Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

Archive for January 7th, 2009

UC to J-pouch to Crohn’s

Wednesday, January 7, 2009 3:52 7 Comments

I guess it all started when I was about 15 years old. I had been to my grandmother’s house for a visit, then dance class, then the non-stop vomiting and uncontrollable bloody diarrhea started. I begged my mother to, “please, please not take me to the hospital,” but by the time she was dragging me [...]

This was posted under category: Photos Tags: auto-immune diseases, colitis, Crohn's, Jpouch

Have you gotten useful information from this site? Please consider donating a dollar or two to help develop more useful features.

Frustrating Decisions…And Not Giving Up 0 Comments Since Thursday, May 23, 2013, 13:42
Post-Op/Pre-Op Op Ed 10 Comments Since Tuesday, April 2, 2013, 8:16
FML(A) 8 Comments Since Monday, March 4, 2013, 10:13
The Architecture of my Ass 7 Comments Since Monday, February 11, 2013, 8:46
Where it Belongs, huh? 11 Comments Since Wednesday, January 23, 2013, 16:25

It's fantastic that you are getting ideas from this piece of writing as well as from our discussion made here....

Hey Gretchen, I had my colon removed three years ago. I took me about 2 1/2 years to really figure my diet out to a science. You a...

I know this if off topic but I'm looking into starting my own blog and was wondering what all is required to get set up? I'm assum...

cash advance English Medium Cbse Board Colleges In Ashok Vihar Delhi A single way is to protected a sequence of payday loans, eac...

Hi Marie, I have been reading the posts on here I have learned some great information but don't really relate to most of them bec...

If you are looking strictly for jojoba oil, Now Foods has a very good selection. Jojoba treatment can get rid of acne pimples, el...

you will have an important weblog right here! would you like to make some invite posts on my weblog?...

Hi Gretchen I have FAP and had my surgery in 87 high school graduation present :) More than likely the pain is coming from y...

Hi Mike! My name's Pedro. I am 40 years old and I'm from Portugal. I have been colostomized for 4 months. I have been having troub...

Thank you, Christal, for the lovely comment! How are you doing with your Crohn's?...

I thoroughly enjoyed reading your post. I too have been a patient of the Cleveland Clinic for the past two years and they are AMAZ...

Thank you. Sometimes it seems like I am going to jump through the ceiling from all the pain. When I tell my Dr. He just says its n...

Gretchen, Sorry to hear you had to have the surgery and the stage but thankfully not stage 4! I had the same s...

I don't remember my pain being associated directly with using the bathroom. It was more chronic. It is dependent on age, and indiv...

I was diagnosed with stage 3 colon cancer in May. I went in for surgery in June. They took my whole colon and my rectum. I had FAP...

Molly, thank you so much for the lovely compliment :) That's obviously very nice for a writer-nerd to hear! (PS I might be schedul...

Thank you for the supportive words, Pramod :)...

Hi Lizz. Don't worry. Have patience. I am sure that the things would improve over period of time. You have stay strong. I have had...

It's so said. It sends shivers down my spine. Abby was such a strong willed person. I can feel the pain as if someone very dear to...

I just read Abby's "Whole Heart and Soul" blog, and all of her entries here. There are no words to express how sorry I am she pass...

Hi Lizz. First, thanks for writing as honestly, humorously, openly and creatively as you do. You have a great gift and we folks ou...

Dennis, Good luck. I'm about 13 months from first surgery and 10 months from the take down. The surgery gave me my life bac...

I really like your blog.. very nice colors & theme. Did you design this website yourself or did you hire someone to do it fo...

I want to thank you for the information. It has been very helpful, as I get ready for my surgery on Monday (April 15, 2013). ...

Valuable info. Lucky me I found your web site unintentionally, and I'm stunned why this coincidence didn't came about earlier! I...

Thanks for the well-wishes, Kelly! I'm ready for something to be easy! Do you try Calmoseptine for the rash? It's maybe my favorit...

Happy to be of assistance, Ciara! Also check out jpouch.org (a good message support board) and girlswithguts.org....

After days looking up stuff to do with the jpouch (which I have 5 years now) since I was 15 and haven't researched much for some r...

Liz, I had my large colon removed from ulcerative colitis 2006, and then suffered until 2011 with severe rectal pain, so lived o...

I think you're right, Doug. I'm def. leaning towards the re-do. I'm hoping for the fresh start! How awesome would that be? I'm hop...

Funny..."post epic poo" pic? Sounds familiar? lol. my 2 cents? 85% is a dang good percentage. With my condition, I hear...

