Comments on: Photos: Carter S.

By: Flipper

Flipper — Fri, 03 Feb 2012 02:11:39 +0000

I’ve lived with a J Pouch for a long time now, and all I have to say to anybody who’s thinking about going through J Pouch surgery is by all means don’t. I’m stuck with a bad compromise now and there’s no way out unless I want to live with a fucking shit bag on me for the rest of my life. By all means avoid sites such as jpouch.org The chimps there don’t want to hear the truth and brainwash themselves with lies. The real truth is living with a J Pouch is pure hell.

By: Jackie Z.

Jackie Z. — Wed, 23 Feb 2011 00:43:45 +0000

Greg, a colostomy is when your stoma is made from a part of your colon. An ileostomy is when they remove your whole colon, and make the stoma out of your small intestine!

By: greg

greg — Thu, 17 Feb 2011 05:42:40 +0000

HI,
I came across your story while reading up on colostomy v. ilestomy and i’m still not sure i know the difference. However, I was amazed by your story and your attitude. Very impressive and with that outlook it sounds like you will do just fine. Thanks for sharing bro!
GTM

By: Mark

Mark — Mon, 26 Apr 2010 02:31:36 +0000

Lawrence, Yes, I had the mucous discharge and at first it was a little darker and then lightens up. It is completely normal to have the discharge until you have your takedown because you still have a functioning small bowel in there. Plus, it is good because it makes you have to use your anus in the meantime to hold in the mucous so it is like doing kegels. I released mucous every time I went pee but do let your surgeon know if the bleeding type keeps going, mine stopped pretty quickly.

By: lawrence

lawrence — Tue, 20 Apr 2010 00:10:54 +0000

Mark, I am 12 days post op from illesotomy and had a rectal relocation. I have not had any issues from stoma but I have had discharge from rectum/shpincter in the form of mucous/brown blood discharge. My surgeon said it is natural since reconstructed rectum is healing to have such discharges. Is that something you had also?

By: Ted Bridging

Ted Bridging — Tue, 13 Apr 2010 12:52:19 +0000

What’s the quietest place in the world? The complaint department at the parachute packing plant

By: Kat

Kat — Thu, 08 Apr 2010 02:07:00 +0000

Hey Carter,

Thanks for sharing your story. Did you mention thesurgeon and location wehre you had your operation?

By: Kelly

Kelly — Mon, 05 Apr 2010 01:21:44 +0000

Thanks Mark. Your site on the take down was very helpful. I’m a little less worried now.

By: Mark

Mark — Sun, 04 Apr 2010 14:23:31 +0000

Hi Kelly, I figure once you have committed to the surgeries then the hardest part is actually done. Now it is just time to enjoy being healthy and learning to adjust to a few new things that are way better to manage than UC> Here is my takedown surgery journal and it explains my entire process from the test on pouch to the surgery recovery time, etc…. http://www.jpouch.net/photos/surgery-3-jpouch-or-takedown-surgery/ I found everything about the takedown surgery way easier than surgery 1.

By: Mark

Mark — Sun, 04 Apr 2010 14:20:09 +0000

Hi Elizabeth, you may want to introduce some immodium into your routine. But be sure your dr. says it is okay for you to use it. The following link will be really helpful for you to see who someone used it to get nightime issues under control. Be sure to read Jan Dollar (3rd post down) response she explains it really well. http://j-pouch.org/eve/forums/a/tpc/f/9151071921/m/5601080242?r=5601080242#5601080242