Comments on: Photos: Gil (16yrsold) http://www.jpouch.net Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Fri, 12 Mar 2010 03:59:27 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Leonard Gentin http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-6374 Leonard Gentin Mon, 04 Jan 2010 08:07:36 +0000 http://ucstory.wordpress.com/?page_id=579#comment-6374 thanks for replying did you have a three stage procedure ortwo stage encouranging to read you doing well leonard thanks for replying did you have a three stage procedure ortwo stage encouranging to read you doing well leonard

]]> By: Leonard Gentin http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-6373 Leonard Gentin Mon, 04 Jan 2010 08:02:09 +0000 http://ucstory.wordpress.com/?page_id=579#comment-6373 Thanks for your reply did you have a three stage procedure and its encouranging to read you doing well leonard Thanks for your reply did you have a three stage procedure and its encouranging to read you doing well leonard

]]> By: Mark http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-6372 Mark Mon, 04 Jan 2010 04:34:44 +0000 http://ucstory.wordpress.com/?page_id=579#comment-6372 Hi Leonard, I had a much smoother 2nd surgery recovery for my jpouch than the first. It may help you read my jpouch surgery recovery journal http://www.jpouch.net/2009/12/21/update-2/ Hi Leonard, I had a much smoother 2nd surgery recovery for my jpouch than the first. It may help you read my jpouch surgery recovery journal http://www.jpouch.net/2009/12/21/update-2/

]]> By: Leonard Gentin http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-6366 Leonard Gentin Sun, 03 Jan 2010 04:54:32 +0000 http://ucstory.wordpress.com/?page_id=579#comment-6366 tina i have had my entire colon removed and have opted to have the j/pouch in six months i am scared the second operation will be as painfull and recovery harder than first operration please could you advise me leonard e.mail gentinfamily@optusnet.com.au tina i have had my entire colon removed and have opted to have the j/pouch in six months i am scared the second operation will be as painfull and recovery harder than first operration please could you advise me leonard e.mail gentinfamily@optusnet.com.au

]]> By: !!! http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-5604 !!! Tue, 20 Oct 2009 03:26:31 +0000 http://ucstory.wordpress.com/?page_id=579#comment-5604 You are an AWESOME young lady...no more words to be said...simply AWESOME! You are an AWESOME young lady…no more words to be said…simply AWESOME!

]]> By: Gina http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-342 Gina Fri, 05 Dec 2008 03:16:42 +0000 http://ucstory.wordpress.com/?page_id=579#comment-342 I had UC for 15 years, finally having to have my colon removed this past February. I had the 2-step procedure, but due to complications with the incision after each surgery(the second one in May), I ended up having an out-patient surgical procedure, followed within days by emergency surgery (I had developed a fistula in my small intestine where the iliostomy site was, so had 3 inches of that removed), exactly one month after the second surgery. In all, I had 4 surgeries in 4 months. I am 42, and I was diagnosed with my disease at the age of 27, just weeks after becoming engaged to be married. I went on to have 3 children, in amongst the flares and bad medication experiences. I put off the surgery for years, until I had no choice. I was rid of my iliostomy pouch in May, thankfully. I am now living as normal a life as I could expect (nighttime incontinence is my only issue at this point, but it's still early on and my body is still recovering), which as you know is vast improvement over living with UC. Aside from my own journey, I want to let you know you are not alone. What doesn't kill us makes us stronger, and I know you will do fine. You have a wonderful attitude, and it looks like a great community of family and friends, which is key to keeping your sanity through all of this. If you have any questions, I will be more than happy to answer them for you. Good luck to you, Gil, and God Bless. Gina I had UC for 15 years, finally having to have my colon removed this past February. I had the 2-step procedure, but due to complications with the incision after each surgery(the second one in May), I ended up having an out-patient surgical procedure, followed within days by emergency surgery (I had developed a fistula in my small intestine where the iliostomy site was, so had 3 inches of that removed), exactly one month after the second surgery. In all, I had 4 surgeries in 4 months. I am 42, and I was diagnosed with my disease at the age of 27, just weeks after becoming engaged to be married. I went on to have 3 children, in amongst the flares and bad medication experiences. I put off the surgery for years, until I had no choice. I was rid of my iliostomy pouch in May, thankfully. I am now living as normal a life as I could expect (nighttime incontinence is my only issue at this point, but it’s still early on and my body is still recovering), which as you know is vast improvement over living with UC.
Aside from my own journey, I want to let you know you are not alone. What doesn’t kill us makes us stronger, and I know you will do fine. You have a wonderful attitude, and it looks like a great community of family and friends, which is key to keeping your sanity through all of this.
If you have any questions, I will be more than happy to answer them for you. Good luck to you, Gil, and God Bless.

Gina

]]> By: Tina http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-344 Tina Mon, 17 Nov 2008 17:04:46 +0000 http://ucstory.wordpress.com/?page_id=579#comment-344 Gil, You are SUCH an inspiration. I went through all three stages- last one was in july. I feel like a new person. It was tough but it's all worth it in the end. You seem a whole lot stronger than I ever was going through the whole thing. I'd love for you to keep me updated on everything... stay strong and best of luck!! Tina Gil,
You are SUCH an inspiration. I went through all three stages- last one was in july. I feel like a new person. It was tough but it’s all worth it in the end. You seem a whole lot stronger than I ever was going through the whole thing. I’d love for you to keep me updated on everything… stay strong and best of luck!!
Tina

]]> By: mark http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-343 mark Tue, 11 Nov 2008 18:01:06 +0000 http://ucstory.wordpress.com/?page_id=579#comment-343 Hi Linda, I didn't have to keep taking medicine other than after step 1, I finished a prednisone taper. I do take now with my jpouch metamucil and immodium to help thicken up and slow me down. Mark Hi Linda,

I didn’t have to keep taking medicine other than after step 1, I finished a prednisone taper. I do take now with my jpouch metamucil and immodium to help thicken up and slow me down.

Mark

]]> By: Linda http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-345 Linda Sun, 09 Nov 2008 21:59:43 +0000 http://ucstory.wordpress.com/?page_id=579#comment-345 Hi, Did you have to keep taking medicine after the surgery? Linda Hi,

Did you have to keep taking medicine after the surgery?

Linda

]]> By: backyardmusings http://www.jpouch.net/photos/photos-gil-16yrsold/#comment-346 backyardmusings Wed, 05 Nov 2008 06:03:35 +0000 http://ucstory.wordpress.com/?page_id=579#comment-346 i'm a friend of your mom's. i'm so proud of you. you are quite a strong lady. you have a great attitude and I have no doubt that your life only gets better from here. As someone who suffers from IBS, I can only imagine the relief you must feel to not have to scope out bathrooms anymore. hugs to you, keep fighting! rae www.backyardmusings.wordpress.com i’m a friend of your mom’s. i’m so proud of you. you are quite a strong lady. you have a great attitude and I have no doubt that your life only gets better from here. As someone who suffers from IBS, I can only imagine the relief you must feel to not have to scope out bathrooms anymore.
hugs to you, keep fighting!
rae
http://www.backyardmusings.wordpress.com

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