Comments on: The Post-Op Follow-Up Round-Up http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Wed, 22 May 2013 21:19:06 +0000 hourly 1 http://wordpress.org/?v=3.4.2 By: Elise http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4671 Elise Sat, 11 Jul 2009 20:19:44 +0000 http://www.jpouch.net/?p=2013#comment-4671 Brevin????? When is your takedown??? This coming week?? Elise Brevin????? When is your takedown??? This coming week??

Elise

]]> By: Emily http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4655 Emily Fri, 10 Jul 2009 04:35:57 +0000 http://www.jpouch.net/?p=2013#comment-4655 I know...don't you know you are like a celebrity. I forgot to get your authograph! Oh, and thanks for the marshmellow tip! I know…don’t you know you are like a celebrity. I forgot to get your authograph! Oh, and thanks for the marshmellow tip!

]]> By: Brevin http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4653 Brevin Fri, 10 Jul 2009 02:22:43 +0000 http://www.jpouch.net/?p=2013#comment-4653 Hi Emily! I'll post an update soon, with pics from the x-ray! It's a small world, huh? I don't expect to hear "Are you Brevin?" from strangers in a doctor's office, unless I'm in an action-packed medical drama movie. Hi Emily!
I’ll post an update soon, with pics from the x-ray! It’s a small world, huh? I don’t expect to hear “Are you Brevin?” from strangers in a doctor’s office, unless I’m in an action-packed medical drama movie.

]]> By: Emily http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4650 Emily Thu, 09 Jul 2009 22:19:39 +0000 http://www.jpouch.net/?p=2013#comment-4650 Hey Brevin~ It was great getting to meet you and visit on Tuesday...what are the chances we would both be at Dr. V's office! How did the x-ray go? Painless, I hope. Best of luck for your takedown on Monday, I will be thinking positive thoughts for you! Good riddance to Stomie! Hey Brevin~ It was great getting to meet you and visit on Tuesday…what are the chances we would both be at Dr. V’s office! How did the x-ray go? Painless, I hope. Best of luck for your takedown on Monday, I will be thinking positive thoughts for you! Good riddance to Stomie!

]]> By: Eric http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4553 Eric Wed, 01 Jul 2009 02:47:56 +0000 http://www.jpouch.net/?p=2013#comment-4553 With my loop ileo I had a lot of irritation. The ostomy nurse (a godsend) taught me how to spray a few pumps of the clear spray, then sprinkle some powder on top of that, then blow off the loose bits, and repeat the 2-step process if necessary. My loop ileo was so bad that nurses would look at it and say "eww, that's not a permanent ostomy, is it?" as if to say, if it is permanent, you're screwed as all hell. When I would say no, they'd sigh in relief and we would try to get the appliance on before the stoma 'erupted' like in Brevin's comic. With my loop ileo I had a lot of irritation. The ostomy nurse (a godsend) taught me how to spray a few pumps of the clear spray, then sprinkle some powder on top of that, then blow off the loose bits, and repeat the 2-step process if necessary. My loop ileo was so bad that nurses would look at it and say “eww, that’s not a permanent ostomy, is it?” as if to say, if it is permanent, you’re screwed as all hell. When I would say no, they’d sigh in relief and we would try to get the appliance on before the stoma ‘erupted’ like in Brevin’s comic.

]]> By: Eric http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4552 Eric Wed, 01 Jul 2009 02:43:47 +0000 http://www.jpouch.net/?p=2013#comment-4552 I had some sort of nasty nasty drain, too. I had to go back in to the hospital because I had an abscess after my loop ileo was formed. I had to go to IR and they sent me home with some syringes of saline to clean out the drain. I never could get it right, and nothing ever drained, and then when they took out the tubing, the left the lead string in. So I had a piece of black string hanging out of of me and I was too afraid to pull it because I thought it would pull some other junk out with it. It didn't, but hey, here's to being a wimp. I had to go back into the hospital to have them pull out the string. Anywho, it gets better. Really. It does. I had some sort of nasty nasty drain, too. I had to go back in to the hospital because I had an abscess after my loop ileo was formed. I had to go to IR and they sent me home with some syringes of saline to clean out the drain. I never could get it right, and nothing ever drained, and then when they took out the tubing, the left the lead string in. So I had a piece of black string hanging out of of me and I was too afraid to pull it because I thought it would pull some other junk out with it. It didn’t, but hey, here’s to being a wimp. I had to go back into the hospital to have them pull out the string. Anywho, it gets better. Really. It does.

