Boots’ 1-Year Updateby booties4986 on Tuesday, November 24, 2009 18:47
So my one-year anniversary of my first surgery is about 2 weeks away (December 10th), and I thought I would update everyone. I’m sorry, I haven’t been on this site in a few months, because I now have a 2nd job at a hospital and am very, very busy. I want to start and say that if anyone would like to contact me to talk about how I’m doing and how I handle things, feel free to e-mail me at Booties4986@aol.com.
Everything’s been pretty much back to normal for me, though after all that I suppose I can’t estimate what normal is. All I can say is that I feel amazing, I have no pain, and I feel like the year 2008 was a shadowy part of my life that is now over and I can continue doing whatever I wanted to do before anything happened.
For a little bit in May 2009, I came down with a virus or flu and it caused me to start going to the bathroom more frequently, up to 12 times a day. My doctor prescribed prescription immodium and also Lomotil. Those helped me out alot and I am on the Lomotil til this day. I take about 4-8 pills a day, depending on when I remember it and whether I think I’ll need it. I’ve learned to recognize the pattern of my bowel functions. Since I have the IRA, my digestive tract is much faster than normal people. For instance, it can be as short as 2 hours. This can work out to my advantage, when I know I have something to do on a day, I can plan when I want to eat, so I will be clear and not need to use the bathoom. I also no longer have the urgency I did before and that is a major relief.
I also try to take a fiber supplement once a day, but most of the time I skip out on it because of work schedules. Thankfully it doesn’t make a huge difference for me. I go to the bathroom about an average of 5 times a day. This is on a non-restricted diet. I actually eat whatever I want, and nothing has seemed to bother me. I eat vegetables, sometimes raw vegetables, and I’ve experimented with nut and seeds. They don’t bother me, but they don’t totally digest either, and I feel like I’m just better off being without them.
The one thing about my life right now I wish I could change is the fact that I don’t get to sleep a night through. I notice it on the that I work at both my jobs, because I get more tired. Since I get up about 2 times a night, I never really get to enter the REM cycle of sleep, which is the restorative part of sleep. So therefore, it’s like I start to enter the deep part of sleep, but then get up to go to the bathroom and it really becomes a series of long naps. But I have to say that is a small price to pay for the health I can live with now.
As far as relationships go, I’ve had quite a few attempts since my partner left me right after my first surgery, but none had been successful. I feel it was a mixture of my being nervous about how they would feel about my disease, and also my needing the independence I feel like I lost while I was sick. I have hope that one day something will work out and I will stick around and keep attempting relationships until I can find one.
I had a very fulfilling summer with my friends this year and I have done a lot of stuff since being healthy. It had finally allowed me to get a full-time job and get on with my life. I’m currently looking into graduate schools again (I applied to 10 right before I got sick and had to withdraw my applications when I was diagnosed). I now have the opportunity to achieve what I want, and know that at 23 years old, I can say I survived the disease and that it’s part of my past. I never take for granted the health I have and it will always be on my mind, and something I will never again ignore.