Posts Tagged ‘colitis’

New website for gay people who are affected!

Sunday, December 20, 2009 14:22 5 Comments

Hey guys- I just created a blog to be a resource for members of the GLBT community to visit and get some answers on questions that you have been searching endlessly for. I know it’s a very taboo topic, but as a gay man, I would have loved having a place where I can go [...]

This was posted under category: Support Systems Tags: , , , ,

Welcome Lisa to the “No Colon Club”

Sunday, December 13, 2009 20:59 1 Comment

Hi! We’d love to have jpouch.net give Lisa some great support and go visit her blog and UC to Jpouch Story Lisa’s UC to Jpouch Story .  She has just had Step 1 surgery and on the mend. She is new to the community and as we all know could use some jpouch support.  Meet [...]

This was posted under category: Jpouch Tags: , , ,

Colitis by Numbers: Days Since Module Tracks Flares, Tapers, and more

Tuesday, September 8, 2009 21:46 1 Comment

People always used to give me strange looks when I would tell them that it has been 485 days since my first surgery. I’m no “rainman” or anything, I just use a bunch of different forms of technology to keep track of my health. I’d like to start sharing them with you. Starting with the [...]

This was posted under category: technology Tags: , , , ,

Colitis to Dysplasia Surgery

Friday, June 19, 2009 8:49 2 Comments

We wanted to introduce you to  Merry Lynn, she has been living with colitis for 10 years, for 3 years she has been in remission, and just learned she has high grade dysplasia. Her dysplasia means she will be having a colectomy to remove the risk of colon cancer. Her story is being shared on [...]

This was posted under category: cancer Tags: , , , ,

Let’s just call it … IBD

Saturday, June 6, 2009 8:15 8 Comments

After receiving an interesting letter from my new GI yesterday, I’ve found myself in a rather contemplative mood.  I was diagnosed with unquestionable serious UC when I was 16.  The GI who diagnosed me recommended immediate surgery to remove the colon.  I declined, preferring instead to take meds for years and try my hand at [...]

This was posted under category: Thoughts Tags: , , , , , , ,

Alternative Therapies for Colitis and Crohn’s?

Wednesday, May 13, 2009 14:28 2 Comments

Well, hanging out in my gmail inbox today I noticed this link for a “blog” that promised to beat colitis by using the recommendations of a book. After looking into it further, I discovered many other “blogs” that have exactly the same content pointing to the same or similar books. What a shame. Colitis and [...]

This was posted under category: Alternative Therapies Tags: , , ,

4 feet less but still the best: My Jpouch Story

Monday, April 6, 2009 17:50 14 Comments

First, I would like to give props to my fabulous husband for coming up with the name of my jpouch story. It isn’t quite as cool as ‘No colon and still rollin’ but still kind of catchy! This is just one more thing my supportive partner does to rock my colon-less world! My initial journey [...]

This was posted under category: Photos Tags: , , , ,

UC to J-pouch to Crohn’s

Wednesday, January 7, 2009 3:52 4 Comments

I guess it all started when I was about 15 years old. I had been to my grandmother’s house for a visit, then dance class, then the non-stop vomiting and uncontrollable bloody diarrhea started. I begged my mother to, “please, please not take me to the hospital,” but by the time she was dragging me [...]

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Learn From Experience: Easily Find The Right Medication

Tuesday, January 6, 2009 13:32 No Comments

Prescription medication is a fact of life if you have any of the diseases this site deals with. How can you be sure to keep your pills straight? Easy, take a black permanent marker and write on the caps of the medication what the drug is in an abbreviation that works for you. When you’re [...]

This was posted under category: helpful hints, Medication Tags: , , ,