Archive for the ‘Coping/Support’ Category

Updates from Surgery #2/3

Tuesday, May 3, 2011 8:02 2 Comments

Hey all, Its been about 6 weeks since my surgery…and this one…of course didn’t work out 100% awesome like I wanted it to. The surgery went ok, I got my pouch but he didn’t do a takedown. Also the stoma separated, and retracted, my vagina got tilted, I got depressed, and all sorts of other [...]

This was posted under category: Coping/Support

8 Days from Surgery

Wednesday, March 9, 2011 13:14 1 Comment

So I’ve got 8 days until we try to redo my step 2, which is now technically step 3 of 4….its complicated. But in anticipation, I’ve created this facebook page. Enjoy.   Dr. Remzi Gave Me A New Butt

This was posted under category: Coping/Support

J-Pouch Jesus

Sunday, November 28, 2010 20:55 2 Comments

Electric Jesus So, I feel a bit like I’ve been raping the Jpouch.net homepage lately.  In my defense, there’s been a lot going on and I’m under the impression that you guys are fascinated with my suffering.  Just joking.  Actually, I come to you now in a state of gratitude and excitement.  After years of [...]

This was posted under category: Coping/Support

Fear Monger, MD

Thursday, November 4, 2010 0:14 6 Comments

Hi, guys!  So, I’m still alive.  I thought I would give you a brief update about how things are going with lupus.  It pretty much sucks.  It’s not like I’m not used to pain and my body doing weird shit, cause I totes am. However,  I am used to it mostly being invisible to the [...]

This was posted under category: Coping/Support Tags: , , , , , , ,

“Ch-ch-ch-changes”

Thursday, September 30, 2010 11:21 4 Comments

I think that’s how the song went…Anyway. Lots of those happening here! First off, I decided at the suggestion of my surgeon to apply for disability. My, there’s a lot of paperwork involved…Second, we are moving to Texas! In two weeks! My husband got a job offer out there that was just too good to [...]

This was posted under category: Coping/Support

My Foster Bag Wants to be Adopted

Thursday, September 2, 2010 9:36 6 Comments

Yup, its true, my “foster” bag wants a permanent home, it wants to be adopted. It seems like its doing everything it can to make a lovely home on my belly. Here’s the scoop. The last time I blogged I was getting ready to have the first leak fixed back in February. I went into [...]

This was posted under category: Coping/Support Tags: , , , , ,

The Baby Has Arrived!

Sunday, July 4, 2010 11:37 2 Comments

Hello, We are thrilled to announce the birth of our little girl, Laney Lee-Hilton. She was born on June 12, 2010 at 4lb 9oz. Although small she was full term and perfectly healthy with a good working digestive system!  Almost 3 years out from my jpouch surgery it is so exciting to see our life [...]

This was posted under category: Coping/Support

What to Do?

Friday, July 2, 2010 14:00 5 Comments

Hi ya’ll. So, if you’ve been keeping up with the blogs over the past few months, you know I’ve had test after test to see what’s wrong with my pouch/me. Throughout the years I’ve had strictures, twisted J-pouch, Crohn’s, pouchitis. Now my new surgeon wonders if I even have Crohn’s. Maybe it’s just the worst [...]

This was posted under category: Coping/Support

Old Married J-pouch Lady!

Thursday, June 17, 2010 23:00 7 Comments

Well, my J-pouch and I are now married to a wonderful, fully-coloned man named Rob.   We both have a new last name.  Not sure if the pouch is going to hyphenate or not… Our knight in shining armor is Rob, who has stuck by us through blockages, twisting guts, and many surgeries. What a guy! [...]

This was posted under category: Coping/Support