Comments on: First Surgery Post Mortem: Suck it, Colitis http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Thu, 09 Feb 2012 01:41:43 +0000 hourly 1 http://wordpress.org/?v=3.3 By: Jackie Z. http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-18928 Jackie Z. Wed, 23 Feb 2011 00:40:12 +0000 http://www.jpouch.net/?p=1877#comment-18928 Also, Are you putting a new bag on right before your shower? I have used a few bagging systems and I never had this problem. You could try just taping around your edges. I'd recommend mefix tape. So far thats the absolute best I have found. Also, Are you putting a new bag on right before your shower? I have used a few bagging systems and I never had this problem. You could try just taping around your edges. I’d recommend mefix tape. So far thats the absolute best I have found.

]]> By: Jackie Z. http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-18927 Jackie Z. Wed, 23 Feb 2011 00:39:12 +0000 http://www.jpouch.net/?p=1877#comment-18927 Janelle my dear, Welcome to the club! I have written a boat load on my blog (and here) about maternity jeans. They got my through my first year of an ostomy. I am just NOW almost a year in and wearing regular pants again. Check out my blog, bloodpooptears.wordpress.com. I'm telling you maternity jeans. They are a WONDER for ostomies. Not only do they not put any pressure on the stoma site/bag, but they also provide support for the bag itself. They're totally awesome.  Janelle my dear,
Welcome to the club! I have written a boat load on my blog (and here) about maternity jeans. They got my through my first year of an ostomy. I am just NOW almost a year in and wearing regular pants again. Check out my blog, bloodpooptears.wordpress.com.

I’m telling you maternity jeans. They are a WONDER for ostomies. Not only do they not put any pressure on the stoma site/bag, but they also provide support for the bag itself. They’re totally awesome. 

]]> By: Janelle http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-18889 Janelle Tue, 22 Feb 2011 00:41:18 +0000 http://www.jpouch.net/?p=1877#comment-18889 and one more question. How do you shower without your bag coming off? I have to wrap myself in seran wrap and tape. Is there a better way? I wont show without the bag because my "girl" aka stoma sputters ALL the time. and one more question. How do you shower without your bag coming off? I have to wrap myself in seran wrap and tape. Is there a better way? I wont show without the bag because my “girl” aka stoma sputters ALL the time.

]]> By: Janelle http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-18888 Janelle Tue, 22 Feb 2011 00:38:08 +0000 http://www.jpouch.net/?p=1877#comment-18888 I cant thank you enough for writing this. I had all of this happen to me, except the jp drain, i had the rectal tube. blak! My surgery was only 4 weeks ago but i still haven't ever left my house yet. Main problem, i don't know what to wear? My jeans fall right on top of my stoma so they are out and i hate sweatpants but i guess i have no choise. Did you or will you have the surgery reversed? I want to know if the reversal surgery is going to be as bad as this ileostomy surgery? I also wonder how that will work bathroom wise since i have no large intestine will i have diahreah again all the time? The ileostomy was by far the worse thing i ever went through in my life. Mine was emergency so i didn't have a choise or even time to look up all this information. I also had a lot of complications afterwards. I ended up back in the ER for water around my lung most likely due to the 5 hour surgery or breathing tube. I was hospitalized a week before for my UC and because of all this laying around and not eating i lost 25 pounds and it left my legs to weak to walk. I cant thank you enough for writing this. I had all of this happen to me, except the jp drain, i had the rectal tube. blak! My surgery was only 4 weeks ago but i still haven’t ever left my house yet. Main problem, i don’t know what to wear? My jeans fall right on top of my stoma so they are out and i hate sweatpants but i guess i have no choise. Did you or will you have the surgery reversed? I want to know if the reversal surgery is going to be as bad as this ileostomy surgery? I also wonder how that will work bathroom wise since i have no large intestine will i have diahreah again all the time? The ileostomy was by far the worse thing i ever went through in my life. Mine was emergency so i didn’t have a choise or even time to look up all this information. I also had a lot of complications afterwards. I ended up back in the ER for water around my lung most likely due to the 5 hour surgery or breathing tube. I was hospitalized a week before for my UC and because of all this laying around and not eating i lost 25 pounds and it left my legs to weak to walk.

]]> By: Paul Smith http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-16080 Paul Smith Tue, 04 Jan 2011 18:06:42 +0000 http://www.jpouch.net/?p=1877#comment-16080 Brevin, Great story and typically opitomised my time in hospital. You are also damn right colitis sucks. For those who suffer and vist the kazi more than 15 times a day and multiple accidents in the car and not crashes !! should not hesitate in having this procedure. The pain relief is like nothing else. Take care and good luck. Brevin,
Great story and typically opitomised my time in hospital. You are also damn right colitis sucks. For those who suffer and vist the kazi more than 15 times a day and multiple accidents in the car and not crashes !! should not hesitate in having this procedure. The pain relief is like nothing else. Take care and good luck.

