J-pouch Life » Jackie Z. http://www.jpouch.net Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Fri, 30 Dec 2011 05:31:30 +0000 en hourly 1 http://wordpress.org/?v=3.3 Help Joplin! http://www.jpouch.net/2011/05/27/joplin/ http://www.jpouch.net/2011/05/27/joplin/#comments Sat, 28 May 2011 00:05:17 +0000 Jackie Z. http://www.jpouch.net/?p=2632 Word is Joplin has zero ostomy supplies. I know that when I became an ostomate, I got TONS of free supplies from the big companies that are just sitting around. If you have supplies, please send them.

 

The President of the Joplin Missouri Ostomy Association reported their supplies were destroyed when St. John’s Hospital was hit by the tornado. Please spread the word that he will accept shipments and get them to the people who can use them:

Benjamin Moore
7589 SE Quaker Road
Riverton KS 66770

Most Commented Posts

]]> http://www.jpouch.net/2011/05/27/joplin/feed/ 1 Take down in 10 days!!!! http://www.jpouch.net/2011/05/27/takedown-10-days/ http://www.jpouch.net/2011/05/27/takedown-10-days/#comments Fri, 27 May 2011 23:24:22 +0000 Jackie Z. http://www.jpouch.net/?p=2623 Hey ya’ll. There is a lot of update on so bear with me. As a lot of you know, I was traveling to Cleveland Clinic to have my surgeries, and used to rave about how wonderful they were. Well over the last year, they slowly became less than wonderful. (more details about this on my other blog). Long story short, for my last and hopefully final surgery, I am switching surgeons and clinics. I was so scared to change especially this far in, but I did my research, consulted my jpouch friends and found someone that isn’t willing to give me extra unnecessary surgeries (like Cleveland).

Soon to be "ex bag lady"

I want you urge you all to take control and be your own advocate. Just because our doctors are “in charge” of our medical cases, doesn’t mean they always know best. Get second opinions the whole duration of surgeries if you’d like, and if your surgeon stops working for you, find someone who will. Switching is scary, but I really think I’m making a great choice. I guess we’ll see. Which bring me to this….

10 DAYS!! This has been 15 months in the making! I have had complications, extra surgeries, stoma problems, blah balh balhla…but in 10 days, I shall be pooping out of my butt like the rest of the world!!

So to all my jpouch people: I’m trying to make a list of the essentials for post op. I know there is some butt cream or something, and depends pads? I have no clue. What are the “must haves” for after your butt is hooked up again?

Thanks to Mark and Megan for this site..it has helped me a lot through this journey…and I’m sure it will also through the next chapter.

-Jackie

bloodpooptears.wordpress.com

 

 

Most Commented Posts

]]> http://www.jpouch.net/2011/05/27/takedown-10-days/feed/ 35 Updates from Surgery #2/3 http://www.jpouch.net/2011/05/03/updates-surgery-23/ http://www.jpouch.net/2011/05/03/updates-surgery-23/#comments Tue, 03 May 2011 15:02:51 +0000 Jackie Z. http://www.jpouch.net/?p=2617 Hey all,
Its been about 6 weeks since my surgery…and this one…of course didn’t work out 100% awesome like I wanted it to. The surgery went ok, I got my pouch but he didn’t do a takedown. Also the stoma separated, and retracted, my vagina got tilted, I got depressed, and all sorts of other fun adventures.

I’ve done a lot of updating since then on my other blog, and I don’t want to clog up this blog space with all of that info. So…I’m alive. New surgery (and hopefully final) is June 7th.

I’ve been really anticipating this final surgery but not in a good way. I’m terrified of it. So far NOTHING has gone right, and I’m petrified that my jpouch will not work, or fail, explode or spontaneously combust or something. Luck is just something that isn’t on my side…so I’m going into this final step with nothing but doubt. Uplifting, eh?!

On the bright side I’ve lost almost 60 lbs from this time last year. No steroids after surgery and a lot of hard word can go far! I just started taking vitamins last week, but other than that, I’m not on any medication. NONE. So…thats a perk so far for the surgery!

 

I hope you are all well.

bloodpooptears.wordpress.com

Most Commented Posts

]]> http://www.jpouch.net/2011/05/03/updates-surgery-23/feed/ 2 8 Days from Surgery http://www.jpouch.net/2011/03/09/8-days-surgery/ http://www.jpouch.net/2011/03/09/8-days-surgery/#comments Wed, 09 Mar 2011 20:14:42 +0000 Jackie Z. http://www.jpouch.net/?p=2612 So I’ve got 8 days until we try to redo my step 2, which is now technically step 3 of 4….its complicated.

But in anticipation, I’ve created this facebook page. Enjoy.

