J-pouch Life

We are so pleased to be sharing Catarina’s story with you. She is 24 years old, lives in Portugal and has just had step 1 surgery due to her UC. Photos: Catarina in Portugal Be sure to visit her page and give her support!  What is so important that we must realize is that UC [...]

Open letter to President-Elect Obama Dear President-Elect Obama: We believe you will bring change and a united spirit to our country. Our letter to you is not political, but it is the voice of a family that has struggled in the American health care system to manage life living with a serious chronic disease. In [...]

Colon Club Colondar 2009 It is time for the 2009 Colondar. from the Colon Club, the 2009 Colondar tells the remarkable stories of colon cancer survivors. The colon calendar is $16.00 and well worth the money to support colon cancer awareness. Be sure to support the cause, and buy the colondar for yourself and family [...]

I’ve been having serious problems with hair loss. This may be even more of an issue for me because of my post-surgery disaster but I believe a lot of people do experience some hair loss with surgery or malnutrition. My hair is finally starting to grow back after 5 months, but I was pretty close [...]

  Hello everyone! I am writing to your in regards to a cause that is very near and dear to your hearts. We have all taken on the same monsters: UC and Crohn’s. We have spent nights clinging to our toilets (might as well have slept in the bathtub!), shed pounds from malnourishment because we [...]

  Since I’m a researcher by trade, I’ve been thinking about how research can help others who are going through, or anticipating going through, surgery for UC. I’m currently in alone in a hotel room in Quebec City (poor me – I’m here for a conference) and so have decided to take advantage of the [...]

We are super excited to introduce Gil to the blog!  Gil at 16 years old, has recently had surgery and pending step 2.  Be sure to visit Gil’s surgery photos and story at Gil’s photo journal of UC to Jpouch . “I’m Gil and this is my transformation story from Ulcerative Colitis to a J-Pouch.” [...]

Do you have Ulcerative Colitis? You may qualify to participate in a unique opportunity to inform and improve the future of Ulcerative Colitis treatment. If you qualify, you will be compensated at least $200 for your time. Participation involves either a week-long online discussion board or a one time 2.5 hour in-home interview (in Denver, [...]

Do you get it? Vlog not blog. Vlog because it has videos – oh, how fast technology changes!  Anywho, Dennis is a new vlogger, he is inbetween surgeries and he is video documenting his journey out of UC and into life with a jpouch.  Below is one of his videos and if you visit his [...]