]]> By: Brevin http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4550 Brevin Wed, 01 Jul 2009 01:15:07 +0000 http://www.jpouch.net/?p=2013#comment-4550 I totally have that skin irritation you mention! It's weird, but the surgery itself = no issue. My skin's strong dislike for anything sticky = issue. I thought it was just my sensitive skin being a jerk. Maybe it's both. I've been messing around with the powder right now to build up that barrier. Jamie, a J-Pouch veteran from this site, just mentioned something called kenelog spray and tegederm (a non-reactive film that you put between your skin and your wafer to prevent a reaction). Right before this reply I sent off an email asking about these two gadget-doodads. I totally have that skin irritation you mention! It’s weird, but the surgery itself = no issue. My skin’s strong dislike for anything sticky = issue. I thought it was just my sensitive skin being a jerk. Maybe it’s both. I’ve been messing around with the powder right now to build up that barrier. Jamie, a J-Pouch veteran from this site, just mentioned something called kenelog spray and tegederm (a non-reactive film that you put between your skin and your wafer to prevent a reaction). Right before this reply I sent off an email asking about these two gadget-doodads.

]]> By: Emily http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4549 Emily Wed, 01 Jul 2009 00:48:58 +0000 http://www.jpouch.net/?p=2013#comment-4549 So these lesions are just little red bumps that cause a lot of pain (burning, stinging, etc.); you'll know if you have them trust me! I guess they form if there is too much moisture around the area (as explained by my home health nurse). So we have been trying to find the right mixture of powder and barrier gunk to allow them to stop hurting so much. The problem is that the wafer sits right on top of them so there is constant contact and pressure...think really bad blister. I truly don't have any pain at 4 weeks post op except for these buggers. You are a trooper for carrying around that grenade (JP drain) for two weeks at home I would have gone crazy! So these lesions are just little red bumps that cause a lot of pain (burning, stinging, etc.); you’ll know if you have them trust me! I guess they form if there is too much moisture around the area (as explained by my home health nurse). So we have been trying to find the right mixture of powder and barrier gunk to allow them to stop hurting so much. The problem is that the wafer sits right on top of them so there is constant contact and pressure…think really bad blister. I truly don’t have any pain at 4 weeks post op except for these buggers. You are a trooper for carrying around that grenade (JP drain) for two weeks at home I would have gone crazy!

]]> By: Brevin http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4546 Brevin Tue, 30 Jun 2009 23:16:13 +0000 http://www.jpouch.net/?p=2013#comment-4546 Emily, I sure did go home with that JP Drain. I had it for two weeks total I think. They removed it when I was resubmitted for being a complete pansy ("waah waaah pain waaah"). I don't think my JP leaked towards the end. What are lesions? How do I know I have them? Emily, I sure did go home with that JP Drain. I had it for two weeks total I think. They removed it when I was resubmitted for being a complete pansy (“waah waaah pain waaah”). I don’t think my JP leaked towards the end. What are lesions? How do I know I have them?

]]> By: Emily http://www.jpouch.net/2009/06/27/the-post-op-follow-up-round-up/#comment-4541 Emily Tue, 30 Jun 2009 20:15:43 +0000 http://www.jpouch.net/?p=2013#comment-4541 Brevin, yes that was me. And yes, I too hobbled the hallways at Mt. Zion. You went home with your JP drain didn't you? How long did you have it at home? Mine leaked like crazy for a good week before I begged Louis Ann to take it out! Are you doing ok with your stoma? I have apparently developed lesions on and around the stoma area...so not fun. Thanks for the heads up for the follow up appt. so I can prepare myself! A visit would be welcome and you certainly have earned any dessert they throw my way! Brevin, yes that was me. And yes, I too hobbled the hallways at Mt. Zion. You went home with your JP drain didn’t you? How long did you have it at home? Mine leaked like crazy for a good week before I begged Louis Ann to take it out! Are you doing ok with your stoma? I have apparently developed lesions on and around the stoma area…so not fun. Thanks for the heads up for the follow up appt. so I can prepare myself! A visit would be welcome and you certainly have earned any dessert they throw my way!

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