Pouchoscopy: new entry on Wikipedia

by on Tuesday, January 27, 2009 15:07
This entry is filed under: research
Pouchoscopy has been added to Wikipedia

Pouchoscopy has been added to Wikipedia

Reading Abby’s update from yesterday made me realize: there’s no Wikipedia page for pouchoscopy! This might not seem like a big deal, but when you consider that Wikipedia results are typically in the top 3 on Google for any term-specific search, you can begin to see why it’s important.

Well, luckily it’s a wiki, so I did a little poking around and found a few articles that use the term pouchoscopy, articles from respected medical journals. Hopefully the new Wikipedia entry is approved by the many administrators and users of the great online encyclopedia, and it stays there to help future J-pouchers.

You can read the new article here, and see my edits to the J-pouch entry here (I clarified the three-part surgery, ’cause that’s what I had), and see the last sentence in colonoscopy referencing the pouchoscopy here.

Mark and Megan have done a great job de-mystifying these diseases through their photos and this site. I hope my contribution to Wikipedia adds another level of transparency to these diseases much the same way.

These posts might also help out:

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15 Responses to “Pouchoscopy: new entry on Wikipedia”

  1. avatar

    WholeHeartAndSoul says:

    January 27th, 2009 at 6:50 pm

    Way to take action! That’s awesome.
    Abby

    [Reply]

  2. avatar

    Eric says:

    January 27th, 2009 at 7:53 pm

    Thanks, I really felt like something needed to be done. I’m just glad it was so accessible, that is, the thing to do.

    [Reply]

  3. avatar

    superman says:

    January 28th, 2009 at 6:46 am

    It’s a good start but isn’t a pouch essentially a replacement for the rectum not the colon, this would make a pouchoscopy much more like a proctoscopy than a colonoscopy (indeed in my experience they are, I’ve had both flexible and rigid proctoscopies and pouchoscopies but never a rigid colonoscopy, my eyes are watering already just at the though of it).

    Gosh, I hope that doesn’t sound like I’m trying to belittle your efforts, I”m not I’m just really anal when it comes to pouches:-)

    [Reply]

    avatar

    Eric Reply:

    I don’t think so, seeing as how I don’t have a colon and I have a rectum. That’s just me, though. I hope people add to the entry.

    [Reply]

  4. avatar

    superman says:

    January 28th, 2009 at 9:21 am

    Eric,
    If you have a pouch you do not have a rectum, you might have a little of the rectal cuff that the pouch is attached to but the rectum is history (the surgery is called restorative proctocolectomy for a reason)

    [Reply]

  5. avatar

    Eric says:

    January 28th, 2009 at 9:41 am

    Ok, I think I see your argument now. Let’s see how this sits with you: perhaps you take issue with my “colon-like” sentence? First of all, not everyone has a proctocolectomy, some surgeons prefer to do subtotal colectomies. So, would a definition that rewords it as “a pouchoscopy is *like a* colonoscopy … and then change the next part to say “replacement for the colon/rectum”… See, my understanding is that the rectum is the section of the Large Intestine that stores stool. The Colon is the portion of the large intestine that absorbs water. After approximately a year (so says my surgeon) the J-pouch starts to transform and take on more of the characteristics of the large intestine, thus absorbing more water.

    Pouchoscopy and Proctosopy are both somewhat fabricated terms, referring to a scope of a section, or a scope of what’s left in a person. They are both endoscopies. I suppose my main argument is “pouchoscopy” is a more accessible term, and my goal (and the goal of this site) is to make these diseases more accessible.

    Please let me know what you think, and I’ll revise the wikipedia entry. Thanks for your comments!

    [Reply]

  6. avatar

    Eric says:

    January 28th, 2009 at 9:46 am

    PS, you’re right about me not having a rectum. I was mistaken on that point. Thanks so much for the clarification!

