Comments on: The First Surgery: One Month Later http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Wed, 28 Jul 2010 00:21:02 +0000 hourly 1 http://wordpress.org/?v=3.0 By: RT Elkin http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-6900 RT Elkin Thu, 11 Mar 2010 21:46:32 +0000 http://www.jpouch.net/?p=1939#comment-6900 Fantastic attitude & you're funny as hell! I've still got a semi-colon (which is good because I teach English), so maybe my ostomy doesn't translate into ileostomy circles, but colace (generic just fine) is great at regulating poo consistency, & disposable tan pouches (attaching like tupperware to a pectin-ringed foundation) are by far to me the psychologically preferable method to deal with the regular removals of the pooservoir. As to anal drainage, I've got a Hartmann's pouch which insists on being drained of mucus by the formerly conventional method of sitting down on the bowl several times a day. Fantastic attitude & you’re funny as hell! I’ve still got a semi-colon (which is good because I teach English), so maybe my ostomy doesn’t translate into ileostomy circles, but colace (generic just fine) is great at regulating poo consistency, & disposable tan pouches (attaching like tupperware to a pectin-ringed foundation) are by far to me the psychologically preferable method to deal with the regular removals of the pooservoir. As to anal drainage, I’ve got a Hartmann’s pouch which insists on being drained of mucus by the formerly conventional method of sitting down on the bowl several times a day.

]]> By: J-pouch Life http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4577 J-pouch Life Thu, 02 Jul 2009 16:40:06 +0000 http://www.jpouch.net/?p=1939#comment-4577 [...] Brevin has documented his recent surgery with these 2 active posts:   So Long Colon and the follow up with 1 month later. [...] [...] Brevin has documented his recent surgery with these 2 active posts:   So Long Colon and the follow up with 1 month later. [...]

]]> By: Chaz & Lori Burton http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4227 Chaz & Lori Burton Sat, 13 Jun 2009 23:20:17 +0000 http://www.jpouch.net/?p=1939#comment-4227 Chaz used the convex moldable wafers.....no glue or anything needed!!! They were really nice....made by Convatec. They mold right around your stoma & easy to use. He did leak sometimes a night, but it was closer to the time of the takedown. It is totally normal. He noticed he would leak more if he laid on his side to sleep. That's why he spent most nights in the trusty recliner. ;-) Since his takedown he has not had one accident!!! He took Cholestyramine twice a day in the beginning. Then as time went on he controlled his output by diet. He didn't like it to be too liquidy, but then again if it was too thick that was a pain as well. He sat down to empty his bag & then had a small glass of water that he would pour in to swish it around to clean it. Kind of a pain, but he thought it helped it to seal better with the velcro part all clean. Hope this helps, Lori Chaz used the convex moldable wafers…..no glue or anything needed!!! They were really nice….made by Convatec. They mold right around your stoma & easy to use.

He did leak sometimes a night, but it was closer to the time of the takedown. It is totally normal. He noticed he would leak more if he laid on his side to sleep. That’s why he spent most nights in the trusty recliner. ;-) Since his takedown he has not had one accident!!!

He took Cholestyramine twice a day in the beginning. Then as time went on he controlled his output by diet. He didn’t like it to be too liquidy, but then again if it was too thick that was a pain as well.

He sat down to empty his bag & then had a small glass of water that he would pour in to swish it around to clean it. Kind of a pain, but he thought it helped it to seal better with the velcro part all clean.

Hope this helps,
Lori

]]> By: Lizz http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4224 Lizz Sat, 13 Jun 2009 21:32:02 +0000 http://www.jpouch.net/?p=1939#comment-4224 They tell a lot of people to take it, and a lot do. They gave me lomotil, etc. right after, but I dunno, something about post-surgery thickeners made me nervous after I got a blockage, plus, the liquidy poo didn't really bother me at first. Sometimes I still get it if I eat certain things, but I have good control. I don't really mind going to the bathroom several times a day. (4-6 ish) I rather enjoy the feeling of being "cleaned out", but I often have freakishly normal poos, just from eating fibrous foods. Now that I'm well past the surgeries and low-residue diet stage, I eat tons of veggies and fruits, so I don't really require any additional fiber. If it helps you though, do it fo sho. They tell a lot of people to take it, and a lot do. They gave me lomotil, etc. right after, but I dunno, something about post-surgery thickeners made me nervous after I got a blockage, plus, the liquidy poo didn’t really bother me at first. Sometimes I still get it if I eat certain things, but I have good control. I don’t really mind going to the bathroom several times a day. (4-6 ish) I rather enjoy the feeling of being “cleaned out”, but I often have freakishly normal poos, just from eating fibrous foods. Now that I’m well past the surgeries and low-residue diet stage, I eat tons of veggies and fruits, so I don’t really require any additional fiber. If it helps you though, do it fo sho.

