Photos: Catarina in Portugal

Here I am to tell to the world my story. As I told you before, my name’s Catarina, I’m 24 years old and I’m portuguese. So, my story starts when i was 22 years old. I went to the hospital with lots of pain in my abdomen, diarhea with blod, lost of weight.. etc

My entire colon was damaged and i was proposal for surgery by my doctor. There was no way back – I tried lots os medication, prednisone, remicade, pentasa,

clisteres, etc.. and nothing seems to result. only high dosis of prednisone help my colitis to be calm, and not to bother me. but when i tried to get out of prednisone it starts all over again.. my body starts to claim its effects..

My first take down was on 23rd October. My surgery was made by laparoscopy..

my aspect when i was on prednisone:

Catarina on Predinsone before Surgery #1

Catarina on Predinsone before Surgery #1

Second day after my 1st surgery:

Catarina in hospital 2nd day after colectomy

Catarina in hospital 2nd day after colectomy

Here are some photos of my stoma:

catarina_stoma

catarina_stoma-and-laproscopic-bandages

My Scars:

catarina_laproscopic-scars-and-ostomy-bag

Well, your story and your blog, has encouraged me to do this surgery. I hope I can help other people with the same problem.

My next consultation with my surgery is in the next Monday, and I will have the information about when I will have my 2nd take down..

Thanks to let me post my story! I will keep you in touch!

Kisses for all of you

18 Responses to “Photos: Catarina in Portugal”

  1. avatar

    gknafelc says:

    November 12th, 2008 at 2:24 am

    OOO! Pretty stoma!! I named mine Rover…!

    Gil

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  2. avatar

    carter99 says:

    November 28th, 2008 at 3:05 am

    Good luck with the next step Catarina. Keep us updated on how things are going. How have things gone so far?

    Carter

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  3. avatar

    Catarina says:

    December 1st, 2008 at 10:09 pm

    Hi Carter!
    i’m feeling great.. the next take down is on january.. i’m a little bit anxious..
    kisses

    Catarina

    [Reply]

  4. avatar

    Dan Pickett says:

    February 5th, 2009 at 3:09 am

    You’re a trooper. Pics bring back memories. I hope your feeling good. I had surgery in 1997. Great smile.

    [Reply]

  5. avatar

    Dan Pickett says:

    February 5th, 2009 at 11:38 am

    HI,

    I am wondering how your surgery went. Feel free to contact me with any questions. 970-398-0027. forrpets@centurytel.net. I lead a pretty normal life after the surgery. I definitely can work, do any kind of sports, hiking, water skiing and much more.

    [Reply]

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    Susan C Reply:

    Hi,
    I read your comment that you had surgery in ’97. I am scheduled to have surgery on 6/15/11 and I am very nervous. I have read stories of other people who had J-pouch surgery and most of them experienced blockage after having an ileostomy. Did you have that problem too? Any advice for when that happens? I am just so nervous…

    [Reply]

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    Jackie Z. Reply:

    Susan,
    CHEW! I’ve had my ileo for over a year now, and I’ve never had a blockage. You need to be super conscious of what you eat (I am perhaps, overly conscious), but mostly its about not getting too excited when you’re stuffing your face. There are even times now, where I’m empyting my bag and I see lots of almost whole food and it keeps reminding me to chew better. When you eat with a colon the way you chew doesn’t really matter, but it has to become something you really think about. I also eat almost anything I want. Lettuce still scares me, but other than that, I eat nuts, I just chew them like crazy. I eat pop corn but only a few pieces per mouthful. Also if you get a blockage, its not the end of the world. You can try to work it out yourself at home, with hot tea and manually pushing your stomach, but if you have to go to the hospital…its no big deal. They pump you with pain meds…and send you home basically.

    If you have any questions, email me Jackie [at] gmail [dot] com, or check out my other blog, bloodpooptears.wordpress.com  I blogged from presurgery to now through all my other surgeries. Good luck. Keep up posted! 

