Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

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by Megan on Saturday, April 11, 2009 11:03

This entry is filed under: Coping/Support

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I've lived with a J Pouch for a long time now, and all I have to say to anybody who's thinking about going through J Pouch surgery...

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avoid sugar totally and that solves tooth related problems and infections/ itches related around the pouch. My experience....

Joy, First of all I have two young children at home, that is why I use Kandoo wipes. I had tried pretty much all the other types b...

I am suppose to have the surgery soon. I am so afraid . I really am depressed now . I feel like there are so many risks with this ...

I have ulcerative colitis and for the last year and few months my disease has not been resposive to medicatons and doctors are say...

Dennis, any suggestions you have will be greatly appreciated. What are your diet tricks? Do you now do the same ritual after e...

Joy, First off lets deal with the initial burn. For me, Kanndoo wet wipes worked good because they are fairly wet. First I wiped w...

My name is Kim. I am 42 years old. I was diagnosed with UC Ulcerative Colitis in 1997, a month after having my first child. It was...

Hi Merry,I'm 18 months since my surgery and have seen blood a couple times. Most recently was after I was on a flight to Las Vega...

Thanks for your suggestions!! This is a great site. When you live with the issue we know more than anyone about what helps....

I didnt see blood for a while, then every once in a while or for a few days in a row there would be a liitle blood just on the tis...

Hi Joy, Saw your comment and was wondering if you have tried benefiber? I was like what you are going through, but benefiber help...

Michael, Any suggestions to help the butt burn. My takedown was August 2011. I have an average of 8 bowel movements daily and...

Hi Merry, I am 18 months out from my reversal. I notice some bright red blood on the toilet paper at least once or twice a week a...

So coming up on two years mark for the take down of my jpouch. feeling great but last week (one day) and this evening I have notic...

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Hi Wendy, thanks for your reply, been lazy and still haven't got the blood count done, but arranged the bone scan and physio so I'...

Is she planning on having the j-pouch surgery now? I've had one for 7 years. If you have any questions let me know. Jeremy...

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Mary, Try ILEX for your bottom. It's a skin protectant paste and has been a lifesaver in my life....

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Hey, Dianne. Glad you find the site helpful! First off, you are going to the best place for this surgery, so take solace in that. ...

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Hi. 35 yr old daughter imminent surgery to remove colon and acquire ileostomy. Already has colostomy. Crohn's since age 5. Pne...

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Barb, You're welcome. I'd be happy to tell you more about my experience. The surgeries went well, and I'm recovering pretty well....

John, thank you so much for your reply! It is very helpful. Did Dr. Costedio use the robotic method to complete your surgery? If...

Reading your story was like reading my own bio. this website actually calms me down when I start getting frantic. I'm at the cros...

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Barb, I'm from the Cleveland area and had my first surgery on Haloween. I had a single port proctocolectomy with j-pouch and ileo...

Hello megan and Mark, I was looki...

Thank goodness I found this blog. Been searching quite a bit for this type of information.... [...]Jpouch Life: Stories of Coliti...

Hi Heather, Sorry to hear you've had so much trouble. I have not heard of PTQ implants before, maybe because I haven't had too m...

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Hi Wendy, I've also had a J pouch long term, since 1991, things were fine, until the specialist wanted to put in some PTQ implan...

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Hi Mark, I know a guy who had the same op as you, aged 9, now 30, has lots of different girl friends, no issues in that department...

My husband will be having the jpouch construction surgery this coming spring. we will be going to the cleveland clinic and we wer...

glad you are stable now, Brianna -- keep it up! That is quite a story! Stay healthy, hon....

hi, ive had crohns for only a year and a few months i was diagnosed around aug. 2010 and dec. 10th 2010 i had my surgery. it all s...

Trying to get a website together for us Gay guys who are experiencing the same life experience … Please contact me with you stor...

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