Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

Archive for May 17th, 2009

Grassroots Conference

Sunday, May 17, 2009 9:38 3 Comments

Hello everyone! I am a firm believer in grassroots movements. As such, I am feeling a strong desire to put together a conference for J-pouchers. I live in Tucson, AZ and believe we have some great resources for J-Pouchers with the University of Arizona here. Anyway, what I am asking for is some honest feedback [...]

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Hey Gerald, I had luck with alot of soup mainly Chunky soup with adding alot of crackers. Soup is nice and soft, rich in salt. At...

Thanks for the advice Kanaka and Terry,if you wish to send me some more info on anything such as what foods you should eat first a...

Kanaka gave good advice! It took me about a year to get over the butt-burn but I very seldom have it any more. And now I take b...

Gerald, Good luck!! You will feel a lot better after the 3rd surgery. The first few weeks of course will be tough as your body ...

Lol. Bishop got his 1st blood test at 1 year. The dr called and said we had to come in for results. WOULD not tell us over phone (...

Hi, I'm going in for my 3rd part of the surgery and can't wait to get clear the ileostomy on my side because since I had the 2n...

Jane, those are nice coments....

Hi - I am just checking in to send appreciation and empathy to everyone who posts, reads and responds to this website. Every messa...

idea of very best... he following are various urls to web-internet sites I always connect to towards the actuality we think they ...

isabgol... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world[...]...

whole psyllium husk... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around th...

I was just reading all the responses to your story. Life can be though. I have been really disturbed by the last comments. I feel ...

I decided to go the surgery route instead of those medications and side effects. I was 32 at that time. I have no regrets with tha...

Hi, as those of you who are considering a j pouch I want to let y'all know about another option that most people aren't even aware...

Thanks so much for your input. I am 36 years old and my surgeon and gi doctor both say it is better to do surgery when your young....

Carolyn, I met a few people who had surgery when they were in their teens. They have had no regrets. They are into sports, and ot...

I was 27. Naturopathy is a great idea. I was gluten free for a few years leading up to surgery. No alcohol (shouldn't be a problem...

Hi Dennis, No much help from drs on diet. We really haven't had much success in determining trigger foods. We tried the specific...

Hi Carolyn , Have the doctors tried to help with the understanding of the diet? I have had my colon out for over two years and hav...

Daniel, Thanks for your post. What age did you have your surgery? I guess maybe we just aren't there yet. It would be an easie...

Carolyn, I am saddened to learn of your son's situation at such a young age. I posted earlier today that the body will let you kn...

My son, 14 has UC for 3+ years and meds have only partially worked for him. He takes Humira weekly and flagyl along with suppleme...

Surgery is a very personal and permanent choice. By your description, if the drugs work, stay the course. If you have surgery your...

Excellent point! I think when we get the bag, we have this irrational fear of it being visible, but, as you so perfectly stated, n...

I've had uc for 7 years and am doing well now. However, I am on a lot of meds remicade, 6mp and asacol. I know there is a chance o...

I have had ulcerative colitis for 7 years. I was hospitalized on and off for several months in the beginning stages of my diseas...

Thanks Lizz for the link. Once I got over that my tight tshirts and tanks are no longer the top layer, I'm doing much better findi...

Thanks, Suzie! Let's see...I am trying to remember any of my fashion tricks from summers with the shit spout (mine ran ALL the tim...

Hey Gratefulness you in the aiming of valuable information. I would on the other side of again look in on the site. Salubrious hap...

Wow, congratulations and thanks for such an informative site. I'm fighting UC and losing this particular battle of the war at the ...

greek orthodox... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the wor...

I had my takedown 3 years ago and I have been trying for past 2 years now....no luck so far :-(...

HEllo, I had my take down 4 years ago. I was told even before the procedures that there was a 92% chance of me not having anymore ...

Christopher, that's excellent news! So glad to get your note. And I'll take all the good karma I can get. Eating more carbs a...

Also try eating alot more carbs. They absorb the gastric fluids and als moderate the digestive flow to slow it down so you can abs...

Hey Terry! The Psyllium Husk WORKS!! I'm adjusting, but it beats my medication & immodium by a LONG SHOT! Thank you so much fo...

[url=http://www.toryburchjphigheels.com]トリーバーチアウトレット[/url] [url=http://www.toryburchjpshoes.com]ト�...

Rick, My wife has gone through these surgeries, and though I should ask her first, I'm pretty sure she experienced the same thin...

Kelsey, I have been suffering from the same symptoms your brother has and I have been for 3 yrs now. I also have a family that suf...

I am the girlfriend of a sufferer of acute ulcerative colitis, AJ. This is probably going to sound like a letter to a newspaper ...

The Yerba connection is funny. You might want to send Carolyn (scroll above) a note. Her son at age 14 may need a j-pouch and...

That's so weird it's called Yerba Prima. I drink Yerba Mate tea everyday! It's the perfect tea, and now this. I will definitely fo...

Christopher, you’re welcome. The psyllium we buy is Yerba Prima brand at about $10-$11 for a 12 oz jar. We live in Oregon an...

Terry! Thanks for responding! I did the Depends thing for a while, but sleepovers, future relationships, and the traveling all mad...

Christopher, iIt looks like you and I are on somewhat similar tracks. My j-pouch connection was 3 years ago, and I have had the ...

Hello All, I browsed your page briefly and saw some people had asked about incontinence, but I didn't find what I needed on the s...

Nike Zoom Hyperfuse... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around th...

Hi Beth... I am in kind of the same world, except I have had my pouch for 7 years and over the last 12 months developed a recto-va...

Thank you so much, Dianne! That's a lovely compliment. I took Humira too, so I understand the fear and loathing. If you need some...

You are a wonderful writer. Really, you should look into writing as a career. I, also, have had my life dramatically altered by ...

hi brandi thanks for the reply ...

hi lizz thanks for the the comments about aplogizing means alot ive had no advice about UC or pouchitis i dont know anyone else wi...

HI Liam, My doctor is trying me on 3 different antibiotics on 1 month cycles. The first one was called Amoxicillin. The second ...

First off, don't ever apologize for asking questions/sharing on here! That's what it's for :) I have taken a variety of antibiotic...

Thanks for the compliments, guys! It's always great to hear that my snarky posts help people out :)...

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Archive for May 17th, 2009

Grassroots Conference

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