Archive for the ‘Coping/Support’ Category

Loss & Gain

Thursday, December 29, 2011 21:09 2 Comments

If you are dealing with loss, I wish you healing, and if I can help, by listening, by offering advice, e-mail me. If you need to talk about how IBD/j-pouch surgery is affecting your life, respond to this post-let’s get more discussion going! This website is a blessing. It’s something for which I am eternally grateful. Thanks to Mark & Megan for taking the initiative to create something to connect and assist others who have or are experiencing what they have experienced. And, let’s all take a moment to honor those we’ve lost, and to honor ourselves for being survivors.

This was posted under category: Coping/Support Tags: , , ,

Return from Pouch Paridise

Thursday, December 1, 2011 11:33 4 Comments

Bringing you an instant recap from my day of ass-reaming at the J-pouch resort that is Cleveland Clinic. This is trip number three for me total, trip two since I’ve been a bionic medical wonder, and trip two to see Dr. Shen, dubbed by me, “J-Pouch Jesus.” I flew out Monday and met up with [...]

This was posted under category: Coping/Support

Dr. Shen, Part Deux and The Third Button

Monday, November 14, 2011 21:42 2 Comments

Dr. Shen, Part Deux And… The Third Button Hello no-coloned readers.   Long time no blog.   I’ve improved so much since last-year’s visit with Dr. Shen that I haven’t had much to bitch about.   This is my excuse for my vacation from Internet vent-cause-yer sick-land.   But, I’m glad to be back to tell you about [...]

This was posted under category: Coping/Support

Take another walk

Monday, October 10, 2011 7:23 6 Comments

Hey guys, it’s been a while, and I thought I would update everyone one what has been going on since my last post back in September of last year. At that point I had, had one more surgery in an attempt to fix a persistent leak just below my jpouch. I waited about six months [...]

This was posted under category: Coping/Support

2 Years Post TakeDown

Wednesday, July 20, 2011 22:02 6 Comments

It’s been two years since my takedown and, as a society, we still don’t have flying cars or cloned dinosaurs. That I know of. I mean, I check the news daily to see if any of these scientific breakthroughs have become reality, but no. Nothing. Come 2034, I better have robot legs with jet thrusters. [...]

This was posted under category: Coping/Support, humor, j pouch pictures, Living with jpouch, Photos Tags: , , , , , , , ,

Help Joplin!

Friday, May 27, 2011 17:05 1 Comment

Word is Joplin has zero ostomy supplies. I know that when I became an ostomate, I got TONS of free supplies from the big companies that are just sitting around. If you have supplies, please send them.   The President of the Joplin Missouri Ostomy Association reported their supplies were destroyed when St. John’s Hospital [...]

This was posted under category: Coping/Support

Take down in 10 days!!!!

Friday, May 27, 2011 16:24 35 Comments

Hey ya’ll. There is a lot of update on so bear with me. As a lot of you know, I was traveling to Cleveland Clinic to have my surgeries, and used to rave about how wonderful they were. Well over the last year, they slowly became less than wonderful. (more details about this on my [...]

This was posted under category: Coping/Support, Ileo-anal anastomosis, Ileostomy, surgery

Updates from Surgery #2/3

Tuesday, May 3, 2011 8:02 2 Comments

Hey all, Its been about 6 weeks since my surgery…and this one…of course didn’t work out 100% awesome like I wanted it to. The surgery went ok, I got my pouch but he didn’t do a takedown. Also the stoma separated, and retracted, my vagina got tilted, I got depressed, and all sorts of other [...]

This was posted under category: Coping/Support

8 Days from Surgery

Wednesday, March 9, 2011 13:14 1 Comment

So I’ve got 8 days until we try to redo my step 2, which is now technically step 3 of 4….its complicated. But in anticipation, I’ve created this facebook page. Enjoy.   Dr. Remzi Gave Me A New Butt

This was posted under category: Coping/Support