Comments on: Much Needed Fashion Sense

By: isabgol

isabgol — Fri, 11 May 2012 00:24:30 +0000

isabgol…

[...]Jpouch Life: Stories of Colitis, Crohn’s, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world[...]…

By: Paul LaGrange

Paul LaGrange — Tue, 14 Jul 2009 05:35:05 +0000

Elise,
As soon as I ordered my first bags, I order the hollister “new image lock n roll drainable pouches with integrated filter”. Its a two piece pouch system. Its not beige on both sides so I no longer have to see my poo as I did while in the hospital. It also has a carbon filter to filter out gas and odor so you dont get gas bulges in the pouch. I love it and feel more comfortable with it knowing i wont gross anyone out if I lift up my shirt, most of all me. If your ordering the item # is 18183.

By: Erin

Erin — Tue, 07 Jul 2009 23:50:12 +0000

I’m finding that my insurance company really doesn’t.

By: ML

ML — Tue, 07 Jul 2009 23:23:09 +0000

Thanks for the tip. I will print those off for when the time comes. Do most insurance companies cover the cost of these items?

By: Erin

Erin — Tue, 07 Jul 2009 02:04:22 +0000

You should see your stoma nurse before your surgery. They are the one's who mark the site for your stoma. My hospital was contracted with a specific company so the ostomy supplies I started out with are different than the ones I have now. I've had a velcro bag since day 1. If they show you supplies that aren't velcro then definitely request them. I was told to change the appliance every 2-3 days. The supplies that I use are at the following websites: this one and to give you more of a visual. I'd try to get a wafer that you don't need to use scissors on. Scissors are a pain.

By: ml

ml — Tue, 07 Jul 2009 01:41:02 +0000

so should you request these velcro bags when booking your surgery? I am hoping to meet with a stoma nurse prior to surgery. How many bags do you need per day, per week? I agree with the comment above, seeing your poo all week is a great way to have a shitty week. Oh, the anxiety I am having already and I havent even chosen a surgeon.

By: trish

trish — Mon, 06 Jul 2009 13:37:12 +0000

That’s impressive! My ostomy nurse was in this morning and I made her order 7 in opaque velcro bags. 1 week of clear JUMBO bags is enough for me…..so,hey,might as well try them. Sending you a huge virtual hug if they work as well as you claim…..

By: Brevin

Brevin — Sun, 05 Jul 2009 17:25:59 +0000

Trish! Trust me, go velcro. Sure it’s velcro, but the part that closes up is a hard plastic that is super easy to clean and folds up nicely. Want proof? I’m zero leaks so far. Zero!

By: trish

trish — Sun, 05 Jul 2009 13:59:29 +0000

I HATEthe size of the bags too. I was in a 9in.and still found that too big (I’m 5’1″). Now I’m in the godzilla of bags thanks to my nurse’s misorder. You guys really like the velcro????? I’ve been scared to try them cuz I’m scared to death of the velcro coming undone. I use that hard bulky clip and groan my way through changing positions…especially with jeans on. The belts ARE great….makes things more comfortable too. I also tape the top of my bag down so it doesnt’t balloon above my pants. Any other suggestions????? I WANT something that smoothes everything…..

By: Erin

Erin — Sun, 05 Jul 2009 00:15:46 +0000

Maybe you should make some. The bands actually aren’t pants. They are like a nylon thing for pregnant women when they can’t button their pants anymore and whatnot. They just happen to do a good job at hiding a ileo bag also.