]]> By: Brevin http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4219 Brevin Sat, 13 Jun 2009 18:09:23 +0000 http://www.jpouch.net/?p=1939#comment-4219 Look behind you! (hiding my 30lbs stash of sausages) Convex is definitely working best for me as well. And I think the leakage thing is stopping. That last two nights wasn't a concern, so that's awesome. So you don't need to take fiber? I wonder if UCSF has a secret tie-in sponsor with BeneFiber, so telling patients to take fiber allows them to pocket some commission. Foul play! Look behind you!
(hiding my 30lbs stash of sausages)
Convex is definitely working best for me as well. And I think the leakage thing is stopping. That last two nights wasn’t a concern, so that’s awesome.
So you don’t need to take fiber? I wonder if UCSF has a secret tie-in sponsor with BeneFiber, so telling patients to take fiber allows them to pocket some commission. Foul play!

]]> By: Lizz http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4205 Lizz Sat, 13 Jun 2009 01:46:42 +0000 http://www.jpouch.net/?p=1939#comment-4205 Well, it's been a while for me, but I liked the convex wafer, but it's all a matter of body shape, stoma, and personal preference. The leakage will stop, but if it is a concern to you ask your doc. I mostly sleep through the night now and I don't take any fiber supplements, never have. Careful with the food for a while. When you do start w/ sausages, start slowly. Have you thought of putting googly eyes on your stoma? That'd be sweet! Although I really liked your illustration:) Well, it’s been a while for me, but I liked the convex wafer, but it’s all a matter of body shape, stoma, and personal preference. The leakage will stop, but if it is a concern to you ask your doc. I mostly sleep through the night now and I don’t take any fiber supplements, never have. Careful with the food for a while. When you do start w/ sausages, start slowly. Have you thought of putting googly eyes on your stoma? That’d be sweet! Although I really liked your illustration:)

]]> By: Brevin http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4181 Brevin Thu, 11 Jun 2009 20:57:47 +0000 http://www.jpouch.net/?p=1939#comment-4181 Elise sent me the videos via Facebook, but they are too awesome not to share. <a href="http://www.youtube.com/watch?v=HTbj8Ad2qq0&eurl=http%3A%2F%2Fwww.facebook.com%2Finbox%2Freadmessage.php%3Ft%3D1066261979389%26mbox_pos%3D0&feature=player_embedded" rel="nofollow">Cleaning the bag</a> <a href="http://www.youtube.com/watch?v=da0JXlLDBvs&eurl=http%3A%2F%2Fwww.facebook.com%2Finbox%2Freadmessage.php%3Ft%3D1066261979389%26mbox_pos%3D0&feature=player_embedded" rel="nofollow">Clothes with the bag</a> Elise sent me the videos via Facebook, but they are too awesome not to share.

Cleaning the bag

Clothes with the bag

]]> By: Elise http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4179 Elise Thu, 11 Jun 2009 17:27:23 +0000 http://www.jpouch.net/?p=1939#comment-4179 Brevin, Bravo, love your post :) Dennis has many helpful videos at UCVlog.com One of his videos talks about how to empty the pouch :) I love Dennis' videos :) I know you aren't supposed to name your stoma till you see it, but I think because I a am such a girlie girl and lover of expensive handbags, I must name my stoma/baggie something like: Prada, Burberry or Louis Vuitton! Less than two weeks for me till surgery one, eeeeeek! Do you have a tentative take down date yet?? Super fragalistic E (Elise) Brevin, Bravo, love your post :) Dennis has many helpful videos at UCVlog.com One of his videos talks about how to empty the pouch :) I love Dennis’ videos :) I know you aren’t supposed to name your stoma till you see it, but I think because I a am such a girlie girl and lover of expensive handbags, I must name my stoma/baggie something like: Prada, Burberry or Louis Vuitton! Less than two weeks for me till surgery one, eeeeeek! Do you have a tentative take down date yet??

Super fragalistic E
(Elise)

]]> By: Cindy http://www.jpouch.net/2009/06/10/the-first-surgery-one-month-later/#comment-4178 Cindy Thu, 11 Jun 2009 16:55:39 +0000 http://www.jpouch.net/?p=1939#comment-4178 Your stoma kind of looks like sponge bob. Your stoma kind of looks like sponge bob.

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