University Research on Jpouch Social Support Sites

by on Wednesday, March 3, 2010 9:27
This entry is filed under: Coping/Support

Hi Everyone,

Please take about 10 minutes and take this survey designed by professors at the University of Georgia.  In my non-jpouch blogging life, I am an Assistant Professor at University of Georgia and I’m conducting research on the implications of social networking support sites ( and focused on the experiences of those preparing for or who have had jpouch related surgery (including the stages of temp ileo, or permanent ileo’s).  I am working with a team of Ph.D.’s from Social Work and Health Communications on this study.

Click to access survey link here:   Social Support Survey for Jpouchers and Ostomates

My motivation behind this research survey: From my personal experience with Mark and in the early days of using, and then our development of the photo blog here at, I began to realize these support sites are CRUCIAL to the coping and support through this journey.  See, back when Mark was preparing for surgery his ostomy nurse told him not to use online social supports because they were negative and people only went to them to complain.  We obviously disagreed with her and since that day I have wanted to use my Ph.D. and research skills to show the medical field the importance of social network sites for jpouch related needs.   I really want to help the medical field understand how important these sites are to healthy healing so that they will support them optimally.

Thank you so much for your time!


Megan Lee, Ph.D. (also know as Mark & Megan)

Kimberly Clay, Ph.D.

Jeong Yeob Han, Ph.D.

Margerite Fenwood, M.S. Student

These posts might also help out:

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10 Responses to “University Research on Jpouch Social Support Sites”

  1. avatar

    Melissa says:

    March 3rd, 2010 at 11:13 am


    I took the survey, but I messed up. When it asked how often I visited, I answered for instead of both AND I frequent most of the time, whereas I’m not on a lot. I was thinking maybe there was another question later addressing separately. Is there a way to either retake the survey or edit my responses? I don’t want to mess up the accuracy of your survey results.


  2. avatar

    Marguerite Fenwood says:

    March 3rd, 2010 at 3:19 pm

    Hello Melissa,
    Thank you for your comment and your response to the survey! As it stands, you have completed the survey correctly because the questions were only asking about and not However, you bring up a good point and I have decided to add a question about the use of other networking and social support sites like So, if you would like to take the survey again it’s up to you. Thank you very much for your input



  3. avatar

    Brevin says:

    March 5th, 2010 at 6:59 pm

    Well that was fun! I expect my reward and/or prize in the mail.


  4. avatar

    Jackie Z. says:

    March 6th, 2010 at 7:06 am

    Megan, Will you post the results of this survey? I’d be really interested to see what the outcomes were. Thanks!



    Megan Reply:

    Jackie, Yes of course we plan to share the results with jpouchers and the medical community as well.


  5. avatar

    Colin says:

    March 6th, 2010 at 1:03 pm

    Took the survey, Megan. It’s the least I could do for what you and Mark have done to help out this community.


  6. avatar

    J-Pouch Social Support Survey « The Ulcerative Colitis Vlog says:

    March 8th, 2010 at 5:52 am

    […] You can find more information about the research and how to take the survey here. […]

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