Comments on: About Jpouch dot net http://www.jpouch.net Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Fri, 12 Mar 2010 03:59:27 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Ashley http://www.jpouch.net/about-jpouch-dot-net/#comment-6406 Ashley Sun, 10 Jan 2010 02:54:38 +0000 http://www.jpouch.net/?page_id=1742#comment-6406 I am so glad to hear that I am not the only one with the weight gain issue!! I lost about 40 lbs or so after my colectomy but it all came back plus a bit! I think it has alot to do with not getting all the good nutrients ouut of the food like we used to. I also have trouble digesting most vegetables except green beans and carrots so I am sure that hasn't helped the weight loss either! I am so glad to hear that I am not the only one with the weight gain issue!! I lost about 40 lbs or so after my colectomy but it all came back plus a bit! I think it has alot to do with not getting all the good nutrients ouut of the food like we used to. I also have trouble digesting most vegetables except green beans and carrots so I am sure that hasn’t helped the weight loss either!

]]> By: Ashley http://www.jpouch.net/about-jpouch-dot-net/#comment-6405 Ashley Sun, 10 Jan 2010 02:47:36 +0000 http://www.jpouch.net/?page_id=1742#comment-6405 Hey, I too just found this site! I had my colectomy in 2006, and had the j-pouch connected 4 months after! I was diagnosed with F.A.P.. I was always a little worried about pregnancy after the j-pouch. We are now almost 8 weeks pregnant and going to see one of my specialist in a week and a half. Before I had my surgery thought the awesome specialist I had explained that if I was going to have kids that I should have them via c-section due to the amount of pressure that a regular delivery would cause on where the j-pouch was connected! I think that after the surgeries we went through for the colectomy a c-section can't be that bad! Besides it is for a great reason! Congrats and enjoy your pregnancy! Hey, I too just found this site! I had my colectomy in 2006, and had the j-pouch connected 4 months after! I was diagnosed with F.A.P.. I was always a little worried about pregnancy after the j-pouch. We are now almost 8 weeks pregnant and going to see one of my specialist in a week and a half. Before I had my surgery thought the awesome specialist I had explained that if I was going to have kids that I should have them via c-section due to the amount of pressure that a regular delivery would cause on where the j-pouch was connected! I think that after the surgeries we went through for the colectomy a c-section can’t be that bad! Besides it is for a great reason!
Congrats and enjoy your pregnancy!

]]> By: Shakena Lee http://www.jpouch.net/about-jpouch-dot-net/#comment-6345 Shakena Lee Tue, 29 Dec 2009 01:46:34 +0000 http://www.jpouch.net/?page_id=1742#comment-6345 I just got out the hospital two weeks ago I had pouchitis. It was very painful! My symptoms included nausea, vomitting, stomach pains, and fever. My pouch was so imflammed it was pushing up against my kidneys, and Im dealing with issues with that. I also received two pints of blood! I just got out the hospital two weeks ago I had pouchitis. It was very painful! My symptoms included nausea, vomitting, stomach pains, and fever. My pouch was so imflammed it was pushing up against my kidneys, and Im dealing with issues with that. I also received two pints of blood!

]]> By: Shakena Lee http://www.jpouch.net/about-jpouch-dot-net/#comment-6344 Shakena Lee Tue, 29 Dec 2009 01:41:35 +0000 http://www.jpouch.net/?page_id=1742#comment-6344 I am so happy to hear that because I have really been concerned with conception! Congrats to you! I am so happy to hear that because I have really been concerned with conception! Congrats to you!

]]> By: Jackie http://www.jpouch.net/about-jpouch-dot-net/#comment-6316 Jackie Sat, 26 Dec 2009 13:35:39 +0000 http://www.jpouch.net/?page_id=1742#comment-6316 Hi, I'm new to this site, and have only logged on for the past 4 min, but so far looks great (wish i'd found it sooner!) For Bonnie, I had my colectomy in Nov. 2007 (3 months after I was married I was diagnosed with colon cancer) and take down in Sept. 2008. I'm 28 years old and my husband and I really wanted to start a family. We started trying in April 2009 and by August 2009 we conceived. It is possible - and for us it was pretty quick :) So don't let any of the negativity online get you down!!!! We are very excited for our first baby and now I'm looking for information on birthing options (which seem to differ for women with a J-Pouch)... anyway good luck!:) Hi, I’m new to this site, and have only logged on for the past 4 min, but so far looks great (wish i’d found it sooner!)
For Bonnie, I had my colectomy in Nov. 2007 (3 months after I was married I was diagnosed with colon cancer) and take down in Sept. 2008. I’m 28 years old and my husband and I really wanted to start a family. We started trying in April 2009 and by August 2009 we conceived. It is possible – and for us it was pretty quick :) So don’t let any of the negativity online get you down!!!! We are very excited for our first baby and now I’m looking for information on birthing options (which seem to differ for women with a J-Pouch)… anyway good luck!:)

]]> By: BabyRN http://www.jpouch.net/about-jpouch-dot-net/#comment-5805 BabyRN Fri, 20 Nov 2009 12:49:03 +0000 http://www.jpouch.net/?page_id=1742#comment-5805 I have the same problem with weight gain after take down and I can't seem to lose it. I had a terrible flare postpartum which required surgery so I had the baby weight, but now I have extra weight on top of that. I'm glad I'm not the only one. I have the same problem with weight gain after take down and I can’t seem to lose it. I had a terrible flare postpartum which required surgery so I had the baby weight, but now I have extra weight on top of that. I’m glad I’m not the only one.

