Colitis to Dysplasia Surgery

by on Friday, June 19, 2009 8:49
This entry is filed under: cancer
Merry Lynn with son on his first birthday.

Merry Lynn with son on his first birthday.

We wanted to introduce you to  Merry Lynn, she has been living with colitis for 10 years, for 3 years she has been in remission, and just learned she has high grade dysplasia. Her dysplasia means she will be having a colectomy to remove the risk of colon cancer. Her story is being shared on her blog and provides an important perspective into having surgery because of cancer risk not because of living with UC without remission.

Below is an email Merry Lynn sent to us introducing her story:

Hello my name is Merry Lynn Guy and on my blog I just list my name as ML (it’s what most people call me) . I was recently told that I need to have surgery due to the high grade dysplasia that is now presenting after 10++ years of having colitis. http://road2singledigitjeans.blogspot.com/ was originally created when I was attempting to be in a bloggy world weight loss group but then the group fizzeled so I had the blog name and title so now it is a blog about the medical path I am about to travel. I would be happy to be on your blog roll. I enjoyed reading Natalie’s Storyand have learned so much about what I am about to live through from your site. THANK YOU for creating it.

I have met with two different surgeons thus far and the verdict is the same.
The toughest part of my journey thus far is coming to terms with this verdict because I am a colitis patient that has been in full blown remission for just over three years. I have been living life to the fullest and now after my colonoscopy on 6/4/09 and some pathology confirmations I am heading towards surgery NOT because my disease is out of control but due to length of time having it and its now path to cancer.

I hope you will stop by and place me on your blog roll. I have yet to find a UC patient blog or site that talks about having to have surgery because of the same or similar presentation as I. So maybe my blog will be helpful to another.

ML

Please visit Merry Lynn’s Blog and give her the wonderful support that jpouch.net readers/bloggers can give!

These posts might also help out:

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5 Responses to “Colitis to Dysplasia Surgery”

  1. avatar

    Deb says:

    August 26th, 2010 at 7:50 am

    I understand exactly what you are going through, as I have the same diagnosis. I’m dealing with acceptance and trying to find (in vain) an alternative. I’ve had UC for 15 years and in remission for 10 years. I was diagnosed with high grade dysplasia on 7/16. I actually forgot that I what the disease could result in. I know this has to be done but I’m having a hard time seeing this as a better solution because it puts me back to crazy bowel function that I’ve lived without for so long. My doc tells me I have months to get this done and now I’m prepping to get very strong and healthy pre surgery.

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    JK Reply:

    I am happy to have found some people who are dealing with the same issue I am. I have had UC for 17 years, the last 5 being symptom free. Such a great feeling…I’ve forgotten the ugliness of the disease from the earlier years. A year ago, I was in for my annual scope with my GI doc. The biopsies came back positive for low grade dysplasia. I have spent the past year partially in denial, in search of an alternative, getting scoped every three months, meeting with surgeons, and spending a lot of time thinking about what lies ahead. The Dr’s are all recommending surgery. They say it is just a matter of time before the low-grade dysplasia turns to cancer. It’s hard to accept, especially since I feel as good as I have in 17 years. The low-grade dysplasia is most present in my rectum, and because of that, I am not a canidate for the j-pouch. This was a real “bummer” to hear, because I wasn’t looking forward to wearing a bag the rest of my life. However, after reading some blogs about the complications of the j-pouch maybe it isn’t so bad. Anyway, I would like to thank everyone who posts their stories. It really is helpful, and good to know that there are people out there in my same situation.

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    Pam Reply:

    I too have lived with UC for 30 years and I have been symptom free since 2004. November15 I had my scope and was told I had a 4 cm mass in my rectum.  I saw two surgeons and both said the colon, rectum and anus most go.  The surgeons said with my history of UC if any part of the colon, rectum, or anus is left the cancer will come back.  I have been researching several blogs since November looking for people with the same situation and I am glad to have found your blogs.  So far my journey has consisted of several clinical tests, 6 weeks of low dose chemo (didn’t loose my hair), and 6 weeks of radiation.  One week from tomorrow I will have my protocoletomy with an illeostomy.   About 6 weeks after surgery l begin 4 1/2 months of a higher dose of chemo .  I am worried about living with an illeostomy, but from most of the blogs I have read sounds like you need a sense of humor.  Hope my information will help others with UC and the complications it can cause

    leyer in life.
    cchemo.

    saw two surgeons w

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