J-pouch Life

Word is Joplin has zero ostomy supplies. I know that when I became an ostomate, I got TONS of free supplies from the big companies that are just sitting around. If you have supplies, please send them.   The President of the Joplin Missouri Ostomy Association reported their supplies were destroyed when St. John’s Hospital [...]

Hey ya’ll. There is a lot of update on so bear with me. As a lot of you know, I was traveling to Cleveland Clinic to have my surgeries, and used to rave about how wonderful they were. Well over the last year, they slowly became less than wonderful. (more details about this on my [...]

Hey all, Its been about 6 weeks since my surgery…and this one…of course didn’t work out 100% awesome like I wanted it to. The surgery went ok, I got my pouch but he didn’t do a takedown. Also the stoma separated, and retracted, my vagina got tilted, I got depressed, and all sorts of other [...]

So I’ve got 8 days until we try to redo my step 2, which is now technically step 3 of 4….its complicated. But in anticipation, I’ve created this facebook page. Enjoy.   Dr. Remzi Gave Me A New Butt

Omg you guys, I’m dying. Ok I’m not dying its a tad dramatic but I’m not recovery very gracefully. First of all, you should go read about my disaster of a surgery #2. Long story short….I didn’t get it, what I did get was the 6-8 weeks of recovery. Awesome. Also what i have gotten [...]

Hey everyone, Last week I got back from Camp Oasis, which is the amazing camp for 7-17 yr olds with IBD. I posted a blog entry about it here. I honestly urge you all to find the closest Camp Oasis location to you, and volunteer next summer. This camp is a really amazing place for [...]

While there are tons of ideas about where our diseases can and did come from, this was one I hadn’t heard before. I thought it was kind of interesting. I know that during my upbringing, I definitely fell into this group. Meat, fish protein linked to women’s bowel disease

I just did a honkin’ bag review over at my blog  Blood, Poop, and Tears For everyone out there who doesn’t have an ostomy (and even those who have a new one), I put in what I liked and didn’t like about the bags I tried. And I tried A LOT. There are so many [...]

I’ve made a new update on my blog, Blood Poop and Tears, about my second surgery out of three, and how I’m struggling to get healthy enough for it even to happen. Ugh. Being fat is stupid. Here’s a preview. “So guess who has set a date for surgery #2? Yea, its me. Shabam! I [...]