Archive for the ‘Support Systems’ Category

Camp Oasis

Thursday, July 29, 2010 5:55 No Comments

Hey everyone, Last week I got back from Camp Oasis, which is the amazing camp for 7-17 yr olds with IBD. I posted a blog entry about it here. I honestly urge you all to find the closest Camp Oasis location to you, and volunteer next summer. This camp is a really amazing place for […]

This was posted under category: Support Systems


Monday, December 21, 2009 7:43 9 Comments

Hey thought I would post an update on how everything is going so far, it has been almost three months since my total colectomy and I am doing great. As for now as I am waiting to return to college in mid January, I am working out at the YMCA 3-4 days a week and […]

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New website for gay people who are affected!

Sunday, December 20, 2009 7:22 36 Comments

Hey guys- I just created a blog to be a resource for members of the GLBT community to visit and get some answers on questions that you have been searching endlessly for. I know it’s a very taboo topic, but as a gay man, I would have loved having a place where I can go […]

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Natalie’s New Blog on Colectomy

Monday, June 1, 2009 6:39 53 Comments

Hey Readers,  We recently met Natalie who has just had a colectomy after living with UC. She has created a blog and we wanted to let you know about it. Email from Natalie below: I have recently had a colectomy in March and a reversal just 2 weeks ago tomorrow, following years of having ulcerated […]

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My Tongue VS Surgery: Round One

Wednesday, April 1, 2009 20:21 18 Comments

Time flies. Back on February 6th, I posted on this site about how long the wait was to see the GI at UCSF, and then, in a desperate attempt at optimism, threw out some possible perks to having UC. In your face, optimism! Turns out all I needed was a billion distractions and BAM! I […]

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Thanks To Jamie And Hospital Recovery Activities

Wednesday, February 18, 2009 23:50 7 Comments

I had the pleasure of meeting fellow contributor Jamie and her husband Avery this past weekend for lunch. Wow. What nice people. Not only were they friendly and informative, but Jamie even brought me samples of different ileostomy bags, some reading material clearly meant for the exclusive cool crowd (J-Pouchers), and helped describe more […]

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Motivational Poop Posters

Friday, February 13, 2009 13:11 7 Comments

I know, I know, sexist, classist, beautist, racist, and all that. Why am I posting it? Because it’s true. We should have a line of posters that we create here at – they could say things like “rock stars, they get diarrhea too.” “World Leaders, yes, they get IBD too” “The janitor at your […]

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Care Pages

Monday, January 19, 2009 19:28 7 Comments

I know that, during my last hospital stay, my partner spent a lot of time keeping a lot of people in the loop about my condition. This time, I’m hoping to be able to do more of it myself, and I’m thinking of trying out this new site I found, Care Pages, which allows you […]

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Offering Support: What to Say in a Difficult Situation

Tuesday, October 21, 2008 1:51 5 Comments

I’m finally getting around to posting again after dealing with some new issues (Positive: returning to work full-time and going back to the gym. Negative: unforeseen financial ramifications from being sick and my first appointment with the j-pouch surgeon where I was told it’s not clear that I don’t also have Crohn’s, so the OK […]

This was posted under category: Friends, Support Systems