Thanks, Pam! Great to hear from another CC patient! I would love to talk to you about your experience with the revision if you hav...

Hello Lizzi I am home recovering from a recent (March) pouch revision surgery with Dr Remzi. He is an amazing, talented surgeon....

Thank you for the awesome reply! Please keep up with us and stay in touch :)...

Lizz, I think we have a lot in common (including language, symptoms and humor. Keep it coming! Thank you!...

Hi, Val. I'm a blogger on this site. I live in Dallas and am working on starting up a FUN support group in conjunction with the no...

John W, my jpouch is old....i had it done at 15 and am 51 now (you do the math...LOL). I had same thing happen shortly after my s...

I really need to hook up with anyone who is in the dfw area....i have been a jpouch patient since 1976 and always felt i was the "...

Thanks, John! Surgery is scheduled for March 21, so I'm sitting tight on antibiotics and pain meds till then. I'm actually keeping...

Thanks, Doug! That's so nice of you :) I'm looking forward to getting better too! Honestly, I feel pretty okay on the antibiotics ...

Hi Lizz, I just read this! I hope you're doing better and have had some progress with corrective surgery. That is awful about FML...

I too have lived with UC for 30 years and I have been symptom free since 2004. November15 I had my scope and was told I had a 4 cm...

Liz, That's great that Dr. Shen is always available for you. I've said this before but you're attitude is awesome. We're all ...

Hello there! This is my 1st comment here so I just wanted to give a quick shout out and say I really enjoy reading your posts. C...

Thank you, sweet Julie, for those very kind words :) I'm sure I speak for the other bloggers when I say I'm thrilled that our stor...

So sorry, Lizz. I stumbled on this blog about a month ago and have been amazed at the stories on here. I have UC, but so far it ha...

wise choice. Wait for remzi to probe your nether regions after you turn 30!!! ...

Thanks, Denise! I know I am in good hands so not terribly concerned at this point. Not making the trek until April. They offered...

Looking for anyone that has had to have plastic surgery involved to heal a chronic sinus and wound from where the jpouch was remov...

Hey lizz. so sorry to hear about your fistula. Remzi is my CC surgeon. I absolutely luv him. In fact, I just had another EUA su...

Liz, It sounds like there are a lot of reasons for you handling new problems better today than in the past? It's sad that you ...

Hey Guys, Thanks for the information. I am getting ready to be with the guy I have been dating for the first time. He is ...

Hey girl :)) Just read your blog, I'm 23 i live in Atlanta and have done the whole UC >totalcolectomey > (for 2 yrs) an ille...

Where are you going to the dr/for surgery? If you still have your rectal cuff, technically, it should be possible to have a J-pouc...

Question i forgot to ask is would my tail end muscle be to lazy after the length of time i've had pouch ???...

bathroom colitis colon colon cancer Crohn's Crohn’s disease diet humor IBD in the hospital Jpouch Jpouch Medication medicine meta News ostomy Photos pouchoscopy prednisone recap stoma surgery takedown technology UC Ulcerative Colitis updates video your stories

Pages
UCSTORY
Digestive Health Community
Archives
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- November 2012
- October 2012
- June 2012
- April 2012
- March 2012
- December 2011
- November 2011
- October 2011
- August 2011
- July 2011
- May 2011
- March 2011
- February 2011
- December 2010
- November 2010
- October 2010
- September 2010
- August 2010
- July 2010
- June 2010
- May 2010
- April 2010
- March 2010
- February 2010
- January 2010
- December 2009
- November 2009
- October 2009
- September 2009
- August 2009
- July 2009
- June 2009
- May 2009
- April 2009
- March 2009
- February 2009
- January 2009
- December 2008
- November 2008
- October 2008
- September 2008
- August 2008
- July 2008
- June 2008
- May 2008
- April 2008
January 2009

M T W T F S S

« Dec Feb »

1 2 3 4

5 6 7 8 9 10 11

12 13 14 15 16 17 18

19 20 21 22 23 24 25

26 27 28 29 30 31

January 2009
M	T	W	T	F	S	S
« Dec		Feb »
	1	2	3	4
5	6	7	8	9	10	11
12	13	14	15	16	17	18
19	20	21	22	23	24	25
26	27	28	29	30	31

Avatars by Sterling Adventures

J-pouch Life

Archive for January 7th, 2009

UC to J-pouch to Crohn’s

Have you gotten useful information from this site? Please consider donating a dollar or two to help develop more useful features.

Favorites

Jpouch.net Bloggers

Medical Info

Reciprocal

Support Groups

Your Blogs & Stories

Categories

Meta

Pages

Archives