Comments on: A little insight on my insides. http://www.jpouch.net/2010/02/08/2335/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Wed, 28 Jul 2010 00:21:02 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Laminda http://www.jpouch.net/2010/02/08/2335/#comment-6836 Laminda Wed, 03 Mar 2010 16:18:17 +0000 http://www.jpouch.net/?p=2335#comment-6836 The reason I went to the Cleveland Clinic is because of the surgeons there. Even though I didn't like Dr. Remzi's attitude, when I have this surgery, it will definitely be Dr. Remzi that does it. As long as he is the best, I can deal with the attitude...:) So when did you have your first surgery? What kind of prep did you have to do before it? How did you feel afterward? What kind of horrible things can I expect? The reason I went to the Cleveland Clinic is because of the surgeons there. Even though I didn’t like Dr. Remzi’s attitude, when I have this surgery, it will definitely be Dr. Remzi that does it. As long as he is the best, I can deal with the attitude…:)

So when did you have your first surgery? What kind of prep did you have to do before it? How did you feel afterward? What kind of horrible things can I expect?

]]> By: Jackie Z. http://www.jpouch.net/2010/02/08/2335/#comment-6833 Jackie Z. Wed, 03 Mar 2010 13:47:46 +0000 http://www.jpouch.net/?p=2335#comment-6833 Laminda, I would love to talk to you more about Dr. Remzi and all this jazz. Shoot me an email and we'll chat! jackiezimmerman [at] gmail [dot] com. Laminda,
I would love to talk to you more about Dr. Remzi and all this jazz. Shoot me an email and we’ll chat! jackiezimmerman [at] gmail [dot] com.

]]> By: Colin http://www.jpouch.net/2010/02/08/2335/#comment-6831 Colin Wed, 03 Mar 2010 06:20:48 +0000 http://www.jpouch.net/?p=2335#comment-6831 Laminda, I had the JPouch surgery performed by Dr. Remzi at the Clinic in November. I'm currently awaiting surgery #2 of 3 and while I agree Dr. Remzi isn't the most warm and fuzzy of doctors, he's actually a very nice man once you get to know him. He cares about about his patients and there is no one...*no one* in the world who can say they're flat-out better than Dr. Remzi at performing this procedure. My cousin was a Gastrointerologist at both the Mayo Clinic and the Cleveland Clinic (the two best in the country at JPouch procedures) and she told me that, were she in need of this procedure, she'd want Dr. Remzi doing it. Laminda, I had the JPouch surgery performed by Dr. Remzi at the Clinic in November. I’m currently awaiting surgery #2 of 3 and while I agree Dr. Remzi isn’t the most warm and fuzzy of doctors, he’s actually a very nice man once you get to know him. He cares about about his patients and there is no one…*no one* in the world who can say they’re flat-out better than Dr. Remzi at performing this procedure. My cousin was a Gastrointerologist at both the Mayo Clinic and the Cleveland Clinic (the two best in the country at JPouch procedures) and she told me that, were she in need of this procedure, she’d want Dr. Remzi doing it.

]]> By: Laminda http://www.jpouch.net/2010/02/08/2335/#comment-6829 Laminda Wed, 03 Mar 2010 04:42:07 +0000 http://www.jpouch.net/?p=2335#comment-6829 Hi, Jackie, my name is Laminda. I am 31 and am from Michigan I was diagnosed with UC in 2000. In November '09, I had a colonoscopy which showed a polpy that was precancerous. I was refered to Cleveland Clinic where I saw Dr. Bo Shen (who is awesome). He did another colonoscopy which came back "indefinite for dysplasia" as did the ones I had from Michigan. Anyway, we just got back today for Cleveland. We went to talk to the surgeon, Dr. Remzi. I wasn't impressed with his "bedside" manner, but I have been told that he is the best in the world. I am trying to wrap my head around this notion of having my colon removed and having to have a bag. If I could do it without the bag, I wouldn't have such a problem. Anyway, I was just wondering if you would like to talk sometime with someone that is going through what you are (well kind of, we are all going through something a little different but with similarities). Either way, good luck with everything you will be facing. I know that it is terrifying. Hi, Jackie, my name is Laminda. I am 31 and am from Michigan I was diagnosed with UC in 2000. In November ’09, I had a colonoscopy which showed a polpy that was precancerous. I was refered to Cleveland Clinic where I saw Dr. Bo Shen (who is awesome). He did another colonoscopy which came back “indefinite for dysplasia” as did the ones I had from Michigan. Anyway, we just got back today for Cleveland. We went to talk to the surgeon, Dr. Remzi. I wasn’t impressed with his “bedside” manner, but I have been told that he is the best in the world. I am trying to wrap my head around this notion of having my colon removed and having to have a bag. If I could do it without the bag, I wouldn’t have such a problem. Anyway, I was just wondering if you would like to talk sometime with someone that is going through what you are (well kind of, we are all going through something a little different but with similarities). Either way, good luck with everything you will be facing. I know that it is terrifying.