    [Reply]

  7. avatar

    superman says:

    January 28th, 2009 at 11:12 am

    Eric,
    I think my main issue is describing it as like a colonoscopy. While mechanically it is similar to the patient they are quite different beasts. A colonoscopy is highly invasive and often requires the patient to be sedated, a pouchoscopy is much less invasive and requires sedation much less frequently – it has much more in common with a flexible sigmoidoscopy. For anybody reading the article a description such as that would make the procedure much less scary.

    I ought to add that when Sir Alan Parks invented the procedure the pouch was designed to fulfill the job of the rectum not the colon, it is only in the last 10 years or so that knowledge about the changes in the villi in the pouch has become commonplace.

    Thanks for listening

    Clark

    [Reply]

    avatar

    Eric Reply:

    Ironically, I just returned from a follow-up with my surgeon. I showed her the Wikipedia article, and she didn’t take issue with anything. Could you copy the article and reword it as a comment how you see fit? I can then make the changes you suggest.

    [Reply]

  8. avatar

    superman says:

    January 28th, 2009 at 11:47 am

    A pouchoscopy is a minimally invasive procedure to examine an ileo-anal pouch, a replacement for the rectum which has been surgically created from the small intestine (ileum) as a cure for ulcerative colitis and as a treatment for other inflammatory bowel diseases such as Crohn’s disease, a preventative measure in certain genetic illnesses such as FAP or HNPCC or as a procedure in the treatment of colon cancer.
    A CCD camera or a fiber optic camera on a flexible tube is passed through the anus. It may determine the integrity of the ileo-anal pouch (hence the name pouchoscopy), a necessary step in preparing for reversal of the temporary ileostomy, or takedown surgery.

    There’s obviously a lot of Wiki markup needs adding to this and I’m not sure about the last part. This may be a cultural difference but in the UK pouchoscopy is very rare before takedown, pouhogram does the task of determining pouch integrity. Pouchoscopy is normally part of our routine follow up (I have one every 3 years) and is used to confirm diagnosis of pouchitis and cuffitis.

    [Reply]

  9. avatar

    Eric says:

    January 28th, 2009 at 12:27 pm

    I like it! Especially how minimally invasive it is, you’re right, I overlooked how scary sounding a colonoscopy can be. I just was trying to relate it to a more well-known procedure. I’ll make the changes, thanks.

    [Reply]

  10. avatar

    Mary Ann Kerr says:

    April 21st, 2009 at 6:38 pm

    I just discovered this website tonight and am I grateful!! I had a jpouch surgery in January, 1996. I’ve been fine for most of the time but lately I’ve had a lot of leakage, mostly in the evenings. My gastro guy wants to do a sigmoidoscopy in his office this week to see if I have pouchitis or what’s going on. I am a wreck because at the time of my surgery I was told that I was NEVER to have rectal procedures. I as wondering if anyone out there has had this procedure and was it done with sedation???? Please respond .

    [Reply]

  11. avatar

    eric says:

    April 21st, 2009 at 10:06 pm

    Hello Mary Ann, Ok here’s the deal, the sigmoidoscopy is a procedure to explore via camera the sigmoid colon and etc. So, if you’ve had a jpouch surgery, I’m assuming you have no colon, therefore you have no sigmoid colon either. Alright, you might be having what we call a “pouchoscopy” (which might be how you found this post, good for you!) in which case your GI doc or surgeon should ALREADY BE AWARE OF YOUR SPECIAL CIRCUMSTANCE. If not, wait, and get them up to speed on what’s what.

    As to sedation, I’m a baby, and I need sedation. There is no “normal”. It’s only what works for you. So please read up on what’s happening and if you have more specific questions or would like to share your story, we would more than welcome it.

    [Reply]

  12. avatar

    enciclopedia says:

    January 2nd, 2012 at 5:25 am

    enciclopedia…

    [...]Jpouch Life: Stories of Colitis, Crohn’s, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world[...]…

  13. avatar

    surfing guide says:

    February 29th, 2012 at 3:16 am

    surfing guide…

    [...]Jpouch Life: Stories of Colitis, Crohn’s, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world[...]…

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