Comments for J-pouch Life http://www.jpouch.net Stories of Ostomates & J-pouchers from around the world Tue, 14 Jul 2009 05:35:05 -0600 http://wordpress.org/?v=2.8 hourly 1 Comment on Much Needed Fashion Sense by Paul LaGrange http://www.jpouch.net/2009/06/29/much-needed-fashion-sense/#comment-4714 Paul LaGrange Tue, 14 Jul 2009 05:35:05 +0000 http://www.jpouch.net/?p=2027#comment-4714 Elise, As soon as I ordered my first bags, I order the hollister "new image lock n roll drainable pouches with integrated filter". Its a two piece pouch system. Its not beige on both sides so I no longer have to see my poo as I did while in the hospital. It also has a carbon filter to filter out gas and odor so you dont get gas bulges in the pouch. I love it and feel more comfortable with it knowing i wont gross anyone out if I lift up my shirt, most of all me. If your ordering the item # is 18183. Elise,
As soon as I ordered my first bags, I order the hollister “new image lock n roll drainable pouches with integrated filter”. Its a two piece pouch system. Its not beige on both sides so I no longer have to see my poo as I did while in the hospital. It also has a carbon filter to filter out gas and odor so you dont get gas bulges in the pouch. I love it and feel more comfortable with it knowing i wont gross anyone out if I lift up my shirt, most of all me. If your ordering the item # is 18183.

]]> Comment on Pre-Takedown: Tales From Beyond The Stoma by ml http://www.jpouch.net/2009/07/11/pre-takedown-tales-from-beyond-the-stoma/#comment-4706 ml Tue, 14 Jul 2009 03:24:43 +0000 http://www.jpouch.net/?p=2053#comment-4706 Just got on today. I hope it went well. Thanks for you honest and humor. Cant wait for the second stage stories from You. I have picked a surgeon so the 13th looks like it was a good day for both of us. ML Just got on today. I hope it went well. Thanks for you honest and humor. Cant wait for the second stage stories from You. I have picked a surgeon so the 13th looks like it was a good day for both of us. ML

]]> Comment on Pre-Takedown: Tales From Beyond The Stoma by Erin http://www.jpouch.net/2009/07/11/pre-takedown-tales-from-beyond-the-stoma/#comment-4704 Erin Tue, 14 Jul 2009 02:11:48 +0000 http://www.jpouch.net/?p=2053#comment-4704 Hope everything went well. =) Hope everything went well. =)

]]> Comment on Call for Stories, Blogs, Links, Photos by Elise http://www.jpouch.net/2008/06/09/call-for-stories-blogs-links-photos/#comment-4693 Elise Sun, 12 Jul 2009 23:47:23 +0000 http://ucstory.wordpress.com/?p=99#comment-4693 Hi Julia, My name is Elise. Brevin and Mark mentioned me above. I too was terrified just as recently as a month ago. I have Crohn's disease, but it wasn't determined until the surgeron actually had his hands on my colon during surgery. My disease acted more like UC and I was scheduled for two part J-Pouch surgery like most everyone else on this site. The surgeon did not create my J-Pouch because my colon looked more like Crohn's disease after all. Pathology then confirmed it a few days later, so I have a permanent ileostomy. Now Julia, I was inconsolable, devistated! I really thought my life was over and this was not even three weeks ago! Let me tell you, this past week has been amazing. I feel the best I have felt in probably five years! I know that these are just my words and I do understand the fear and feelings you have right now. I am actually going to be okay with this new friend of mine (Burberry the stoma), you will be fine Julia, better than fine. I don't know if you are on facebook, but you can find me on there too, my email is elisesunshine@yahoo.com Sincerely, Elise Hi Julia, My name is Elise. Brevin and Mark mentioned me above. I too was terrified just as recently as a month ago. I have Crohn’s disease, but it wasn’t determined until the surgeron actually had his hands on my colon during surgery. My disease acted more like UC and I was scheduled for two part J-Pouch surgery like most everyone else on this site. The surgeon did not create my J-Pouch because my colon looked more like Crohn’s disease after all. Pathology then confirmed it a few days later, so I have a permanent ileostomy. Now Julia, I was inconsolable, devistated! I really thought my life was over and this was not even three weeks ago! Let me tell you, this past week has been amazing. I feel the best I have felt in probably five years! I know that these are just my words and I do understand the fear and feelings you have right now. I am actually going to be okay with this new friend of mine (Burberry the stoma), you will be fine Julia, better than fine. I don’t know if you are on facebook, but you can find me on there too, my email is elisesunshine@yahoo.com

Sincerely,

Elise

]]> Comment on Call for Stories, Blogs, Links, Photos by Julia Oursler http://www.jpouch.net/2008/06/09/call-for-stories-blogs-links-photos/#comment-4692 Julia Oursler Sun, 12 Jul 2009 23:31:12 +0000 http://ucstory.wordpress.com/?p=99#comment-4692 Dear Mark: Thank you for all the hook-ups. If you read my reply to Brevin, you'll see I don't have the j-pouch option. In a way I'm very curious about the whole process, but still do not want this happening. I will definitely be looking into the sites you suggested. It's great to know that I'm not alone. I'll be back! Julia Dear Mark: Thank you for all the hook-ups. If you read my reply to Brevin, you’ll see I don’t have the j-pouch option. In a way I’m very curious about the whole process, but still do not want this happening. I will definitely be looking into the sites you suggested. It’s great to know that I’m not alone. I’ll be back!
Julia