    [Reply]

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    Susan C Reply:

    Jackie,
    Thank you so much for your advice! You just made me feel a lot better. It is the best way to get an answer from someone who had experienced the surgery than to get it from a surgeon because they don’t really know what WE go through.

    avatar

    Jackie Z. Reply:

    Susan,
    I know that approaching surgery can be scary but there is a great community here. Also, I am now 9 days away from my takedown, and Ill be honest, I’m scared to give up my bag. In the beginning, the bag sounded like the worst thing ever, but now I’m so used to it, and it makes my life so easy, Im afraid to give it up. It will take some time, but you will eventually see how the ileo makes your life better. Feel free to contact me any time!

  6. avatar

    Susan C says:

    May 29th, 2011 at 12:38 am

    Jackie,
    I really appreciate your support. I think I am so nervous because I don’t know what kind of pain I will be having after this kind of surgery and I hope my surgeon will give me some pain killer when I wake up from anesthesia. He told me I would only be staying in the hospital for 2 to 3 days. How long did you stay in the hospital after having the first surgery?

    [Reply]

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    Jackie Z. Reply:

    After surgery #1 I stayed for like 4 days, then got checked out and then got checked back in cause I couldn’t control my pain. They WILL give you tons of pain meds….really good ones! But 2-3 days sounds waaaay too short to me. At least in my experience.

    [Reply]

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    Susan C Reply:

    Hmm…I hope my surgeon knows what he is doing…supposedly he has like 30 years of experience and supposed to be good. I will be having my surgery at USC(University of Southern California) in Los Angeles. It takes almost 3 hour drive from where I live. I started packing my bag yesterday. Do you suggest any special items that I should bring to the hospital?

    [Reply]

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    Jackie Z. Reply:

    I’m sure he knows what hes doing, just don’t let them rush you out of the hospital before you’re ready. This is a HUGE surgery, it will take time to recover. Period.

    As for the hospital…I usually bring my laptop, ipod, those kinds of things. But pack extra underwear, your brush and what not. I always bring a pillow. Its mostly just comfort type stuff. Sweat pants and stuff for the ride home. I live 3 hours from the hospital too, so make sure to fill your pain meds before you leav so you can have them for the ride home. I would also get some gatorade because you will ALWAYS be dehydrated now. I water down my gatorade half and half, I found straight gatorade is too sugary, but half and half lets me drink a lot more. The hospital will have all the stuff you’ll need in regards to your surgery and ostomy. Welcome to the ostomy world…its a pretty cool place once you learn you can get your life back!

    avatar

    Susan C Reply:

    I just had my first surgery on 6/15/11. It went well and I was discharged only after two days. Everything seemed okay…until two days later. My stoma stopped pooping and I had a terrible pain. I ended up in ER and got admitted. That night, I started puking lots of bile like every 30 minutes. I thought I was dying! I started to feel a little better after my nurse inserted a nasogastric tube to suck up all the stomach acids. Doctor told me that I probably had a partial blockage due to ileus (My intestines not moving). It was a terrifying experience and I still keep thinking about it and it gives me the chills. I was discharged after six days. My abdomen is still a bit sore when I move around but my stoma is working and I am trying to get used to my new routine (emptying my ileostomy bag and drinking Gatorade throughout the day, etc.). After going through what I went through, it makes me feel nervous to have my second surgery because it may happen again. “sigh” I’m trying not to get depressed but sometimes I just feel so down. :(

  7. avatar

    Susan C says:

    June 2nd, 2011 at 11:41 pm

    Diluting Gatorade is a good idea! I’m not a big fan of Gatorade but I know I will need to drink lots of it after having this surgery. I am still nervous about the surgery but at the same time I’m beginning to feel more positive about it because this will be the end of having cramps and diarrhea all the time. I will go to a restaurant and no need to locate the restroom first! It will feel so weird not having the urge to go to the bathroom.

    [Reply]

  8. avatar

    Sofia says:

    December 2nd, 2014 at 8:06 pm

    Hi Catarina,

    Can you help me please? I’m also in Portugal and I may need surgery as all of the meds I have tried aren’t working. Can you inform me about the hospital and surgeon? The one I saw doesn’t do laparoscopy.
    have u done j pouch? Have u adjusted well? please help me if you can!

    [Reply]

  9. avatar

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    [Reply]

  10. avatar

    Heath says:

    April 20th, 2015 at 9:50 pm

    Hope to see other fantastic reads like this in the future. You really helped me build on my little knowledge of this subject.

    [Reply]

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