 

Dr. Remzi Gave Me A New Butt



Most Commented Posts

]]> http://www.jpouch.net/2011/03/09/8-days-surgery/feed/ 1 I suck at being sick http://www.jpouch.net/2010/09/12/suck-sick/ http://www.jpouch.net/2010/09/12/suck-sick/#comments Sun, 12 Sep 2010 14:03:25 +0000 Jackie Z. http://www.jpouch.net/?p=2534 Omg you guys, I’m dying. Ok I’m not dying its a tad dramatic but I’m not recovery very gracefully. First of all, you should go read about my disaster of a surgery #2. Long story short….I didn’t get it, what I did get was the 6-8 weeks of recovery. Awesome. Also what i have gotten in the last day is CRAZY back pain, and also narcotics withdrawal. Yea.  So lets talk about that. I seriously felt like I was in the Basket Ball Diaries last night. Ok that was dramatic. But I was a mess of excessive burning up and freezing cold at the same time. How is that even possible. I had uncontrollable arm spasms, and crazy insomnia. Dude I even chugged some cough syrup to try to catch some Zzzs but it didn’t happen. Withdrawal trumps NyQuil?  I have been chowin down my pain pills like woa because this one has been super sucky in the pain department.  Normally as the pain subsides I taper my own pain pills, this time all of a sudden yesterday morning I work up and it just stopped. Like amazing. So like a moron, I didn’t think and just went on with my day….no pills. Jesus did I pay for it. Last night was easily one of the worse nights of my life…Has anyone else done this? Or am I the only sucky drug addict?

These posts might also help out:

]]> http://www.jpouch.net/2010/09/12/suck-sick/feed/ 24 Camp Oasis http://www.jpouch.net/2010/07/29/camp-oasis/ http://www.jpouch.net/2010/07/29/camp-oasis/#comments Thu, 29 Jul 2010 19:55:34 +0000 Jackie Z. http://www.jpouch.net/?p=2495 Hey everyone, Last week I got back from Camp Oasis, which is the amazing camp for 7-17 yr olds with IBD. I posted a blog entry about it here. I honestly urge you all to find the closest Camp Oasis location to you, and volunteer next summer. This camp is a really amazing place for kids, and for us…not to mention its FREE for all the kids. The kids and counselors all have IBD, and there Is a full time medical staff. Read more about it here CCFA: Camp Oasis.

Most Commented Posts

]]> http://www.jpouch.net/2010/07/29/camp-oasis/feed/ 0 Interesting Article About IBD and Women http://www.jpouch.net/2010/06/07/interesting-article-ibd-women/ http://www.jpouch.net/2010/06/07/interesting-article-ibd-women/#comments Mon, 07 Jun 2010 19:33:38 +0000 Jackie Z. http://www.jpouch.net/?p=2469

mmmm...meat.

While there are tons of ideas about where our diseases can and did come from, this was one I hadn’t heard before. I thought it was kind of interesting. I know that during my upbringing, I definitely fell into this group.

Meat, fish protein linked to women’s bowel disease

Most Commented Posts

]]> http://www.jpouch.net/2010/06/07/interesting-article-ibd-women/feed/ 1 MEGA Bag Review http://www.jpouch.net/2010/05/25/mega-bag-review/ http://www.jpouch.net/2010/05/25/mega-bag-review/#comments Tue, 25 May 2010 16:23:17 +0000 Jackie Z. http://www.jpouch.net/?p=2463 I just did a honkin’ bag review over at my blog  Blood, Poop, and Tears

For everyone out there who doesn’t have an ostomy (and even those who have a new one), I put in what I liked and didn’t like about the bags I tried. And I tried A LOT. There are so many different kinds, so I would give the entry a good read through, but I’m warning you..its REALLY long. However, there is a lot of good info in there. There are a few more other bags I have, that I did not review so feel free to send any questions on. Happy Bagging!

Most Commented Posts

]]> http://www.jpouch.net/2010/05/25/mega-bag-review/feed/ 0 New blog post about surgery…and being a fatty. http://www.jpouch.net/2010/05/09/blog-post-surgeryand-fatty/ http://www.jpouch.net/2010/05/09/blog-post-surgeryand-fatty/#comments Sun, 09 May 2010 16:14:03 +0000 Jackie Z. http://www.jpouch.net/?p=2430

Happy cows come from Michigan...and are named Jackie

I’ve made a new update on my blog, Blood Poop and Tears, about my second surgery out of three, and how I’m struggling to get healthy enough for it even to happen. Ugh. Being fat is stupid.

Here’s a preview.

“So guess who has set a date for surgery #2? Yea, its me. Shabam! I was so excited I almost crapped my bag.This is far more exciting than setting a wedding date…though faaar more terrifying. You think committing yourself to someone for the rest of your life is terrifying…try letting someone cut you open and mess with your poop chute.

So while this new surgery date is awesomely excitingly rad…its also SUPER depressing. The reality has set in that I’m wicked fat.”

Check out the rest, and I’m going to do another post here shortly with some poop bag reviews. I’ve tried a lot and have some good stuff to share. Thanks!


Most Commented Posts

]]> http://www.jpouch.net/2010/05/09/blog-post-surgeryand-fatty/feed/ 0 Home from Surgery #1 http://www.jpouch.net/2010/04/05/home-surgery-1/ http://www.jpouch.net/2010/04/05/home-surgery-1/#comments Mon, 05 Apr 2010 13:48:58 +0000 Jackie Z. http://www.jpouch.net/?p=2412 Hey All,

I’m FINALLY home! I had to get readmitted for pain control, you can check out the whole story at my other blog, www.bloodpooptears.wordpress.com. But I wanted to let you all know that I took some pictures, they are kinda graphic as usual. So if you want to check em out…here they are. Surgery # 1.

These posts might also help out:

]]> http://www.jpouch.net/2010/04/05/home-surgery-1/feed/ 1