming from y...

Hi Mike! My name's Pedro. I am 40 years old and I'm from Portugal. I have been colostomized for 4 months. I have been having troub...

Thank you, Christal, for the lovely comment! How are you doing with your Crohn's?...

I thoroughly enjoyed reading your post. I too have been a patient of the Cleveland Clinic for the past two years and they are AMAZ...

Thank you. Sometimes it seems like I am going to jump through the ceiling from all the pain. When I tell my Dr. He just says its n...

Gretchen, Sorry to hear you had to have the surgery and the stage but thankfully not stage 4! I had the same s...

I don't remember my pain being associated directly with using the bathroom. It was more chronic. It is dependent on age, and indiv...

I was diagnosed with stage 3 colon cancer in May. I went in for surgery in June. They took my whole colon and my rectum. I had FAP...

Molly, thank you so much for the lovely compliment :) That's obviously very nice for a writer-nerd to hear! (PS I might be schedul...

Thank you for the supportive words, Pramod :)...

Hi Lizz. Don't worry. Have patience. I am sure that the things would improve over period of time. You have stay strong. I have had...

It's so said. It sends shivers down my spine. Abby was such a strong willed person. I can feel the pain as if someone very dear to...

I just read Abby's "Whole Heart and Soul" blog, and all of her entries here. There are no words to express how sorry I am she pass...

Hi Lizz. First, thanks for writing as honestly, humorously, openly and creatively as you do. You have a great gift and we folks ou...

Dennis, Good luck. I'm about 13 months from first surgery and 10 months from the take down. The surgery gave me my life bac...

I really like your blog.. very nice colors & theme. Did you design this website yourself or did you hire someone to do it fo...

I want to thank you for the information. It has been very helpful, as I get ready for my surgery on Monday (April 15, 2013). ...

Valuable info. Lucky me I found your web site unintentionally, and I'm stunned why this coincidence didn't came about earlier! I...

Thanks for the well-wishes, Kelly! I'm ready for something to be easy! Do you try Calmoseptine for the rash? It's maybe my favorit...

Happy to be of assistance, Ciara! Also check out jpouch.org (a good message support board) and girlswithguts.org....

After days looking up stuff to do with the jpouch (which I have 5 years now) since I was 15 and haven't researched much for some r...

Liz, I had my large colon removed from ulcerative colitis 2006, and then suffered until 2011 with severe rectal pain, so lived o...

I think you're right, Doug. I'm def. leaning towards the re-do. I'm hoping for the fresh start! How awesome would that be? I'm hop...

Funny..."post epic poo" pic? Sounds familiar? lol. my 2 cents? 85% is a dang good percentage. With my condition, I hear...

Thanks, Pam! Great to hear from another CC patient! I would love to talk to you about your experience with the revision if you hav...

Hello Lizzi I am home recovering from a recent (March) pouch revision surgery with Dr Remzi. He is an amazing, talented surgeon....

Thank you for the awesome reply! Please keep up with us and stay in touch :)...

Lizz, I think we have a lot in common (including language, symptoms and humor. Keep it coming! Thank you!...

Hi, Val. I'm a blogger on this site. I live in Dallas and am working on starting up a FUN support group in conjunction with the no...

John W, my jpouch is old....i had it done at 15 and am 51 now (you do the math...LOL). I had same thing happen shortly after my s...

I really need to hook up with anyone who is in the dfw area....i have been a jpouch patient since 1976 and always felt i was the "...

Thanks, John! Surgery is scheduled for March 21, so I'm sitting tight on antibiotics and pain meds till then. I'm actually keeping...

Thanks, Doug! That's so nice of you :) I'm looking forward to getting better too! Honestly, I feel pretty okay on the antibiotics ...

Hi Lizz, I just read this! I hope you're doing better and have had some progress with corrective surgery. That is awful about FML...

I too have lived with UC for 30 years and I have been symptom free since 2004. November15 I had my scope and was told I had a 4 cm...

Liz, That's great that Dr. Shen is always available for you. I've said this before but you're attitude is awesome. We're all ...

Hello there! This is my 1st comment here so I just wanted to give a quick shout out and say I really enjoy reading your posts. C...

Thank you, sweet Julie, for those very kind words :) I'm sure I speak for the other bloggers when I say I'm thrilled that our stor...

So sorry, Lizz. I stumbled on this blog about a month ago and have been amazed at the stories on here. I have UC, but so far it ha...

wise choice. Wait for remzi to probe your nether regions after you turn 30!!! ...

Thanks, Denise! I know I am in good hands so not terribly concerned at this point. Not making the trek until April. They offered...

Looking for anyone that has had to have plastic surgery involved to heal a chronic sinus and wound from where the jpouch was remov...

Hey lizz. so sorry to hear about your fistula. Remzi is my CC surgeon. I absolutely luv him. In fact, I just had another EUA su...

Liz, It sounds like there are a lot of reasons for you handling new problems better today than in the past? It's sad that you ...

Hey Guys, Thanks for the information. I am getting ready to be with the guy I have been dating for the first time. He is ...

Hey girl :)) Just read your blog, I'm 23 i live in Atlanta and have done the whole UC >totalcolectomey > (for 2 yrs) an ille...

Where are you going to the dr/for surgery? If you still have your rectal cuff, technically, it should be possible to have a J-pouc...

Question i forgot to ask is would my tail end muscle be to lazy after the length of time i've had pouch ???...

Hi ,like your advice / opinion on J Pouch and crohns !! I had a sub total collectomy at least 5 years ago with hopefully a j pouch...

Hi Casey, Thank you for all the info. My best friend is at Walter Reed after stepping on an IED in Afghanistan and I was trying to...

I've just found, in my experiences, it's better to be honest. Why not? People need to know what IBD is, what it's really about. R...

Amen Doug, I look pretty normal on the outside too. I have my new J- Pouch plumbing, a smidge of PTSD as a combat vet but I still ...

You are right about that, brother! I am having a pelvic MRI Friday to *hopefully* rule out an abscess and/or fistula. I have to s...

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Posts Tagged ‘community’

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