Comments on: Photos 3: Jpouch

By: Remote Data Logger

Remote Data Logger — Fri, 06 Jan 2012 06:27:13 +0000

I bookmarked it…

Without doubt I proclaim that this is one of my favourite blog list….

By: Bruna Vargas

Bruna Vargas — Mon, 02 Jan 2012 23:31:09 +0000

Hello megan and Mark, I was looking online for pics of ostomy and ended up clicking on marks picture that came up and started reading the blog. I appreciate the courage and post you wrote with all the info and pictures of step bby step of what's been happening to mark i can assure you it helps alot to know there is ppl out there living thru what we are living especially seeing the outcome of it all in the end which is what we look foward to. My husband was diagnosed with rectal cancer 1 week before our wedding in june 24 2011 and he has gone thru radiation, chemo by pills, and surgery part 1, surgery to put the port-a cath for chemo,he has a ostomy bag too and we have had our difficult times of stress too. He's is now on his 3rd session of chemo and will continue until june of this year. He will have his 3 surgery in february to close up the ostomy and i look foward to him feeling as well as mark did. Thanks for all the tips and information. What was mark's disease and what is UC?? thank you for posting i appreciate it i wish i could have done that since the beggining to help other but my husband wouldn't let me :P Thanks again, Bruna Vargas

By: jm

jm — Thu, 25 Aug 2011 05:43:03 +0000

Eric’s correct you are most likely already going back and forth to the bathroom that many times at the moment. The thing is you don’t notice it. Why? Well because you go when you want to go and you have no need to rush, this is key. People often confuse urgency with frequency, largely because when we were ill they were they came hand in hand. This is something that changes when you have a pouch, you may have higher than normal frequency but typically will have a lack of urgency and that makes all the difference.

By: Eric

Eric — Thu, 25 Aug 2011 03:59:59 +0000

That’s a great question, weenicki, and one that will vary from person to person. I had a really bad experience with my stoma, so I was more than happy to have the J-pouch. Like you, though, I was super hesitant about the whole going to the bathroom 6-8 times a day thing. When you say it that way, it sounds terrible. When you think about how often you pee, though, you are really just combining your activities. Make sense?

By: weenicki

weenicki — Wed, 24 Aug 2011 11:39:11 +0000

hi there, ive just been for a check up at the hospital and my doctor asked if i have ever considered this pouch! i never thought id have a choice after getting a stoma, but after reading hows its done am not sure if i could handle going back and forth to the toilet 6 times a day. does anyone else have this problem?? ive only had my stoma a yr and love not running to the toilet every minute of the day and found am living my life again. any comments will help me if anyone else has felt this way xxxx

By: Pregnancy belly button rings

Pregnancy belly button rings — Sat, 25 Jun 2011 19:35:02 +0000

Dangling belly button rings are decoration placed on the stomach.

By: Kelly

Kelly — Sun, 17 Apr 2011 19:52:37 +0000

Thank you for writing this! I just had step 2 of the 3-step j-pouch construction surgery, and I wanted to get some perspective on how long it takes to get used to the takedown, since I’ll be having mine in 5 weeks! The pictures really helped too. I’ll also take your advice into account and make sure I am not being overly grumpy to my loved ones, I definitely don’t mean to! I’m glad that Mark is doing so well!

By: Susanne Sayers-Smith

Susanne Sayers-Smith — Fri, 15 Apr 2011 18:05:07 +0000

I was just looking on the net to see if I could find some photos of what a total with J pouch looks like on the inside of our bodies. I had a total with a take-down at the age of 33, it failed and I had to go back and have the Stoma. Lived that way for a year knowing I needed to have my rectum finaled (what was left of it) and really could not see myself as an active person living with an ostomy bag forever. Lucky for me I work in the Medical field and once I had the Stoma decided to work with other Ostomy patients as a product rep so I could learn more…I met my night in shining armor surgeon and had a J pouch 6 months later! I am now 48 and live a great and active life. Yes, I use the restroom more then most folks and occasionally pay for spicy food but I feel very fortunate. Good luck to you! BTW, the “tag skin” comes and goes over the years. I have had it removed but really it will come back anyway. Susanne

By: Susie O

Susie O — Thu, 07 Apr 2011 14:04:38 +0000

Thank you both for all of the great info!! I can’t begin to say how much this helped my anxiety when I needed this same surgery in January 2011 after a bad fall with UC (after 20 yrs). I am scheduled for my take down April 15th – so again, to hear your personal story and great tips is reducing the fear that I have and also giving me real info – not just the clinical/textbook explanations. I am so glad you are doing well and hope that you continue to thrive. : )

By: Black Diamond Engagement Rings

Black Diamond Engagement Rings — Sun, 09 Jan 2011 19:00:08 +0000

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