Workin’ It, J-Pouch style.

by on Thursday, January 22, 2009 17:35
This entry is filed under: updates


So, in my last post, I was bitching about pooin’ my pants.  I am HAPPY to update to you, my J-pouch friends, that this was in fact NOT a flare, rather a side-effect of one of my new medicines.  Nowhere do I recall reading on the label, “may cause one to crap one’s pants. Oops.”  But, indeed abdominal pain, diarrhea, et al. were side-effects.  I have since stopped taking it and have been continent and happy for several days now! Also glad that no scope was needed. “The dreaded apparatus!” as Kramer would say.

So, I am in Portland, apartment and job-hunting and had a nice interview this morning. When asked for a “candid” reason why I left my last job, I replied, “I had emergency surgery.” I did not go into detail, because explaining that I was having surgery for a twisted J-pouch required much too much explanation! She then followed-up with, “Are you doing okay now? Is this something that would prevent you from working?” I paused…answered, “No.” I wasn’t exactly forthcoming about my GI distresses, but I have been able to work for the past 6 months.  It’s hard to decide how to handle these situations. I can work now. There is the possibility that I will not be able to at some points in the future, but not being a fortune-teller, I kept my mouth shut.

I’m also on the hunt for a good GI out here, before I officially move. The one my current GI recommended is not in my insurance “network”. God bless the insurance companies! So, the search continues. Feel free to recommend who manages your guts in Portland.

Hope you are all having a good, adult-diapers-free week!

And just an added note about the aforementioned twisting of the pouch. NOT common. This happened b/c for some reason or other, I did not make the scar tissue most folks do that basically holds the pouch in place. It happened once, and was “untwisted” by my surgeon, who chose to avoid surgery to “tack it down” to my tailbone unless it happened again. It did happen again…So I had surgery this past April to fix it and so far so good. Very painful, but again, not at all common.  I asked my surgeon once if this could be because I did lots of yoga. He kindly giggled and said, “No.”

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2 Responses to “Workin’ It, J-Pouch style.”

  1. avatar

    Brevin says:

    January 22nd, 2009 at 9:19 pm

    Hi Lizz.
    Uhm. Can you elaborate on “twisted J-Pouch”? I haven’t heard of that before, and the mental image I’m having isn’t that pleasant. How did that happen? Is it normal? I’ll feel a bit better if you were doing gymnastics during a tornado and oops, there it twists. But if this was from something like a sneeze, I”m a tad worried.


  2. avatar

    Sarah Henning says:

    June 28th, 2009 at 4:46 pm

    Lizz, I am so happy that I found your post! I have just been diagnosed with a twisted pouch and have been searching for someone, anyone, who has had the same and been happy after it was un-twisted. My un-twisting surgery is scheduled for July 17, 2009 at the Cleveland Clinic. I am very nervous about this one. I can not believe that I will be going back to a loop for 3 months and all the pain of a 4th abdominal surgery! How are you doing now that you are untwisted? Was it more painful then the surgeries the first time around? Its funny that you mentioned having accidents, I am having them more and more. I hope repairing the pouch has made your life easier. I need a little hope for my future with this pouch! Can’t wait to hear from you…Sarah


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