Care Pages
by Jenelle on Monday, January 19, 2009 19:28This entry is filed under: Support Systems
I know that, during my last hospital stay, my partner spent a lot of time keeping a lot of people in the loop about my condition. This time, I’m hoping to be able to do more of it myself, and I’m thinking of trying out this new site I found, Care Pages, which allows you to update your progress and have family and friends leave messages. Sounds like an effective way to communicate about your condition to all those who are concerned. The site is Care Pages.com and here is a story about how it got started and some people who have used it Story: Web site helps patients families, medical providers communicate
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Megan says:
January 20th, 2009 at 7:24 am
This is a great service I bet, I am excited to hear how this works for you and your family! Actually, the original flickr.com journal of Mark’s photos were simply created to share with our family/friends so that they knew what he was going through and we could update them – I added photos b/c I thought it was really important to show the reality of the situation and to help them feel more comfortable with his situation since they knew what exactly was happening underneath his clothes since the surgery is kinda confusing to understand at the beginning.
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Jenelle says:
January 20th, 2009 at 7:20 pm
I am actually a little disappointed that, after trying to set this up, I found out that other people have to become members to view it — I guess there are privacy issues to consider, but I think they really should have an option to allow anyone to access it if the user consents.
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Megan says:
January 21st, 2009 at 4:21 am
Hmm..yes, membership will slow people down from wanting to use the patients site, b/c I know certain people in my family wouldn’t know how or wouldn’t take the time become a member. Also, I wonder does it send email alerts to people who are in your network, b/c people won’t just think to check-in on the whole….I think one bonus our site has with sharing stories the way we do shows the patients family and friends that there are other people and families going through the same thing – I think helping people better understand and accept the patients situation.
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Eric says:
January 21st, 2009 at 10:12 am
What will happen if you set up one membership and give everyone that login information? Other ways of contacting people to consider are: Using Twitter and having everyone follow you on their cell phones (although it’s a bit advanced in technology for most), or you could setup Gmail to autoforward emails from certain people to the email address of your cellphone — I did this by using the + trick with gmail: you can add a plus and any word after it to your email address and it still comes to you. So it looked like eric+hospital@gmail.com and those who emailed that address knew they were sending an email to my cell phone and that I’d see it in the hospital. Ok, none of these ideas are good. We should set up a service that takes care of all of these things for people.
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