]]> By: Melissa http://www.jpouch.net/2010/02/08/2335/#comment-6633 Melissa Wed, 10 Feb 2010 21:35:00 +0000 http://www.jpouch.net/?p=2335#comment-6633 Wow, Jackie. You've been dealt a rough hand. You will feel so much better once you get rid of that diseased colon! Best of luck to you! I'm from Michigan too - I went through Royal Oak Beaumont, and I've had two of three steps done. Now I'm awaiting takedown. I don't miss my colon one bit! lol Wow, Jackie. You’ve been dealt a rough hand. You will feel so much better once you get rid of that diseased colon! Best of luck to you! I’m from Michigan too – I went through Royal Oak Beaumont, and I’ve had two of three steps done. Now I’m awaiting takedown. I don’t miss my colon one bit! lol

]]> By: Jackie Z. http://www.jpouch.net/2010/02/08/2335/#comment-6629 Jackie Z. Wed, 10 Feb 2010 13:31:37 +0000 http://www.jpouch.net/?p=2335#comment-6629 I think you're possibly more excited for me to have this surgery than anyone else just so I stop IMing you with "so I have another question".... thanks for all your help! Its too bad we wont cross hospital paths. At least not yet. I think you’re possibly more excited for me to have this surgery than anyone else just so I stop IMing you with “so I have another question”…. thanks for all your help! Its too bad we wont cross hospital paths. At least not yet.

]]> By: Colin http://www.jpouch.net/2010/02/08/2335/#comment-6627 Colin Wed, 10 Feb 2010 09:03:11 +0000 http://www.jpouch.net/?p=2335#comment-6627 I know I've told you this a bajillion times, but you picked the best in Dr. Remzi and the nurses at the CC. You can at least put *those* worries out of mind. I know I’ve told you this a bajillion times, but you picked the best in Dr. Remzi and the nurses at the CC. You can at least put *those* worries out of mind.

]]> By: lizz http://www.jpouch.net/2010/02/08/2335/#comment-6620 lizz Tue, 09 Feb 2010 17:59:25 +0000 http://www.jpouch.net/?p=2335#comment-6620 Wow, girl. You have really been through it, but you seem like a super tough cookie! I would hesitate to say that any doctor at the Cleveland Clinic is an idiot! You are in expert hands, and it doesn't sound like you have a ton of other options medically. You don't want to stay on Prednisone for many reasons. Humira has been my savior, but since you can't take biologics, that's certainly out. I had a three step too. If you need a venting pen-pal let me know! Wow, girl. You have really been through it, but you seem like a super tough cookie! I would hesitate to say that any doctor at the Cleveland Clinic is an idiot! You are in expert hands, and it doesn’t sound like you have a ton of other options medically. You don’t want to stay on Prednisone for many reasons. Humira has been my savior, but since you can’t take biologics, that’s certainly out. I had a three step too. If you need a venting pen-pal let me know!

]]> By: Jackie Z. http://www.jpouch.net/2010/02/08/2335/#comment-6618 Jackie Z. Tue, 09 Feb 2010 13:22:31 +0000 http://www.jpouch.net/?p=2335#comment-6618 Yea I guess you could call me the lucky one. Whats really fun about it all, is that I'm the only one in both sides of my extended family with either disease. No one else has anything even close. Yea I guess you could call me the lucky one. Whats really fun about it all, is that I’m the only one in both sides of my extended family with either disease. No one else has anything even close.

]]> By: Mark http://www.jpouch.net/2010/02/08/2335/#comment-6612 Mark Mon, 08 Feb 2010 23:49:47 +0000 http://www.jpouch.net/?p=2335#comment-6612 Hey Jackie, You know it is unlucky for you to have both UC and MS, those are two handfuls. Your immune system must be a fighter not a lover. I had UC and my older sister has MS and our doctors have loosely said it is genetic in our family to have auto-immune diseases, however, what doesn't add up is that we don't have rates of the big auto-immune diseases like cancer....so not sure my talking helps, just I thought it was strange you've got both when it is the same as my sister and me. Hey Jackie, You know it is unlucky for you to have both UC and MS, those are two handfuls. Your immune system must be a fighter not a lover. I had UC and my older sister has MS and our doctors have loosely said it is genetic in our family to have auto-immune diseases, however, what doesn’t add up is that we don’t have rates of the big auto-immune diseases like cancer….so not sure my talking helps, just I thought it was strange you’ve got both when it is the same as my sister and me.

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