J-pouch Life

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by Mark on Saturday, October 24, 2009 16:37

This entry is filed under: Coping/Support

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This should be saved as an FAQ: Fantastic post Mark!...

Physically your body with feel stronger than the first surgery and you'll feel good. You'll be very anxious for your "bowels to w...

Less than 24 hours until take down. Be honest with me. What can I expect. Pain, Poop, stay in hospital. ANY and ALL info would be ...

Hey Jackie, You know it is unlucky for you to have both UC and MS, those are two handfuls. Your immune system must be a fighter ...

Yeah but Pity Party cake cake tastes horrible, so you're welcome!...

Hi Jackie, Wow...that is a lot to deal with. UC is one thing but adding MS to the mix changes everything. Surgery will help you l...

Hi Dan, Yes, my first two or so weeks after takedown felt like I had UC again - here is my takdown photo journal http://www.jpouc...

Hannah: I had fluid collection around the pouch after step 1 which was causing similar symptoms to pouchitis. I was on a course ...

Hi everybody, I had the first surgery in October. Pretty much ever since surgery, I've had problems with my J pouch spasming and c...

Hello everyone. It's been 2 weeks since my combined 2nd and 3rd surgery and I'm now home recuperating. My problem is that I feel...

AAAAaaaarrghhh where's the stork?!...

Okay, Brevin - since we've all gotten personal on this site bowels so Mark and I will guide you about where babies come from. How...

I was going to ask where babies come from, but this news it too awesome!!...

It's official. 1pm Tuesday 2/9 at St. Lukes! Just got the call. Take Down here I come!!!!...

Now that is a tattoo that will get some attention. Love it! Has to be the best I have seen so farm haha! Keep the good spirits gir...

Yay!! Congrats, you three!:)...

M&M: Big time congrats! And yes, sometimes humor (especially colon humor) is lost to the rest of the world! I say, embrace ...

So, so happy for you guys. Nothing like a baby. NOTHING like a first baby. NOTHING LIKE BUYING PINK!!!!...

Megan - I'm scheduled to see a surgeon next monday and I guess I'll go from there. I've been making a notebook since getting out ...

That's crazy awesome guys! Congrats!...

that is all very helpful info! i will for sure check out that website. im glad to hear that things are on trak with you. it really...

Michael, Sounds like you are right at the impass of surgery where all meds have failed but pred. and we all know that isn't the s...

Thanks Megan. I've run the gamut of treatment options and remicade has failed. Steroids are the only thing that work and, well, ...

HI Michael, sorry to hear you've been so sick. Once you've exhausted all your medical options is the best time to talk about surg...

I just got home from the hospital today. I was in for 2 days getting treatment for C diff, UC flare, and severe dehydration. I'm...

I should post pics of the Half-Marathon we did in Vegas this past December. Team Challenge is the CCFA running/walking group that ...

see below reply, meant to put it here but messed up....

Have you also read Brevin's story - he has tracked his whole UC surgery with Dr. Varma online and you can see after his takedown h...

yes, Dr. Varma is my surgeon. she is wonderful. she was my mothers surgeon as well. that is al great advice. it does feel better ...

Hi Kim, We have a lot of people on the site with FAP getting this surgery too - you guys seem to heal very quickly often b/c you ...

hi mark. my name is kim. i have a similiar suituation but instead of having UC i have FAP. im am getting ready to have my first ta...

Hi, I am 5 weeks post take-down surgery and am doing pretty well..it is great not to have pain all the time. I went back full time...

The self image thing is really hard to get over. I was able to resume intimacies after not being in pain. It gets easier on the ...

hi casey! i just want to point out that you have any amazingand touching story. my name is kim and iam from the small town of Oakd...

Cindy - I had the permanent ileostomy surgery in Oct. '09. I went in for the jpouch, but am very very happy with what I have. Wit...

Medwish International will take your unused supplies, they also are collecting donations for Haiti. But they also give supplies to...

I just would say that I have gotten the hang of it but it might be that I was babied a bit. I had a home nurse that came twice a w...

Surgery date secured for FEB 9th! I could not be happier to have an upcoming surgery!!!...

Lizz, I was a volunteer for years and ended up with a paying job with them back in AZ. I loved that job! I would go back in a hear...

That's great to see you doing so well, Lizz! I'm still knee (and bag) deep in the surgical process, but I hope that I can someday ...

Hi Bonnie, I just read your comment, and your granddaughter seems to have very similar symptoms as I did when I was sick with U...

Glad to hear she did well with the first surgery, and sorry to hear about the skin around the stoma. Unfortunately that is common,...

Hi Mark, awhile ago I emailed you concerning my 8 yr old granddaughter. She just turned nine, had the surgery and on Feb 12 gets t...

ML: Once I felt healthy and no longer having pain (about 2 months), I had the drive. My wife was highly supportive, but it was s...

I am in my second week recovering from Step #1. Thank you community! I had to return to the ER twice because I did not respond to...

I just wanted to ask if anyone out there was feeling or had felt strange about intimate relations while living with their ileostom...

It's nice 2 have sum where 2 rite bout UC. I had UC wen I was 9, n had my 1st operation wen I was 16, n my 2nd wen I was 17. It w...

i am 11 and just got diagnosed with uc. i am on alot of medication and hopefully wont have to get a j pouch. all those stories ar...

Lisa, I utilized the Nystatin powder as well and it was a god send. I would use it during each change to keep any growth or irrit...

Hello. This is kind of an "unconventional" question , but have other visitors asked you how get the menu bar to look like you've g...

FOW-USA will accept supplies and send them on to medical professionals around the world to give to people who cannot afford their ...

Hi there, My ostomy nurse was very happy to receive my unused supplies once I had takedown. Try that?...

Liz, I had noticed the seasonal reoccurance of my UC flares. I haven't seem any medical studies that track seasons to a UC flare ...

Hello Everyone, I wanted to know if anyone has donated their unused ostomy supplies? IS there a forum that talks about ostomy sup...

Colin, I had 3 blockages while I had my stoma. Here is my experience and what I learned. At first, I thought it was the food I ...

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