J-pouch Life

If you are dealing with loss, I wish you healing, and if I can help, by listening, by offering advice, e-mail me. If you need to talk about how IBD/j-pouch surgery is affecting your life, respond to this post-let’s get more discussion going! This website is a blessing. It’s something for which I am eternally grateful. Thanks to Mark & Megan for taking the initiative to create something to connect and assist others who have or are experiencing what they have experienced. And, let’s all take a moment to honor those we’ve lost, and to honor ourselves for being survivors.

Bringing you an instant recap from my day of ass-reaming at the J-pouch resort that is Cleveland Clinic. This is trip number three for me total, trip two since I’ve been a bionic medical wonder, and trip two to see Dr. Shen, dubbed by me, “J-Pouch Jesus.” I flew out Monday and met up with [...]

Dr. Shen, Part Deux And… The Third Button Hello no-coloned readers.   Long time no blog.   I’ve improved so much since last-year’s visit with Dr. Shen that I haven’t had much to bitch about.   This is my excuse for my vacation from Internet vent-cause-yer sick-land.   But, I’m glad to be back to tell you about [...]

Hey, guys.  Long time no blog.  So, here’s the scoop-I’ve been doing a lot better since my visit with pouch guru Dr. Bo Shen back in November.  He diagnosed me with efferent limb syndrome which means that the connection to my j-pouch goes at a diagonal instead of vertical making it really hard to poop!  [...]

Well, I finally made the pilgrimage back to Cleveland Clinic (CC) to see the famed “King of Pouches”, Dr. Bo Shen. As one involved in the J-pouch/IBD community, I had, of course, heard of Dr. Shen before. He’s sort of the last desperate act for a lot of people who come from all over the [...]

Electric Jesus So, I feel a bit like I’ve been raping the Jpouch.net homepage lately.  In my defense, there’s been a lot going on and I’m under the impression that you guys are fascinated with my suffering.  Just joking.  Actually, I come to you now in a state of gratitude and excitement.  After years of [...]

Hi, guys!  So, I’m still alive.  I thought I would give you a brief update about how things are going with lupus.  It pretty much sucks.  It’s not like I’m not used to pain and my body doing weird shit, cause I totes am. However,  I am used to it mostly being invisible to the [...]

Today is one of the days I hate my body.  It is just not working with me!  The good news is, we got to Dallas safely and without too much hassle.  Thanks to a two-week dose of the dreaded Prednisone, I had energy and the roid-rage needed to move 2,000 miles.  I was also allowed [...]

I think that’s how the song went…Anyway. Lots of those happening here! First off, I decided at the suggestion of my surgeon to apply for disability. My, there’s a lot of paperwork involved…Second, we are moving to Texas! In two weeks! My husband got a job offer out there that was just too good to [...]