Archive for March, 2009

Gas after 1 step surgery

Tuesday, March 31, 2009 13:01 7 Comments

We’ve recently had Christine and Ricardo post some comments. Ricardo on March 17 had 1-step surgery due to FAP. So he bypassed having the stoma and went straight to using the jpouch. He is having some gas and pain. Has anyone had the 1 step and experienced this type of pain and gas about 2 […]

This was posted under category: Coping/Support Tags: ,

Greetings from the West Coast.

Wednesday, March 25, 2009 17:13 5 Comments

So it’s been a while since I’ve gotten my blog on. As most of you know, I was once a semi-obsessive poster, so least you fear I’d fallen off the face of the earth, I’ve reappeared to tell you that, no, I haven’t, I’ve just moved.  Cross country in fact, to Oregon. It’s really beautiful […]

This was posted under category: Coping/Support

Welcome aboard Jamie!

Saturday, March 21, 2009 10:18 No Comments

We want to introduce Jamie to everyone. She is going to be sharing her story and journey back to health on this site, as well as on her personal blog.  We are working on getting her set up as a blogger, but in the meantime, she sent us the most incredibly warm and positive email […]

This was posted under category: Coping/Support

Camera: From the Colon to Eye Socket

Thursday, March 12, 2009 12:49 2 Comments

This is cool: Rob Spence, a film maker who damaged one eye as a child, will install a camera into the socket where his eye used to be. A fan of the 1970s television series “The Six Million Dollar Man,” Spence said he had an epiphany when looking at his cell phone camera and realizing […]

This was posted under category: technology Tags: , ,

Horseback riding and a J-pouch

Thursday, March 12, 2009 8:14 38 Comments

A fellow J-Poucher (Jeffrey in LA) wrote us a personal email and asked us the following question.  Since we didn’t have an answer for him, we thought we post the question here and see if anyone has any thoughts: Jeffrey asked: A friend invited me to go horseback riding but I’m worried it make me […]

This was posted under category: open thread Tags: ,

March is Colon Cancer Awareness Month

Wednesday, March 11, 2009 11:28 28 Comments

Recently, Lisa wrote us and shared her FAP to J-Pouch Story.  FAP (Familial Adenomatous Polyposis) is a genetic disorder that causes polyps and often cancer in the colon. It aggressively runs in families as you can see in Lisa’s story, but there is little awareness of the disease in the public.  With March being Colon […]

This was posted under category: cancer Tags: , ,

Relationships & Chronic Illness

Monday, March 9, 2009 6:39 4 Comments

The NYTimes publishes articles about “Modern Love” that I often finding touching and interesting take on what relationships are about. I just read this article that is written by a man whose wife became a paraplegic in a car accident. It’s a wonderful story and I think it’s relevant here for two reasons: 1) it’s […]

This was posted under category: relationships Tags: ,

Update from the ATH

Thursday, March 5, 2009 7:53 14 Comments

Hey! It has been a busy few weeks, months for Mark and myself. We’ve now been in Athens (ATH), Georgia for two full months!  Seems so much longer, doesn’t it?  We really have taken on a new life here and it is going so well.  The first and biggest thing – we are no longer […]

This was posted under category: Coping/Support

Abby’s Update: Cryptitis and a Defocography Study

Tuesday, March 3, 2009 10:40 24 Comments

Here’s the latest for me: We had ended my weekly dilations on February 13th, but the following week things got bad for me again. I have these symptoms that my surgeon is having a hard time figuring out. 1) I can’t control my straining when I have BM’s and my body does this type of […]

This was posted under category: Coping/Support