Comments on: UC v. Crohn’s Questions http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Thu, 09 Feb 2012 01:41:43 +0000 hourly 1 http://wordpress.org/?v=3.3 By: Lizz http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-9768 Lizz Wed, 08 Sep 2010 02:59:38 +0000 http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-9768 Sorry, Beatriz, I am just seeing this. I've been through a bit more since writing this post and at this point would suggest that you keep the ileostomy and see how you feel and can deal with that. Crohn's complications with a Jpouch are not fun. I can't predict if you will be better off with an ileostomy, but that seem to be the consensus from doctors. Sorry, Beatriz, I am just seeing this. I’ve been through a bit more since writing this post and at this point would suggest that you keep the ileostomy and see how you feel and can deal with that. Crohn’s complications with a Jpouch are not fun. I can’t predict if you will be better off with an ileostomy, but that seem to be the consensus from doctors.

]]> By: Beatriz http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-7190 Beatriz Thu, 15 Apr 2010 16:36:54 +0000 http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-7190 Hi, Lizz i have struggled with UC for 5 yrs and last year i had a coloctemy and ileostomy. I was suppose to have 2 nd surgery 3 months later but i didn't have insurance and i am already in debt for the first surgery. With my business i got insurance and yesterday I finally went in to have my second surgery (jpouch and rectum removal). I was prepped and went in the OR for surgery. Two hours later i wake up shaken and scared bc a nurse was telling the surgeon stopped the surgery bc he found a fistula. I was like WTF!!! im here drugged up and can't comprehend anything this nurse was saying. After a while the nurse has the dr on the phone and he explains he stop surgery bc he believes I have CD and prefer me not to go through j pouch surgery. That I am in the 20-30% range of ppl that don't know if i have UC or CD but most likey I have CD bc the Fistula. he says its not common for someone with UC to have Fistula and mostly found in CD patients. I have been with an ileostomy for 7 month clear of Uc and feel the healthiest person alive! I am upset, fraustered bc i do not know what to do. I don't want to live with a bag and i don't feel any symptoms of CD. Is it possible that i can live with out symptom with an ileostomy or do they come when you have jpouch???? I am so confused right now. please help in some way....My fmaily says to go see another surgeon for a second opinion. what do you think? I will see the surgeon today at 3pm so he can explain everything. I hope to hear from you soon. Regards, Beatriz Monasterios Hi, Lizz

i have struggled with UC for 5 yrs and last year i had a coloctemy and ileostomy. I was suppose to have 2 nd surgery 3 months later but i didn’t have insurance and i am already in debt for the first surgery. With my business i got insurance and yesterday I finally went in to have my second surgery (jpouch and rectum removal). I was prepped and went in the OR for surgery. Two hours later i wake up shaken and scared bc a nurse was telling the surgeon stopped the surgery bc he found a fistula. I was like WTF!!! im here drugged up and can’t comprehend anything this nurse was saying. After a while the nurse has the dr on the phone and he explains he stop surgery bc he believes I have CD and prefer me not to go through j pouch surgery. That I am in the 20-30% range of ppl that don’t know if i have UC or CD but most likey I have CD bc the Fistula. he says its not common for someone with UC to have Fistula and mostly found in CD patients. I have been with an ileostomy for 7 month clear of Uc and feel the healthiest person alive! I am upset, fraustered bc i do not know what to do. I don’t want to live with a bag and i don’t feel any symptoms of CD. Is it possible that i can live with out symptom with an ileostomy or do they come when you have jpouch???? I am so confused right now. please help in some way….My fmaily says to go see another surgeon for a second opinion. what do you think? I will see the surgeon today at 3pm so he can explain everything. I hope to hear from you soon.

Regards,

Beatriz Monasterios

]]> By: jm http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-2784 jm Sat, 18 Apr 2009 15:35:55 +0000 http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-2784 'What if's' can be really destructive, I spent ages agonizing over a whole bunch of what ifs before finally deciding on my surgery. I finally found one what if that was very constructive, I asked myself 'What if it all goes well?" - decision made. ‘What if’s’ can be really destructive, I spent ages agonizing over a whole bunch of what ifs before finally deciding on my surgery. I finally found one what if that was very constructive, I asked myself ‘What if it all goes well?” – decision made.

]]> By: Dennis http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-2782 Dennis Sat, 18 Apr 2009 13:28:33 +0000 http://www.jpouch.net/2009/04/18/uc-v-crohns-questions/#comment-2782 Good post. I especially like your point that you can't live your life in fear of the what-ifs. People tell me every day about their concerns with surgery, but I found that the possibility of a better life was enough for me to give surgery a shot. Take care, Dennis Good post. I especially like your point that you can’t live your life in fear of the what-ifs. People tell me every day about their concerns with surgery, but I found that the possibility of a better life was enough for me to give surgery a shot. Take care, Dennis

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