Colitis to Dysplasia Surgery
by Megan on Friday, June 19, 2009 8:49
Merry Lynn with son on his first birthday.
We wanted to introduce you to Merry Lynn, she has been living with colitis for 10 years, for 3 years she has been in remission, and just learned she has high grade dysplasia. Her dysplasia means she will be having a colectomy to remove the risk of colon cancer. Her story is being shared on her blog and provides an important perspective into having surgery because of cancer risk not because of living with UC without remission.
Below is an email Merry Lynn sent to us introducing her story:
Hello my name is Merry Lynn Guy and on my blog I just list my name as ML (it’s what most people call me) . I was recently told that I need to have surgery due to the high grade dysplasia that is now presenting after 10++ years of having colitis. http://road2singledigitjeans.blogspot.com/ was originally created when I was attempting to be in a bloggy world weight loss group but then the group fizzeled so I had the blog name and title so now it is a blog about the medical path I am about to travel. I would be happy to be on your blog roll. I enjoyed reading Natalie’s Storyand have learned so much about what I am about to live through from your site. THANK YOU for creating it.
I have met with two different surgeons thus far and the verdict is the same.
The toughest part of my journey thus far is coming to terms with this verdict because I am a colitis patient that has been in full blown remission for just over three years. I have been living life to the fullest and now after my colonoscopy on 6/4/09 and some pathology confirmations I am heading towards surgery NOT because my disease is out of control but due to length of time having it and its now path to cancer.I hope you will stop by and place me on your blog roll. I have yet to find a UC patient blog or site that talks about having to have surgery because of the same or similar presentation as I. So maybe my blog will be helpful to another.
ML
Please visit Merry Lynn’s Blog and give her the wonderful support that jpouch.net readers/bloggers can give!
Deb says:
August 26th, 2010 at 7:50 am
I understand exactly what you are going through, as I have the same diagnosis. I’m dealing with acceptance and trying to find (in vain) an alternative. I’ve had UC for 15 years and in remission for 10 years. I was diagnosed with high grade dysplasia on 7/16. I actually forgot that I what the disease could result in. I know this has to be done but I’m having a hard time seeing this as a better solution because it puts me back to crazy bowel function that I’ve lived without for so long. My doc tells me I have months to get this done and now I’m prepping to get very strong and healthy pre surgery.
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