Comments for J-pouch Life

Comment on About Jpouch dot net by Ziegler

Ziegler — Mon, 15 Mar 2010 18:24:11 +0000

I’m afraid that the Pit bull needs a particular type of owner…these pet dogs, no matter how ‘adoring’ nevertheless have teeth, are still creatures with no moral ideas and when they DO bite, won’t let go. As in all creatures…some often be much more suseptable to instinctual behavior and time and time once again, this breed tends to complete just that.

Comment on Our Message Board by Terry

Terry — Mon, 15 Mar 2010 14:18:06 +0000

What kind of adhesive paste are you using? Also, there is a bag that goes with a belt which won’t guarantee anything but it helps…along with adhesive paste. It really helped me. I wonder if the shape of your stoma has changed and you need to be cutting a different hole size. My best suggesttion is to find a stoma nurse (I think the correct term is “wound ostomy nurse” for some expert guidance. Good luck!! Terry

Comment on My Top 3 Most Embarrassing Colitis Incidents by Helena

Helena — Mon, 15 Mar 2010 03:29:08 +0000

The most embarassing thign tht had ever happened to me with the illestomy was when my boy friend was over and although he knew aobut the j pouch i was still very conscious and uncomfortable. One day while he was kissing me he avccidnelty pressed up against me too hard and my j pouch completly ripped off and all the “feces” got all over his left sleeve:| it swas probably the most mortifying thing that has ever happended to me but he is a really great guy and made a joke of it and told me it was no big deal and tht he loved me. To this day i will never forget when that happened.

Comment on Our Message Board by Taylor

Taylor — Mon, 15 Mar 2010 01:37:41 +0000

Hey guys! I am 6 weeks post surgery #1 and suppose to get back to work tomorrow. But all the sudden this weekend my bags won’t stick at all. I have gone through at least 14 and my skin has had it. I was thinking about using a non-adhesive bag till it heals. Any suggestions or feedback on them? I can’t find any online. Thanks for your help!

Comment on Photos 3: Jpouch by Charlie

Charlie — Sun, 14 Mar 2010 21:06:02 +0000

Hi i just came across this website and found your story, i find it very inspiring and has put my mind at rest. Im 17 and had UC when i was 13, i tried all medicines and nothing worked. Eventually i had total colectomy at the age of 14 then jpouch construction at 16. I had the reversal of my stoma 3 weeks back now and im getting on okay, the first week was quite hard with me but then tried the immodium and has helped out alot. Im recovering well and hoping to get back to college in a couple of weeks, i cant wait to do get on with my life not worrying about Uc anymore.

Comment on Our Message Board by Joe

Joe — Fri, 12 Mar 2010 03:59:27 +0000

Hello ML, I see you had your surgery 1 week after my take down surgery. I am presently having 12-15 BMs per day. I also have a sense of urgency. I am just curious, what is your experience so far? Are you feeling better? Are you taking imodium and/or metamuci? I would appreciate your feedback>

Comment on Our Message Board by Mark

Mark — Thu, 11 Mar 2010 22:25:50 +0000

Sorry, sounds not fun. I had a couple temp ileo bag issues, but I just dealt with them and waited till jpouch. Yours just sounds like you slept too hard (a blessing though if you think about the fact you were sleeping enough to fill your bag), and the bag got too full. I think I’d take the blowout any day if I meant a good nights sleep. All those years of UC and not good sleep.

Comment on The First Surgery: One Month Later by RT Elkin

RT Elkin — Thu, 11 Mar 2010 21:46:32 +0000

Fantastic attitude & you’re funny as hell! I’ve still got a semi-colon (which is good because I teach English), so maybe my ostomy doesn’t translate into ileostomy circles, but colace (generic just fine) is great at regulating poo consistency, & disposable tan pouches (attaching like tupperware to a pectin-ringed foundation) are by far to me the psychologically preferable method to deal with the regular removals of the pooservoir. As to anal drainage, I’ve got a Hartmann’s pouch which insists on being drained of mucus by the formerly conventional method of sitting down on the bowl several times a day.

Comment on Our Message Board by Terry

Terry — Thu, 11 Mar 2010 20:21:19 +0000

Rachel, I use Depends and they help keep the bedding clean. I wear underpants over them to make me feel more normal in front of my wife. She could care but it bothers me to be seen with the Depends on. If your problem continues, you might ask your surgeon about Cholestyramine powder. It was initially developed to deal with cholesterol, hence the name. I have had just two doses (started yesterday) so I can’t speak to its effectiveness but the pharmacist was glad to see the prescription, saying it seems to work. Good luck to you.

Comment on Our Message Board by Terry

Terry — Thu, 11 Mar 2010 20:01:05 +0000

Michael, these folks nailed it right on. Travel light…the rooms aren’t that big in any hospital. I brought my Blackberry instead of laptop and was able to communcate with my friends that way, as well as keep up with the news, sports scores etc.