]]> Comment on Call for Stories, Blogs, Links, Photos by Julia Oursler http://www.jpouch.net/2008/06/09/call-for-stories-blogs-links-photos/#comment-4691 Julia Oursler Sun, 12 Jul 2009 23:29:16 +0000 http://ucstory.wordpress.com/?p=99#comment-4691 Dear Brevin: Thank you! Unfortunately, I won't be able to have a j-pouch I was told because of other past surgeries which took most of the perineum. I'm trying to wrap my head around all of this and I really liked your joke. I'll be keeping in touch. Julia Dear Brevin: Thank you! Unfortunately, I won’t be able to have a j-pouch I was told because of other past surgeries which took most of the perineum. I’m trying to wrap my head around all of this and I really liked your joke. I’ll be keeping in touch.
Julia

]]> Comment on Call for Stories, Blogs, Links, Photos by Mark http://www.jpouch.net/2008/06/09/call-for-stories-blogs-links-photos/#comment-4690 Mark Sun, 12 Jul 2009 23:07:57 +0000 http://ucstory.wordpress.com/?p=99#comment-4690 Hey Julia! Yep, this is a viable site (so we like to think :) Brevin is right that Elise will need to chime in and talk with you since she has the CD and perm ileo option as a reality. Also, you should check out Lizz's posts (see here http://www.jpouch.net/author/lizz/ ) She has a jpouch with CD, but she would be a good one also to touch base with. Then of course, there is the wonderful discussion board at www.jpouch.org that we always recommend for newbies to make contact. And over at www.healingwell.com there is a great discussion board for CD. Oh, and of course, there is Sarah B., her story is told in this link. she has a perm ileo and is really involved in different ostomy support groups,etc...she is also a great contact for you http://www.jpouch.net/2008/12/28/sarahs-permanent-ileostomy/ The long and the short of it is that YOU ARE NOT ALONE, and anything you need just give us a holler and we'll try to help or send you somewhere we know for help. Hey Julia! Yep, this is a viable site (so we like to think :) Brevin is right that Elise will need to chime in and talk with you since she has the CD and perm ileo option as a reality. Also, you should check out Lizz’s posts (see here http://www.jpouch.net/author/lizz/ ) She has a jpouch with CD, but she would be a good one also to touch base with. Then of course, there is the wonderful discussion board at http://www.jpouch.org that we always recommend for newbies to make contact. And over at http://www.healingwell.com there is a great discussion board for CD. Oh, and of course, there is Sarah B., her story is told in this link. she has a perm ileo and is really involved in different ostomy support groups,etc…she is also a great contact for you http://www.jpouch.net/2008/12/28/sarahs-permanent-ileostomy/ The long and the short of it is that YOU ARE NOT ALONE, and anything you need just give us a holler and we’ll try to help or send you somewhere we know for help.

]]> Comment on Pre-Takedown: Tales From Beyond The Stoma by Brevin http://www.jpouch.net/2009/07/11/pre-takedown-tales-from-beyond-the-stoma/#comment-4688 Brevin Sun, 12 Jul 2009 22:27:58 +0000 http://www.jpouch.net/?p=2053#comment-4688 I just found today I can eat jerky. Today. Literally one day before takedown surgery. ...sniff... I just found today I can eat jerky. Today. Literally one day before takedown surgery. …sniff…

]]> Comment on Pre-Takedown: Tales From Beyond The Stoma by Brevin http://www.jpouch.net/2009/07/11/pre-takedown-tales-from-beyond-the-stoma/#comment-4687 Brevin Sun, 12 Jul 2009 22:26:37 +0000 http://www.jpouch.net/?p=2053#comment-4687 Maybe that procedure differs per person? It really wasn't that bad ha. I would rather have it go up the bum than through the stoma, because I can't physically see what they do in the back whereas I will see them poke stuff in the stoma. I'll visit the week of the 3rd! I put Jamie through the horrible nightmare of me showing up with a guitar for a visit, so you can expect the same :) Maybe that procedure differs per person? It really wasn’t that bad ha. I would rather have it go up the bum than through the stoma, because I can’t physically see what they do in the back whereas I will see them poke stuff in the stoma.
I’ll visit the week of the 3rd! I put Jamie through the horrible nightmare of me showing up with a guitar for a visit, so you can expect the same :)

]]> Comment on Pre-Takedown: Tales From Beyond The Stoma by Emily http://www.jpouch.net/2009/07/11/pre-takedown-tales-from-beyond-the-stoma/#comment-4684 Emily Sun, 12 Jul 2009 20:17:01 +0000 http://www.jpouch.net/?p=2053#comment-4684 Hey Brevin...thanks for the TRUTH! I was told at Dr. V's office that the x-ray/enema tube went into the stoma...liars! I guess they figure if we knew it went up our bums we wouldn't show up! Anyway, thanks again for making me laugh and I will be thinking only the best for you tomorrow; you'll do awesome. By the way, I'm next...6 A.M. August 3rd! Keep us posted and take care of yourself! Hey Brevin…thanks for the TRUTH! I was told at Dr. V’s office that the x-ray/enema tube went into the stoma…liars! I guess they figure if we knew it went up our bums we wouldn’t show up! Anyway, thanks again for making me laugh and I will be thinking only the best for you tomorrow; you’ll do awesome. By the way, I’m next…6 A.M. August 3rd!

Keep us posted and take care of yourself!

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