Photos: Rob B.
Rob B. – A colon cancer survivor, recently has had his jpouch reversed to a permanent ostomy, plus hernia repair.
Rob is headed inot surgery on Aug 8, 2008 for removal of jpouch and permanent ileostomy. His story is different than Mark & Carter’s because he had colon cancer many years ago, and it damaged his rectum area, leaving him with the option of a perm ileo to simply get his life back. Below is an excerpt from Rob, and we’ll be adding photos and text of his journey as it happens. Be sure to send him your support, he has a long journey of physical and emotional healing ahead!
Rob’s Story Explained: “My Colon was damaged due to radiation I received 17 years ago but I’ve been on a medication called lomotil. It controls B/M’s but unfortunately not all the time. I have had my shear of accidents so I can relate to Marks story when he was up on the lift and had an accident. You see my problem is also with my Sphincter (the anal muscle that holds everything up and in). Because of the cancer they had to removed a large portion so I have no control of any B/M’s. I can’t even feel when I’m having one. I’ve been surviving because of the medication. It hasn’t been pleasant. I need my life back so I have to go for the permanent ostomy.”
8-22-08 UPDATE: 8 days in the hospital was longer than I expected but I’m healing up pretty well. I have
about 15 staples down my belly, a permanent Colostomy which is called an End-Colostomy a hernia repair and my butt sutured up. I had the one complication which was my hernia repair. I have a staph infection. My Stoma is now on the right side. Man what a difference there is from a temporary colostomy to a permanent one (Loop to End colostomy). There’s actually hardly any smell at all. The B/M’s are a lot fewer and the stoma is a lot smaller. I guess the size would depend on the size person you are.
O. K now I’ll tell you about the pain. We all know that with any type of surgery there is going to be some level of discomfort and pain. I have to say that it wasn’t pleasant at all but it wasn’t as bad as I thought it would be. And I actually had 4 surgeries at the same time. If your in pain and the Doctor is giving you narcotics then they just have to give you a combination that works. You have to speak up or have someone speak up for you. Don’t go through any unnecessary pain. I’m taking 4 to 6 Oxycodones a day because my butt stings and the staples hurt but only if I don’t use the pain med’s. There’s one thing I want to be perfectly honest about. I’m not going to lye and say the whole bag thing doesn’t bother me because it does but only to an extent. My quality of life before and after are like night and day. Life feels so great and it’s only been less then 2 weeks.
I just want to say to anyone in pain and the pain is holding you back from doing whatever you love doing just hang in there and when the time is right to take that step and get the End-Colostomy you’ll know it. I took all the vanity and the self image stuff and thought to my self what was really important. I just wish I would have realized this sooner and got my priorities straight.
This picture is of my hernia repair and my stoma.The stoma is less than an inch in diameter. The staples start about an inch above my navel and run all the way down. I can’t sit yet because the staples dig but there coming out Monday.
It’s been almost three weeks since my surgery and I’m healing up and feeling good. In this picture you can
see where they removed some of the staples early to relieve the infection I got in the hospital. Two weeks ago it looked twice as bad. I have to pack it with a wet gauze and cover it with a dry one. It doesn’t hurt at all even though it looks like it would. I just got out of the shower and I always leave the bag off so the water can run in and out of the wafer. The wafer is the large beige patch you see around the stoma.
I’m just beat all the time. I guess it’s because my body is still healing and people tell me it takes months for the anastigia(spelling) to completely leave your body. I’m not sure how true that is but I’ve read it all over the place. One more thing, I lost 15 lbs in the hospital and so far put back 4. I guess 15 shows a lot because I’m only 5′ – 6″.