Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

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by Megan on Saturday, April 11, 2009 11:02

This entry is filed under: Coping/Support

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Sara, I just saw your comment from June that says you were having another leak repair, so there is part of the answer to my questi...

Dear Sara, I just read your long, excellent post from February 2010. It is devastating you went through so much, poor baby. I sa...

Hey everyone, I've been feeling some joint paint in my fingers, and I know that it can go hand in hand with colitis. Theres some ...

Sergio, A J-pouch is actually created out of your small intestine inside your body (no bag on the outside, though you might have ...

I have UC for 4 years now.I'm on Asacol and Azathioprane,i don't eat process food,spicy,or lactose.I only drink water.I don't have...

I am not here to promote any product, I am suffering from crohn's disease for years, I found some basic information on crohn's dis...

I am suffering from crohn's for years, for more information about crohn's disease and my experience, please visit www.crohnsdiseas...

Ok I had posted on her several months regarding my 9 year old son who has ulcerative colitis. We have been to see his surgeon and ...

I live in Oklahoma, but I went to Mayo Clinic in Rochester. I researched through US News & World Report where the best GI doct...

Hi Jackie, I am also going back to Cleveland for my 2nd of 3 surgeries in August, they are wonderful there as you said....

Sara, I have been away from the computer for quite a while now and did not know you were going through this. My thoughts are with...

Does anyone know if there is a charity that collects and distributes ostomy supplies to people that may not have insurance or may ...

Sara, I have been watching your blog since you sent me the link, I have told you this on facebook, but you truly are an inspirati...

Have you tried Serovera? I was taking a mesalazine but the side-effects were too much. I like you have tried the full range of al...

Colleen, Although my surgeon initially said 2 weeks for fiber, he asked me start taking it after 3 days. I highly recommend benefi...

I was going 8-10 times a day in the hospital after the surgery. I'm down to 6-8 or so now. I'm trying to get used to eating smal...

Thanks for the reply Michael, hope everything is going well with your takedown. Are you going to the washroom often?...

I had mine Tuesday morning too! We're takedown buddies! Butt burn is caused by the digestive juices that break down the food n...

I had my takedown surgery on Tuesday, and I can't take this anymore! I am in the washroom every hour or so. My surgeon told me to ...

I could go 7 days with no problems at all, I stopped using the paste and that made a big difference for me, and I also wore the be...

Hello Michael. I had the reconstructive surgery back in 2003 at 49 and have done fairly well, very little pouchitis. Based on ov...

This page that you made has been a great help to me! I was diagnosed with FAP at 19, and recently at the age of 20 had a proctocol...

Was wondering if anyone else had complications with blockages caused by adhesions after their first surgery? I had my takedown Tu...

Hi Becky, what is your email?...

Hi Bruce, feel free to email me at br3vin@gmail.com so we can track this down....

I like this site...great info. Will keep it as a favorite. Is there a facebook page?...

Kenia, I had my final reversal done in Dec. 2008, and had the same issue for the first few months while my body adjusted. I think...

Laura, I live in Montana, where there is absolutely no colorectal surgeon in the tri-state area, and I was referred out to Pacifi...

Hey Brevin, I am so happy I found your comments....I am still in aww over finding this thing called the Jpouch ! I am a 40 yr old ...

I am a 27 years old and had my total colectomy with ileoanal resevoir done when I was only 14. I started when i was 9 with ulcerat...

Cramps usually happen at various times in late afternoon to early evening (3-7pm). I go to the bathroom early morning., then once ...

There are a few odd things here: How often are the cramps? Do you go to the bathroom a buttload (ha! butt load)? Do you take that...

Only black beans occasionally, but I go to the bathroom so much it doesn't matter if I have a little more gas :) I've tried Beano ...

Thanks for the kind words, John. It'll all be totally worth it!...

Holy crap you eat beans! You're braver than I am! I avoid the gassy foods, but other than that your diet sounds ok. Do you eat fru...

Thank you Brevin, Your a real inspiration. I remember reading your first article about the ordeal with your first surgery. I rea...

Whey protein shake in Rice milk of soy milk when I wake. Later in the morning I'll have cereal or oatmeal or English muffin. Lunch...

Hmm... what's your average diet like? What do you tend to eat and tend to avoid?...

Awesome! As soon as we find a cure for Crohn's and Colitis we'll use medical science to figure out where babies come from!...

we found some of these in the attic in my freinds house!...

Hi Brevin, My take-down was November 2009, so I'm about 8 months post surgery. I'm having a difficult time slowing down my system...

Thanks, Megan, and congrats on your adorable baby girl!!! What a sweet heart! I probably will go ahead with the cuff surgery-I t...

Congrats on your sweet baby!!! She is so perfect! So happy for you guys :)...

Hi Shelly, Has your Dad been diagnosed with Pouchitis? His pouch may have pouchitis and that could cause the 6 BMs in 45 mins. ...

Lizz, what a journey you've been on trying to gain health. What is hard to wrap my mind around is that you may not have CD? And...

Jackie, I'm with ya-I'm definitely leaning in that direction. I'm SUPER tired of dealing with all this crap. I feel like the unive...

Lizz, Don't you ever just get tired? I mean you've had surgery like a billion+ times? I know that as sick people we all long for ...

Thanks so much for your brave story and pictures. My son has a temporary colostomy which is going to be reversed in a week. I wa...

My dad is having lots of problem with his J pouch surgery and he has lost so much weight. My aunt, who was a GI nurse, says there...

Hi Bruce. I don't take any meds aside from Vitamin C and Metamucil when, sadly enough, I crave the taste (Orange Metamucil FTW!). ...

Hi Mark, I had my surgery 2 years ago and came across your blog tonight and think it is great, would have been great to have somet...

I just wanted to let you know how much this has helped me! I am now 6 weeks out from my first surgery (I'm having a 2 step surgery...

A friend recommended that I check out your site. I'm happy that I'm here....

Ashley, You ROCK!!!! Thanks for the photos. I am a Nursing Student Grad and was researching and saw your pictures. Thanks a lot....

I would love to know about your diet. Do you take any meds and do you take a fiber supplements? I badly want to gain 15 pounds, I'...

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