J-pouch Life

I love the logo for Jackie’s new blog! If you have a minute, go check out her posts, and hopefully she won’t be a stranger around these parts. Check our her blog here.

J-pouch.net readers, We wanted to welcome Jessica to our community. Below is an email we received from Jessica and like many of us, she has had many struggles with UC and she is starting her first surgery Sept 25th.    See the link to her website below. Dear Mark, My name is Jessica, and have had [...]

My latest colonoscopy results are in. Prior to the colonoscopy, I was still in the decision making process and trying to overcome my fear of surgery. Well, the colonoscopy made the decision for me. After seven years of maximum dosage for my ulcerative colitis, I’m not improving. While I could suck it up and keep [...]

I just had a colonoscopy (explained by Mayo Clinic). While in the waiting room I thought of my UC in general and came up with this list. If you have Ulcerative Colitis, you know exactly what a “Colitis Incident” is. I just didn’t know what to call it. It’s when you get that urge to [...]

I was recently reading the November 27, 2008 issue of Rolling Stone Magazine, and they did an article on the famous fashion designer Marc Jacobs. The article is really interesting and talks about his story of living with UC – it is excellent that someone so high profile is willing to talk about their disease. [...]

THREE CHEERS TO RENEWED HEALTH! “Every event, every situation in which you may find yourself has a positive value, even the dramas, even the tragedies, even the thunderbolt from a calm sky.” – Arnud Desjardins   I have my step 1 one year anniversary today, July 6th, 2007. And feeling incredibly well, with low BMs and overall [...]

   WEBCAST: No One Understands My Pain: Communicating about Crohn‘s & Colitis Health Take has offered a very good webcast on how to talk to others about the disease you are living with.  The webcast especially addresses how with these diseases we often look “fine or healthy” but we are not. “Often when you’re suffering from [...]

There are no words to describe how awesome this is, Jordan Sweeney has taken his talent for music and written an album about living and battling UC. You must listen to his songs, and buy his album to support great work on bringing awareness to UC. His website is located here: Jordansweeney.com [youtube=http://youtube.com/watch?v=9JeZ0A7Jigw&feature=related] The Rain [...]

Instead of Providing you with ONLY photos of Mark’s Temporary Loop Ileostomy, we’ve started asking others to contribute their stoma photos. Now, please note, these are Loop Ileostomies, which means that they are likely temporary. There are other types of ileostomies like end ileo, we do not have any pictures of those. Below is Ashely, [...]