Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

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by Megan on Saturday, October 24, 2009 21:20

This entry is filed under: Coping/Support

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“You’re Fired.” 9 Comments Since Monday, March 15, 2010, 13:01
University Research on Jpouch Social Support Sites 7 Comments Since Wednesday, March 3, 2010, 9:27
Commenter with Questions 7 Comments Since Thursday, February 25, 2010, 12:28
Blood, Poop, and Tears 2 Comments Since Friday, February 19, 2010, 17:40
I’m so over this colon. 12 Comments Since Monday, February 15, 2010, 13:42

Haha I know, I left out quite a bit... but I gave enough to have a lot of things in common with quite a few people on here. Thank...

Hello. I tried going 4 disability, but as I can walk more than 50yards they said I wasn't disablied. I'm now on ESA, cause my doc...

You ever thought about getting rid of the J-Pouch? I'm constantly fighting pouchitis and thought about getting rid of the jpouch....

Dear Mark, I had very similar surgery's done in 1996. I can sure relate to most of your story. Getting used to the temporary colos...

This thread is turning into another post in itself, but I'm now starting to consider disability very seriously. I mean, I've had 5...

Brevin-that would be sweet, but I always lose those cards ;) I think the surgeon I'm seeing is good? He has a good education and ...

Hmmm...the universe thinks you need more surgery for some odd reason?! Have you found a good P-town surgeon? I know some jpouch.o...

Your story of triumph, strength, and will power are why you're of my favorite inspirations. Keep on Rock'n that determination I ...

Nooo! On the plus side, maybe getting multiple surgeries is like getting multiple sandwiches! Every time you get one, they stamp...

Well...shit. This keeps getting better. My barium study showed narrowing of my intestines and I have an appointment with a surgeon...

*giggle* I can't wait for the day that this shows up in a romantic comedy....

Dear Lizz. Hi. Hey. 'Sup. Now I know they really let you go because of all the office supplies you stole, and I think you should...

Hi Lizz, You write so well about how it is a bittersweet moment this is for you and I appreciate what you mean. I was talking wit...

hey michael, thanks for sharing your story with everyone. it's funny how all our stories have so many parts that are so familiar...

Hi all, I suffered from UC for about four years. I was diagnosed at 16 and am now 19... so I suffered enough, I know many of you ...

I'm afraid that the Pit bull needs a particular type of owner...these pet dogs, no matter how 'adoring' nevertheless have teeth, a...

What kind of adhesive paste are you using? Also, there is a bag that goes with a belt which won't guarantee anything but it help...

The most embarassing thign tht had ever happened to me with the illestomy was when my boy friend was over and although he knew aob...

Hey guys! I am 6 weeks post surgery #1 and suppose to get back to work tomorrow. But all the sudden this weekend my bags won't sti...

Hi i just came across this website and found your story, i find it very inspiring and has put my mind at rest. Im 17 and had UC wh...

Hello ML, I see you had your surgery 1 week after my take down surgery. I am presently having 12-15 BMs per day. I also have a ...

Sorry, sounds not fun. I had a couple temp ileo bag issues, but I just dealt with them and waited till jpouch. Yours just sounds...

Fantastic attitude & you're funny as hell! I've still got a semi-colon (which is good because I teach English), so maybe my o...

Rachel, I use Depends and they help keep the bedding clean. I wear underpants over them to make me feel more normal in front o...

Michael, these folks nailed it right on. Travel light...the rooms aren't that big in any hospital. I brought my Blackberry inste...

Colin, that happened to me as well. Do you have a stoma nurse? Mine was covered by my insurance. The nurse provided me very g...

Hey guys, had a rough morning today. I woke up with my bag totally inflated and hard as a rock from gas/poo (as usual...that's not...

Hello There, I'm so, so happy i went through with surgery. i opted out of choosing a Jpouch for now, because i was so sick and w...

ML- I too had a lot of discomfort around the stoma area post takedown. It was tender to the touch and had a slight bump for a goo...

Teri, thank you for bringing up the topic of night leakage. I had my takedown 7 months ago and was very surprised when it happene...

Hi Michael, I just had my surgery done in late January 2010. I suggest slippers, because even though they give you socks, it's...

Yeah, the main things are a soft thin robe you can easily slide on and off for walks down the hall - don't take a bulky robe, a th...

For the first surgery I would say take some comfy clothes to get into after the gown stage because let's face it those gowns are j...

I'm set to go in Thursday morning for my first surgery. Does anyone have any tips on what to pack? I'm sure I'll be in a hospita...

Hello Mark, Thanks for your response. I can't tell yuo how much your input means to me. When I feel there is no hope, this bo...

Hey gang! Got discharged last night from the hospital for my takedown surgery. I CANNOT believe how drastically different an exper...

Joe, Oh yeah, the first few weeks definitely felt like having UC all over again. In fact, I wrote just that in my photo journal fr...

I feel your pain. I had my take down on 2/9/10 and although I was no dealing with UC prior to surgery the doctors were right I wou...

Thanks for your input. I find I am eating well but I also have that urge to empty my pouch. It seems it is always loose stool. ...

Took the survey, Megan. It's the least I could do for what you and Mark have done to help out this community....

Jackie, Yes of course we plan to share the results with jpouchers and the medical community as well....

Joe, I'm a slight guy so my weight gain wasn't very much but over about a year and half after takedown, I had gained about 10 pou...

Megan, Will you post the results of this survey? I'd be really interested to see what the outcomes were. Thanks!...

Hi. I had my 1st major op at 16, where they removed all my large bowel, n gave me a bag. I had it a few months n hated it, so jus...

Well that was fun! I expect my reward and/or prize in the mail....

Jackie, the bags are the pits at first but you'll get through it. I had mine for 9 months and learned to manage it pretty well a...

Teri, at 10 months since take down, I have those same problems but it is improving. No accident last night. But often 1 - 2 nigh...

My take down surgery was January 26th. I am eating normally, but I am not gaining weight. What is your experience on weight gain...

ML - Yes, Mark has had Jpouch blockages. His begin with a stomach ache, thinks he ate something bad (not realizing it is blockage ...

I have had this hot bath and massaging the area helps...

blockage. Anyone have one after take down? I am in the worst pain right now in my stomach and where the bump still is up near my p...

Hello Melissa, Thank you for your comment and your response to the survey! As it stands, you have completed the survey correctly...

We got our insurance before I was dx with UC, and I'm grateful that was the case. Thanks, ML, for your encouragement and praye...

Hi, I took the survey, but I messed up. When it asked how often I visited jpouch.net, I answered for jpouch.net instead of both...

Hi Mark, Thanks so much for sharing your story in this blog. I hope you realize the positive impact it is having on so many peo...

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