Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

Archive for May 14th, 2009

Jpouchers’ Unite for IBD Research

Thursday, May 14, 2009 10:20 1 Comment

Please read below if you are Facebook user, it is really easy, not time consuming and free to participate in this wonderful activity below: Help ”the Crohn’s & Colitis Foundation of America (CCFA) and Shire increase funding for inflammatory bowel disease (IBD) research through the “IBD March on the Hill” program. We are asking Facebook users across [...]

This was posted under category: Coping/Support

Have you gotten useful information from this site? Please consider donating a dollar or two to help develop more useful features.

Jpouch.net – Top Crohn’s/UC Blog Honor from Healthline.com 1 Comment Since Friday, April 13, 2012, 8:20
Something Bit Me in the Chihuahuan Desert, and It Wasn’t a Chihuahua 0 Comments Since Monday, April 9, 2012, 20:13
I Have Crohn’s Disease, and I Have to Poop. 11 Comments Since Wednesday, March 7, 2012, 14:03
Loss & Gain 2 Comments Since Thursday, December 29, 2011, 21:09
Return from Pouch Paridise 14 Comments Since Thursday, December 1, 2011, 11:33

Hey Gerald, I had luck with alot of soup mainly Chunky soup with adding alot of crackers. Soup is nice and soft, rich in salt. At...

Thanks for the advice Kanaka and Terry,if you wish to send me some more info on anything such as what foods you should eat first a...

Kanaka gave good advice! It took me about a year to get over the butt-burn but I very seldom have it any more. And now I take b...

Gerald, Good luck!! You will feel a lot better after the 3rd surgery. The first few weeks of course will be tough as your body ...

Lol. Bishop got his 1st blood test at 1 year. The dr called and said we had to come in for results. WOULD not tell us over phone (...

Hi, I'm going in for my 3rd part of the surgery and can't wait to get clear the ileostomy on my side because since I had the 2n...

Jane, those are nice coments....

Hi - I am just checking in to send appreciation and empathy to everyone who posts, reads and responds to this website. Every messa...

idea of very best... he following are various urls to web-internet sites I always connect to towards the actuality we think they ...

isabgol... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world[...]...

whole psyllium husk... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around th...

I was just reading all the responses to your story. Life can be though. I have been really disturbed by the last comments. I feel ...

I decided to go the surgery route instead of those medications and side effects. I was 32 at that time. I have no regrets with tha...

Hi, as those of you who are considering a j pouch I want to let y'all know about another option that most people aren't even aware...

Thanks so much for your input. I am 36 years old and my surgeon and gi doctor both say it is better to do surgery when your young....

Carolyn, I met a few people who had surgery when they were in their teens. They have had no regrets. They are into sports, and ot...

I was 27. Naturopathy is a great idea. I was gluten free for a few years leading up to surgery. No alcohol (shouldn't be a problem...

Hi Dennis, No much help from drs on diet. We really haven't had much success in determining trigger foods. We tried the specific...

Hi Carolyn , Have the doctors tried to help with the understanding of the diet? I have had my colon out for over two years and hav...

Daniel, Thanks for your post. What age did you have your surgery? I guess maybe we just aren't there yet. It would be an easie...

Carolyn, I am saddened to learn of your son's situation at such a young age. I posted earlier today that the body will let you kn...

My son, 14 has UC for 3+ years and meds have only partially worked for him. He takes Humira weekly and flagyl along with suppleme...

Surgery is a very personal and permanent choice. By your description, if the drugs work, stay the course. If you have surgery your...

Excellent point! I think when we get the bag, we have this irrational fear of it being visible, but, as you so perfectly stated, n...

I've had uc for 7 years and am doing well now. However, I am on a lot of meds remicade, 6mp and asacol. I know there is a chance o...

I have had ulcerative colitis for 7 years. I was hospitalized on and off for several months in the beginning stages of my diseas...

Thanks Lizz for the link. Once I got over that my tight tshirts and tanks are no longer the top layer, I'm doing much better findi...

Thanks, Suzie! Let's see...I am trying to remember any of my fashion tricks from summers with the shit spout (mine ran ALL the tim...

Hey Gratefulness you in the aiming of valuable information. I would on the other side of again look in on the site. Salubrious hap...

Wow, congratulations and thanks for such an informative site. I'm fighting UC and losing this particular battle of the war at the ...

greek orthodox... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the wor...

I had my takedown 3 years ago and I have been trying for past 2 years now....no luck so far :-(...