]]> By: Paul Smith http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-16078 Paul Smith Tue, 04 Jan 2011 17:58:29 +0000 http://www.jpouch.net/?p=1877#comment-16078 i have just come out of hospital some 3 weeks ago (18 Dec 2010) and like you quickly discharged. I was well looked after by the hospital staff Oldham Royal Lancashire. I had the operation done as an emergency and i was gutted when there was no other option. The operation is massive but a life saver in many cases and thankfully that was the case with myself. I found the stoma bag and fistula bag to be a pain at first and I`m still in the learning curve . I am, day by day finding it more manageable yet still learning the rota of the stomas movements !!! I havent got a name for it yet but "Smudger" springs to mind !!! I cant wait to get back to the gym and normal life as there is no reason not to. Secret !! great strong wife, children and friends and be open about it, laugh and joke at yourself and any ideas about stopping leaks says I the plumber !!!!! i have just come out of hospital some 3 weeks ago (18 Dec 2010) and like you quickly discharged. I was well looked after by the hospital staff Oldham Royal Lancashire. I had the operation done as an emergency and i was gutted when there was no other option. The operation is massive but a life saver in many cases and thankfully that was the case with myself. I found the stoma bag and fistula bag to be a pain at first and I`m still in the learning curve . I am, day by day finding it more manageable yet still learning the rota of the stomas movements !!! I havent got a name for it yet but “Smudger” springs to mind !!! I cant wait to get back to the gym and normal life as there is no reason not to. Secret !! great strong wife, children and friends and be open about it, laugh and joke at yourself and any ideas about stopping leaks says I the plumber !!!!!

]]> By: Mary http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-8792 Mary Mon, 16 Aug 2010 00:15:34 +0000 http://www.jpouch.net/?p=1877#comment-8792 I am so Glad you are completely healed, God Bless you and take care of your self. My son is going to have this surgery too. Hard for him and the whole family but with God Blessing we are getting through this as a family. Will keep you in my prayers. Be Well. I am so Glad you are completely healed, God Bless you and take care of your self. My son is going to have this surgery too. Hard for him and the whole family but with God Blessing we are getting through this as a family. Will keep you in my prayers. Be Well.

]]> By: Amy Laytart http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-7710 Amy Laytart Wed, 09 Jun 2010 00:24:42 +0000 http://www.jpouch.net/?p=1877#comment-7710 I have had this same surgery, it was about 8 years ago and everything is still working great! I feel so much better without UC making my life horrible. My only problem now is I have trouble not knowing what I need to eat nutritionally to stay at a healthy weight...no colon means fiber doesn't help! Any ideas on this? I have had this same surgery, it was about 8 years ago and everything is still working great! I feel so much better without UC making my life horrible. My only problem now is I have trouble not knowing what I need to eat nutritionally to stay at a healthy weight…no colon means fiber doesn’t help! Any ideas on this?

]]> By: Brandie http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-7505 Brandie Wed, 19 May 2010 14:49:17 +0000 http://www.jpouch.net/?p=1877#comment-7505 This site was just what I needed. I just came home from my first J Pouch surgery and I am feeling much better. My surgery was very similar to yours and I even had the "wonderful" mushroom soup in the hospital. Everything went super smooth in the hospital, I was walking the halls the next morning, and in minor pain. My only complication even now at home is I can't pee. Imagine that all the years of dealing with colitis and peeing being the least of my worries now I have a foly bag for ten days and hope to be able to go after that. Don't take the simple things for granted. I hope everything is going well for you and thank you for sharing your story, it was very uplifting. This site was just what I needed. I just came home from my first J Pouch surgery and I am feeling much better. My surgery was very similar to yours and I even had the “wonderful” mushroom soup in the hospital. Everything went super smooth in the hospital, I was walking the halls the next morning, and in minor pain. My only complication even now at home is I can’t pee. Imagine that all the years of dealing with colitis and peeing being the least of my worries now I have a foly bag for ten days and hope to be able to go after that. Don’t take the simple things for granted. I hope everything is going well for you and thank you for sharing your story, it was very uplifting.

]]> By: J-pouch Life http://www.jpouch.net/2009/05/19/first-surgery-post-mortem-suck-it-colitis/#comment-5668 J-pouch Life Wed, 11 Nov 2009 06:07:50 +0000 http://www.jpouch.net/?p=1877#comment-5668 [...] know how to add pictures as a comment. November 11th will be my 6 month anniversary of the first surgery and well, it’s pretty amazing. So much so that I have no idea what word in English conveys [...] [...] know how to add pictures as a comment. November 11th will be my 6 month anniversary of the first surgery and well, it’s pretty amazing. So much so that I have no idea what word in English conveys [...]

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