Comments on: Happy Thoughts 101

By: Emily

Emily — Wed, 16 Sep 2009 02:50:55 +0000

Hi Ml~ I totally understand mentally running away from the idea of this huge surgery. I would do anything not to think about it, but it haunts. I am trying to reach you through your blog to find your email so we can get in touch. I can’t wait to connect! As for my second surgery, it has been a month of adjustment but it is truly amazing what I can due now that I couldn’t do with UC. The best part, I am able to take my son places without worrying, I have the energy to keep up with him, and I am no longer a ticking time bomb for colon cancer. Nearly everyone says it, and I am joining the J pouch family and saying, I wish I did it years ago. Emily

By: ml

ml — Wed, 09 Sep 2009 02:17:51 +0000

Hi Emily, I havent been on in awhile. I think I am running away in my head from all of this as I am about 2.5 weeks out of first surgery. Do email me or visit my blog and then we can connect. thanks for understanding and I hope your second surgery went well. ML

By: Martin

Martin — Sat, 08 Aug 2009 08:52:50 +0000

Now that is inspiring. Congratulations on your renewed energy. I’m sure you’re going to go from strength to strength. I’ve had my colostomy bag a few months now, and it’s going great, but I look forward to the day I’m free of it. Thanks for sharing your journey.

By: trish

trish — Thu, 06 Aug 2009 01:36:12 +0000

Hi Kristine. I had surgery in May and have 4 kids(I am 34) and suffered with UC for 14 years. My life is so much better since surgery. I took my kids to Maine exactly one month post-op.Just me and my kids for the entire weekend. It was so great. Today we went to the same amusement park that I miserably had to find bathrooms at every 15 minutes. This year, the entire day, I had to search once. It has been a rollercoaster ride for my kids and I feel bad for the time I was sick and cant make up, but they are starting to see me now as MOM…..not just a sick person they worry about. Good luck,Kristine! Oh and bythe way…I am an aspiring writer/English teacher. Great idea!

By: Megan

Megan — Tue, 04 Aug 2009 14:23:19 +0000

Hi Kristine, You should visit Chaz and Lori’s site, they have a couple kids and have just gone through the surgery process. Chaz offers some really insightful experiences with his kids. Also, if you write them they will respond with any questions — http://mylifewithcrohns.wordpress.com/

By: Kristine

Kristine — Tue, 04 Aug 2009 12:59:59 +0000

Hi Brevin and all, I am scheduled for my 1st surgery tomorrow. I have been browsing this site in preparation for the big day. I can only hope to come back after the surgery and blog my story. It’s been 9 yrs suffering with UC, lost my military career over it, and I refuse to be victim to this disease any longer. Well, that’s what I am telling myself, lol. I have 2 kids and I am interested to hear any stories of how to approach this subject with my children. Children’s books anyone? How about just a book from our point of view? I see there are several capable writers here! God bless you all for having the courage to share. I hope to come back to this site post surgery to find out what you’ve all been up to!

By: trish

trish — Tue, 04 Aug 2009 12:19:58 +0000

Brevin! This is awesome! I hike all the time despite my ileostomy. I’ve refused to let it hold me back. Immodium does wonders to get me sanely through a day AND emptying a bag in the woods actually is much easier than exposing an ass….But I am so anxious for a “normal” life again and have been so afraid that take-down surgery might revert me to the too-many pit stops a day. I am so happy that you seem to have found success! It is encourging. Hope recovery just gets better from here.

By: Emily

Emily — Wed, 29 Jul 2009 23:58:08 +0000

Hi ml~ I am a mommy of a two and a half year old and I had my first surgery June 1st and will have my takedown August 3rd. Aside from the physical pain of the surgery, the emotional pain of not being able to pick up my little one and not be full time mommy was very hard on me so I can relate to your worry. I didn’t have him come to the hospital until my roomate was discharged and I was feeling better, but I tried to make it a positive experience for him as best I could. We even got him a doctor kit so he could give mommy “check-ups.” He is very excited that my “boo-boo” will be going away soon and frankly so am I! Let me know if you want to talk and I’ll give you my email.

By: ml

ml — Wed, 29 Jul 2009 02:09:53 +0000

that is amazing! So you really can get up and go and lead a normal life afterwards. I am not looking forward to the time I have heard them say that I would not be able to 1) lift my babies and 2) work out. Thanks for sharing and continue to take care.

By: Elise

Elise — Tue, 28 Jul 2009 01:11:47 +0000

I am so happy for you Brevin, you deserve it