HEllo, I had my take down 4 years ago. I was told even before the procedures that there was a 92% chance of me not having anymore ...

Christopher, that's excellent news! So glad to get your note. And I'll take all the good karma I can get. Eating more carbs a...

Also try eating alot more carbs. They absorb the gastric fluids and als moderate the digestive flow to slow it down so you can abs...

Hey Terry! The Psyllium Husk WORKS!! I'm adjusting, but it beats my medication & immodium by a LONG SHOT! Thank you so much fo...

[url=http://www.toryburchjphigheels.com]トリーバーチアウトレット[/url] [url=http://www.toryburchjpshoes.com]ト�...

Rick, My wife has gone through these surgeries, and though I should ask her first, I'm pretty sure she experienced the same thin...

Kelsey, I have been suffering from the same symptoms your brother has and I have been for 3 yrs now. I also have a family that suf...

I am the girlfriend of a sufferer of acute ulcerative colitis, AJ. This is probably going to sound like a letter to a newspaper ...

The Yerba connection is funny. You might want to send Carolyn (scroll above) a note. Her son at age 14 may need a j-pouch and...

That's so weird it's called Yerba Prima. I drink Yerba Mate tea everyday! It's the perfect tea, and now this. I will definitely fo...

Christopher, you’re welcome. The psyllium we buy is Yerba Prima brand at about $10-$11 for a 12 oz jar. We live in Oregon an...

Terry! Thanks for responding! I did the Depends thing for a while, but sleepovers, future relationships, and the traveling all mad...

Christopher, iIt looks like you and I are on somewhat similar tracks. My j-pouch connection was 3 years ago, and I have had the ...

Hello All, I browsed your page briefly and saw some people had asked about incontinence, but I didn't find what I needed on the s...

Nike Zoom Hyperfuse... [...]Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around th...

Hi Beth... I am in kind of the same world, except I have had my pouch for 7 years and over the last 12 months developed a recto-va...

Thank you so much, Dianne! That's a lovely compliment. I took Humira too, so I understand the fear and loathing. If you need some...

You are a wonderful writer. Really, you should look into writing as a career. I, also, have had my life dramatically altered by ...

hi brandi thanks for the reply ...

hi lizz thanks for the the comments about aplogizing means alot ive had no advice about UC or pouchitis i dont know anyone else wi...

HI Liam, My doctor is trying me on 3 different antibiotics on 1 month cycles. The first one was called Amoxicillin. The second ...

First off, don't ever apologize for asking questions/sharing on here! That's what it's for :) I have taken a variety of antibiotic...

Thanks for the compliments, guys! It's always great to hear that my snarky posts help people out :)...

bathroom colitis colon colon cancer Crohn's Crohn’s disease diet humor IBD in the hospital Jpouch Jpouch Medication medicine meta ostomy Photos pouchoscopy prednisone recap relationships stoma surgery takedown technology UC Ulcerative Colitis updates video your stories

Pages
UCSTORY
Digestive Health Community
Archives
- April 2012
- March 2012
- December 2011
- November 2011
- October 2011
- August 2011
- July 2011
- May 2011
- March 2011
- February 2011
- December 2010
- November 2010
- October 2010
- September 2010
- August 2010
- July 2010
- June 2010
- May 2010
- April 2010
- March 2010
- February 2010
- January 2010
- December 2009
- November 2009
- October 2009
- September 2009
- August 2009
- July 2009
- June 2009
- May 2009
- April 2009
- March 2009
- February 2009
- January 2009
- December 2008
- November 2008
- October 2008
- September 2008
- August 2008
- July 2008
- June 2008
- May 2008
- April 2008
May 2009

M T W T F S S

« Apr Jun »

1 2 3

4 5 6 7 8 9 10

11 12 13 14 15 16 17

18 19 20 21 22 23 24

25 26 27 28 29 30 31

May 2009
M	T	W	T	F	S	S
« Apr		Jun »
	1	2	3
4	5	6	7	8	9	10
11	12	13	14	15	16	17
18	19	20	21	22	23	24
25	26	27	28	29	30	31

Avatars by Sterling Adventures

J-pouch Life

Archive for May 14th, 2009

Jpouchers’ Unite for IBD Research

Have you gotten useful information from this site? Please consider donating a dollar or two to help develop more useful features.

Favorites

Jpouch.net Bloggers

Medical Info

Reciprocal

Support Groups

Your Blogs & Stories

Categories

Meta

Pages

Archives