Comments on: 6 Months Later: Jaypouchirifical

By: mindy

mindy — Wed, 17 Feb 2010 15:05:52 +0000

I would like to hear about your feelings on your permanent illeostomy, I have surgery next week to remove my rectum and live w the illeostomy permanently. Please give me any info. or feelings you have had about this life changing experience.

By: Elise

Elise — Sun, 20 Dec 2009 00:24:53 +0000

Weren’t we facebook friends Megan?? I can’t remember. Request me if you are on facebook elisesunshine@yahoo.com

By: Elise

Elise — Sun, 20 Dec 2009 00:22:46 +0000

Hey Megan, Yep I have a permanent ileostomy, and I am totally fine with it – I am doing great I am so happy for you and Mark too, isn’t life amazing ??

By: Megan

Megan — Sat, 19 Dec 2009 16:35:12 +0000

Hi Elise, CONGRATS on the new position with ConvaTec, that is a great thing to hear for you! Now, what has been decided in your situation? I remember last update I heard from you was that you had CD and not UC and that you may have a perm ileo? Is that the final decision?

By: Elise

Elise — Thu, 17 Dec 2009 05:31:48 +0000

Brevin has pestered me for the pictures that I took I have no idea how to get them on here, so I will upload them and send them to Brevin over the weekend. I finally met Brevin in person at the Crohn’s and Colitis Foundation’s inspirational pasta dinner the night before the half-marathon in Las Vegas. The pasta dinner was sponsored by ConvaTec (makers of the very best ostomy products and the innovative moldable technology)!! Update to all: I have been interviewing with ConvaTec and after 2 1/2 months of interviews I was offered the Territory Manager position for their ostomy division here in Virginia and part of North Carolina!!!! I am so so excited that I get to do this I am a ConvaTec rep!! woo hoo!

By: Megan

Megan — Thu, 17 Dec 2009 01:29:07 +0000

Elise and Brevin, you guys will need to post some photos for us to see and celebrate your awesomeness.

By: Elise

Elise — Thu, 17 Dec 2009 01:20:05 +0000

Brevin, I still can’t believe we did a HALF-MARATHON! It was so much fun to see you – we are awesome

By: Brevin

Brevin — Wed, 02 Dec 2009 20:11:24 +0000

My doc said cardio was ok in small doses, but avoid the inclines. To be honest, my legs were spaghetti after the surgeries so getting them used to the mileage was the biggest obstacle (I didn’t have to break a sweat for my legs to get sore). But you build up endurance over time.
Here’s the best tip I’ve gotten so far, ha: right after training, drink chocolate milk. It’s delicious and happens to have the right nutrients for a recovery drink. During training it’s water and blue Powerade, and I recently discovered “Sport Beans”, but that’s more as a pick-up for the distance.
Hope this helps!

By: Paul

Paul — Wed, 02 Dec 2009 19:57:12 +0000

Thanks for the heads up Brevin, i guess it is just starting out with very little weight and building it up slowly and just listening to your body. What about cardio training? Was that much of a problem or is it a similar case of building up slowly? One other thing i wanted to ask is if anyone has any experience with sports drinks and the like for during and after training. Paul

By: Brevin

Brevin — Wed, 02 Dec 2009 19:37:14 +0000

Hi Paul.
Once they described to me what a hernia was, I avoided everything with the core for 6 weeks. During those 6 weeks I started slowly with exercises that incorporate no weight, may reps. For example, I did a buttload of shoulder rolls with no weight, then transitioned to curling with 10lb dumbbells and then increased weight. As soon as I felt the pull on my core, I stopped. I think I was overly cautious. On the 7 week mark I started with little baby crunches (2 sets of 10) and slowly worked my way up. I can now do two sets of 150, and although it feels tight at first, I know I’m capable of it.
The best part is that you can feel when you have to stop.