Author Archive

Stoma Retraction (or, changing my flange 8 times in 24 hours)

Saturday, June 20, 2009 4:39 30 Comments

Since I got home from the hospital, my stoma has been somewhat retracted. I have a loop ileostomy now, so I have two pieces of my intestine forming my stoma instead of one. The working part retracted quite a bit, but went to the point of near disappearance a couple of days ago. Because the […]

This was posted under category: Ileostomy Tags: , , ,

Fibre Supplements

Sunday, June 14, 2009 6:50 15 Comments

Fibre Supplements I started to respond to Brevin’s question about fibre supplements, but the comment was getting too long, so I figured I’d make a new post about it. I just started using fibre supplements during my last hospital stay. I hadn’t needed them before but after the incident with the blockages, I was losing […]

This was posted under category: Fiber Tags: , ,

Hospital Stay and Fundraising Success

Monday, June 8, 2009 23:53 6 Comments

It’s been quite a while since I’ve posted, but it was for good reason. First, the reason was that I got back into my regular life after my second surgery and stopped thinking about UC all the time (I planned to put the third step off until the fall, as a way to manage my […]

This was posted under category: other Tags: ,

Relationships & Chronic Illness

Monday, March 9, 2009 6:39 4 Comments

The NYTimes publishes articles about “Modern Love” that I often finding touching and interesting take on what relationships are about. I just read this article that is written by a man whose wife became a paraplegic in a car accident. It’s a wonderful story and I think it’s relevant here for two reasons: 1) it’s […]

This was posted under category: relationships Tags: ,

Update for Surgery: Round 2

Thursday, February 19, 2009 11:34 13 Comments

It’s time for my surgery update! To recap, I had emergency surgery last May, and things did not go well. I had had a temporary ileostomy since then and it took me a long time to feel well enough to go back into surgery. On February 6th, I had my second surgery. The plan was […]

This was posted under category: updates Tags: , , , ,

Care Pages

Monday, January 19, 2009 19:28 7 Comments

I know that, during my last hospital stay, my partner spent a lot of time keeping a lot of people in the loop about my condition. This time, I’m hoping to be able to do more of it myself, and I’m thinking of trying out this new site I found, Care Pages, which allows you […]

This was posted under category: Support Systems Tags: , , ,

Just a quick note about Prednisone

Saturday, January 17, 2009 10:31 11 Comments

I just wanted to make a quick note about Prednisone, as many people with UC (and many other diseases) end up taking it. Back when UC was a very minor part of my life, my biggest fear (because surgery didn’t even seem like a possibility) was having to take Prednisone. I try to talk to […]

This was posted under category: Medication Tags: , , ,

Suggestions for Carers (Things I found helpful from my partner)

Saturday, January 10, 2009 17:58 5 Comments

A commenter recently asked about how to take care of a loved one who has UC. This has come up before and I have tried to assemble a list of things I found helpful from my partner. Please add any other suggestions in the comments (I’d love to hear what others have to say). 1. […]

This was posted under category: Coping/Support Tags: , ,

Change in Plans

Saturday, January 10, 2009 6:56 4 Comments

I’m unsure how things are in other countries, but in Canada (given our universal health care system – yay Canada!) there is always a looming chance that surgery will get bumped. I have been scrambling to get things ready for when I go into surgery and was planning a celebratory weekend after my PhD proposal […]

This was posted under category: Jpouch Surgery Tags: ,