]]> By: gary http://www.jpouch.net/about-jpouch-dot-net/#comment-5769 gary Tue, 17 Nov 2009 14:49:18 +0000 http://www.jpouch.net/?page_id=1742#comment-5769 i am going to have my colon removed on dec. 7 th. will have a j pouch for about 8 weeks and then go back in for the takedown surgery . i have had ulcerative colitis for over 30 years , i am now 50 years old. im pretty stessed out about it all , not knowing what to expect , but this website has already provided me valuable info . thanks i am going to have my colon removed on dec. 7 th. will have a j pouch for about 8 weeks and then go back in for the takedown surgery . i have had ulcerative colitis for over 30 years , i am now 50 years old. im pretty stessed out about it all , not knowing what to expect , but this website has already provided me valuable info . thanks

]]> By: sarah http://www.jpouch.net/about-jpouch-dot-net/#comment-5666 sarah Tue, 10 Nov 2009 17:07:27 +0000 http://www.jpouch.net/?page_id=1742#comment-5666 Hi Mark & Megan, Thank you for this great site - I am a nursing student and I'm preparing for my first surgical rotation. Your story was very helpful in helping me understand how a patient would feel about their condition. Glad to hear all went well and you had a good hospital experience. Thanks again. Hi Mark & Megan,

Thank you for this great site – I am a nursing student and I’m preparing for my first surgical rotation. Your story was very helpful in helping me understand how a patient would feel about their condition. Glad to hear all went well and you had a good hospital experience. Thanks again.

]]> By: Shakena Lee http://www.jpouch.net/about-jpouch-dot-net/#comment-5635 Shakena Lee Wed, 28 Oct 2009 02:07:05 +0000 http://www.jpouch.net/?page_id=1742#comment-5635 Hi, I am glad to hear that you are doing well. I too had the problem with the irritation. It was very bad for me. Because your bowels are more liquid than solid, it's going to happen. My home health nurse gave me a type of powder to put on it to keep it dry. I don't remember the name, but I will try to look for it. Also, I wanted to ask, how ofter are you changing your bag? Hi, I am glad to hear that you are doing well. I too had the problem with the irritation. It was very bad for me. Because your bowels are more liquid than solid, it’s going to happen. My home health nurse gave me a type of powder to put on it to keep it dry. I don’t remember the name, but I will try to look for it. Also, I wanted to ask, how ofter are you changing your bag?

]]> By: Becky http://www.jpouch.net/about-jpouch-dot-net/#comment-5571 Becky Tue, 13 Oct 2009 00:32:13 +0000 http://www.jpouch.net/?page_id=1742#comment-5571 I found this website just before my j-pouch surgery just 2 weeks ago. I spent one week in the hospital, and have been home for one week now. I have an ileostomy bag right now, and will have my takedown surgery either the first or second week of December. It has been so wonderful to know there are other people out there going through the same things as me, and that there is a forum for discussion and support that is safe from ridicule. :) Colitis can be a very embarrassing disease, and I'm still not super comfortable discussing it with strangers, but knowing that I'm talking to other people living with UC makes it easier. Also, it has given me alot of hope to read the stories on this site. I feel much more fortunate knowing my health is essentially fine besides my UC because there are so many others dealing with being very sick all the time. I'm still dealing with about the same level of fatigue as before my surgery, and more in some ways, but I feel myself improving, which gives me great hope. I used to run track, but haven't been able to run in almost 7 years. I look forward to being able to do so again soon. I do have a question that I hope many people will answer. The skin around my stoma is pretty irritated, and I believe that it's because I can't get a good seal with my bag right around the opening. And now that my skin is irritated, it's harder to get that seal, and so output is able to get under the edge of the bag... which further irritates my skin. It's kind of a vicious cycle now, and I was wondering if there was anyone who had gone through the same thing, and knew how to help it heal. The seal is getting really gummy around my stoma, as well. Any suggestions?? In any case, thank you to all the people putting their stories and pictures up. Seeing a stoma before my surgery calmed a lot of my nerves and helped me mentally prepare for the whole experience. God bless you all. -Beck I found this website just before my j-pouch surgery just 2 weeks ago. I spent one week in the hospital, and have been home for one week now. I have an ileostomy bag right now, and will have my takedown surgery either the first or second week of December. It has been so wonderful to know there are other people out there going through the same things as me, and that there is a forum for discussion and support that is safe from ridicule. :)
Colitis can be a very embarrassing disease, and I’m still not super comfortable discussing it with strangers, but knowing that I’m talking to other people living with UC makes it easier.
Also, it has given me alot of hope to read the stories on this site. I feel much more fortunate knowing my health is essentially fine besides my UC because there are so many others dealing with being very sick all the time. I’m still dealing with about the same level of fatigue as before my surgery, and more in some ways, but I feel myself improving, which gives me great hope. I used to run track, but haven’t been able to run in almost 7 years. I look forward to being able to do so again soon.

I do have a question that I hope many people will answer. The skin around my stoma is pretty irritated, and I believe that it’s because I can’t get a good seal with my bag right around the opening. And now that my skin is irritated, it’s harder to get that seal, and so output is able to get under the edge of the bag… which further irritates my skin. It’s kind of a vicious cycle now, and I was wondering if there was anyone who had gone through the same thing, and knew how to help it heal. The seal is getting really gummy around my stoma, as well. Any suggestions??

In any case, thank you to all the people putting their stories and pictures up. Seeing a stoma before my surgery calmed a lot of my nerves and helped me mentally prepare for the whole experience. God bless you all.
-Beck

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