Comments on: Photos: Stephanie L. http://www.jpouch.net Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Mon, 15 Mar 2010 15:24:25 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Kari http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-5390 Kari Mon, 21 Sep 2009 03:55:07 +0000 http://ucstory.wordpress.com/?page_id=361#comment-5390 Wow. I had my colon removed this past May, not because of UC but because of a genetic mutation that leads 100% of the time to colon cancer (FAP). The only way to avoid colon cancer is the complete removal of it. So there I was 24 years old having the surgery to remove the colon, create a J-pouch and have an iliostomy. I had plenty of complications because I had open heart surgery at the age of 22 and have a mechanical valve and am on blood thinners. I spent the majority of the summer in and out of the hospital, I think the total was 37 days. I had to have the take down surgery for the iliostomy at five weeks instead of three months because my small intestine was completely swollen and no food would pass. It's so nice to find other young people who can completely relate to my issues, Thanks Stephanie for sharing! Wow. I had my colon removed this past May, not because of UC but because of a genetic mutation that leads 100% of the time to colon cancer (FAP). The only way to avoid colon cancer is the complete removal of it. So there I was 24 years old having the surgery to remove the colon, create a J-pouch and have an iliostomy. I had plenty of complications because I had open heart surgery at the age of 22 and have a mechanical valve and am on blood thinners. I spent the majority of the summer in and out of the hospital, I think the total was 37 days. I had to have the take down surgery for the iliostomy at five weeks instead of three months because my small intestine was completely swollen and no food would pass. It’s so nice to find other young people who can completely relate to my issues, Thanks Stephanie for sharing!

]]> By: Dobromir http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-3698 Dobromir Thu, 21 May 2009 20:00:45 +0000 http://ucstory.wordpress.com/?page_id=361#comment-3698 Hi Stephanie, I wish you the best of luck and health. Dobromir Hi Stephanie, I wish you the best of luck and health. Dobromir

]]> By: NORMA http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-2544 NORMA Sat, 21 Mar 2009 02:38:42 +0000 http://ucstory.wordpress.com/?page_id=361#comment-2544 Hi Stephanie, I'm impressed that they did a C incision instead of a medial one. You will be blessed with minimal scarring. Best of Luck!!! Hi Stephanie, I’m impressed that they did a C incision instead of a medial one. You will be blessed with minimal scarring. Best of Luck!!!

]]> By: Jenny http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-1768 Jenny Tue, 03 Feb 2009 00:25:39 +0000 http://ucstory.wordpress.com/?page_id=361#comment-1768 I had my surgery 3 weeks ago and am finding it hard to cope i'm 20 and am so reassured to know that every little thought thats crossed my mind went through yours aswell. i'm still adusting and your story has helped me remember its just a natural response. best of luck. youve really helped me. x I had my surgery 3 weeks ago and am finding it hard to cope i’m 20 and am so reassured to know that every little thought thats crossed my mind went through yours aswell. i’m still adusting and your story has helped me remember its just a natural response. best of luck. youve really helped me. x

]]> By: Jeane http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-893 Jeane Wed, 07 Jan 2009 18:09:50 +0000 http://ucstory.wordpress.com/?page_id=361#comment-893 Steph who performed your surgery? Steph
who performed your surgery?

]]> By: danni http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-402 danni Tue, 16 Dec 2008 01:41:09 +0000 http://ucstory.wordpress.com/?page_id=361#comment-402 Hi Stephanie! I had severe UC for three years, and I just had my first surgery in July. My doctors in Florida (where I used to live), were going to reconnect my small intestine to my rectum, sans J pouch. What THEY didn't tell me was that I'd be going to the bathroom 15 times a day for the rest of my life. My surgeons now in New York say that the J pouch will work and I'm hopefully getting my surgery in January. I should be better by the time I'm fifteen! Your story here helped me a lot, thank you and good luck! Hi Stephanie!
I had severe UC for three years, and I just had my first surgery in July. My doctors in Florida (where I used to live), were going to reconnect my small intestine to my rectum, sans J pouch. What THEY didn’t tell me was that I’d be going to the bathroom 15 times a day for the rest of my life. My surgeons now in New York say that the J pouch will work and I’m hopefully getting my surgery in January. I should be better by the time I’m fifteen!
Your story here helped me a lot, thank you and good luck!

]]> By: mark http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-265 mark Sat, 15 Nov 2008 06:36:50 +0000 http://ucstory.wordpress.com/?page_id=361#comment-265 Hi Cindy, Good luck with a health recovery for number two, that will be a journey to recovery but you'll really get to enjoying living life not be sick. We would love to share your story at some point, feel free to write us at mdhilton@gmail.com and we'll get your story posted for others to identify with and learn from! keep us posted, Mark Hi Cindy,

Good luck with a health recovery for number two, that will be a journey to recovery but you’ll really get to enjoying living life not be sick. We would love to share your story at some point, feel free to write us at mdhilton@gmail.com and we’ll get your story posted for others to identify with and learn from!

keep us posted,
Mark

]]> By: Cindy http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-264 Cindy Fri, 14 Nov 2008 16:17:55 +0000 http://ucstory.wordpress.com/?page_id=361#comment-264 Well I'm getting ready to go in for surgery number 2 now, they're gonna construct the j pouch and then I have to wait 3 months or so and then it's takedown time! My surgery is on Dec 2nd, getting nervous! they're also going to remove the portion of colon they left behind from the last surgery because it still has severe UC in it. I will definitely share my story with you guys! Well I’m getting ready to go in for surgery number 2 now, they’re gonna construct the j pouch and then I have to wait 3 months or so and then it’s takedown time! My surgery is on Dec 2nd, getting nervous! they’re also going to remove the portion of colon they left behind from the last surgery because it still has severe UC in it. I will definitely share my story with you guys!

]]> By: mark http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-271 mark Fri, 03 Oct 2008 00:09:44 +0000 http://ucstory.wordpress.com/?page_id=361#comment-271 Hi Cindy, good to hear from you, do let u know if you'd ever like to share your story, we'd be happy to post it for you. My email is mdhilton@gmail.com Mark Hi Cindy,

good to hear from you, do let u know if you’d ever like to share your story, we’d be happy to post it for you. My email is mdhilton@gmail.com

Mark

]]> By: Cindy http://www.jpouch.net/photos/surgery-photos-stephanie-l/#comment-270 Cindy Thu, 02 Oct 2008 18:49:08 +0000 http://ucstory.wordpress.com/?page_id=361#comment-270 wow what a great story, I'll have to publish mine on here too!! your is a lot like mine. I just wish I could have had such clean incisions! wow what a great story, I’ll have to publish mine on here too!! your is a lot like mine. I just wish I could have had such clean incisions!

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