Jpouch Life: Stories of Colitis, Crohn's, IBD, Ostomy, Ileostomy & J-Pouch Surgery from around the world

Mark 15 month side view

by Mark on Sunday, January 4, 2009 19:48

This entry is filed under: Coping/Support

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Me too Johnny!...

Donna, I totally see where your coming from on getting a second opinion. Right now I sort of feel like I don't know where to start...

sigh. oh, Sara, this is just an unbelievable bummer. don't hate me for saying this: I think you should obtain all the surgery n...

omg! u poor thing!! And I thought I had it bad with the pouchitis... I hope everything works out for you! And you're right, just...

this is bullshit! pisses me off!...

supergirl! sharing such experience notifies purity of sole. bravo! God Bless You......

Hi, Thanks for the post. You've helped me a lot....

Jackie talked to me a little bit today on Google chat, but she was really in and out from the medication. She mentioned something ...

Any word on how she is doing?...

I understand exactly what you are going through, as I have the same diagnosis. I'm dealing with acceptance and trying to find (in...

Hey guys, just wanted to let everyone know that Jackie Z. is going in for the second step of her three-step J-Pouch surgery today ...

LORRIE, I POSTED THE FOLLOWING IN REPLY TO YOUR FIRST POST SHOWN ABOVE, BEFORE I READ THIS ONE, SO I COPIED IT HERE. PLEASE KEEP ...

Lorrie, I am so glad to hear your son is doing better. I disagree with the others who are in favor of the surgery right now. I ...

I feel your frustration with energy. Even now, 654 days after my third surgery, I don't have the same amount of energy I once had....

Eric, I would LOVE to hear about some work from home options. Unfortunately, I sometimes think I can't even do that with any cons...

Oh Lizz, I'm sorry. Coincidentally, I started working from home right when my UC became hospital worthy. I forget what you do, but...

What about Gatorade? I have been able to drink 1 a day if I think of it....

Michael, I checked my post-op info fro my hospital and found chicken soup, bouillon and Pedialite on the suggested list. Pedialit...

I'm finished with all surgeries. Had my takedown on July 13th. I do well with hot tea but everything else causes my intestines t...

Michael, what phase are you in, ie. 1st, 2nd or 3rd surgery and how many days since then? I ask because I couldn't tolerate water...

Does anyone have recommendations on what to drink other than water? I've tried every kind of juice and prepackaged teas and my ne...

I am so Glad you are completely healed, God Bless you and take care of your self. My son is going to have this surgery too. Hard f...

Sara, Jake has had a busy summer. We have been meeting with the surgeon several times and his gastroenterologist. Jake had his...

Lorrie, I still have the bag and I have to empty it several times a day. It is no where near as many times as I had to go befor...

Lorrie, How are things going with Jake? I have been thinking about him and your family. I hope that your getting the answers that...

Dianne,Its been awhile, how is the Remicade going? I have to tell you, my doctor is blaming a lot of my problems on the Remicade. ...

Danna, Sorry it took so long to get back to you. I really throw myself into work when I'm not recovering for what ever surgery I ...

Dianne, Its been awhile, how is the Remicade going? I have to tell you, my doctor is blaming a lot of my problems on the Remicade...

Eric, I actually got UC when I gave up smoking when I was in my early thirties a few years ago. There is def a link with smoking...

I've been a vegetarian all my life and I got UC when I stopped smoking so this certainly doesn't apply to me but there is a def li...

In relation to your over supply of ostomy products might I suggest you log onto www.ostomy.evansville.net/ and I am sure larry w...

I have a lot of extra ostomy supplies I have been looking to donate, but I can't find anyplace?...

Gabrielle-- I am 24 years old and also a college student. I began all of my surgeries in college, which is why it is taking me so...

I went from being diagnosed with UC to having a total emergent colectomy in less than two months. The doctors claimed I had UC for...

It was absolutely wonderful being able to read your story and relate it to mine! I will be 3 weeks post-op from my one-step total ...

Hi Stephanie, I had the tummy tuck a year after my take down surgery. I was told by a wound care nurse that sometimes when you g...

I've had joint pains off and on for years due to UC. It's called enteropathic arthritis. (Isn't that a nice name? Sounds so wholes...

Oh wait...one of my major points..I forgot. Disability. Honestly I think it may be a blow to the ego to apply, but I say do it. Th...

Lizz. Wow lady. Ok first matter, after a few years of doing treatment for my MS, my neuro said something along the lines of "you p...

had jpouch since 2005, am a chef and life style designer. i have lots of things i have put together to live with a pouch. Diet, Ex...

hi, my names caitlin. we dont know eachother but i was on google looking at pics to show my friends what i went through and i fou...

Kanaka & Daniel, both of you gave me good info...THANKS! I seldom have burning issues but use Calmoseptine when I do. I tak...

I had my j-pouch done in 2002 and I end up with a case of pouchitis like every six months. I also have the burning, it feels like ...

I have had similar issues with the burning/itching. I too use Calmoseptine, which can be purchased over the counter. In addition...

Hi Terry, Thanks so much. So far, for past 1 year, I have been fine with some bad days of itching and burning. But last week has ...

I'm still having problems 15 months after takedown with waking up to find I had a bowel movement - often 1-2 time nightly...maybe ...

Merry, Thanks for the response. I will start eating probiotics again. I am surprised that you do not eat fiber/imodium. Then how ...

Lizz, it's your old fellow Crohnie friend from KY! Sorry to hear you have been going through so much. I've heard that it's prett...

have you gone in for your year check up? Maybe your pouch needs to be adjusted with an exam. Calmoseptine helps with my burn when ...

Hi, Please help me. I had my takedown more than a year ago and have been good so far. Now for past week and half, by evening, I...

Hi Michael, if you find one, can you also please let me know. I also have lots of supplies that I would like to give it away to so...

Hello. Here is my story, the short version. Im 34 spent the better part of the last 20 years dealing with UC. Life was good wh...

Thanks! The things is, I never had UC or any autoimmune disease. I had my colon removed, due to a botched hemorrhoiectomy which ru...

I got hashimoto's disease (form of hypothyroidism) after years of having UC. One autoimmune disease often triggers others is what ...

I have a decade old j pouch and am having so many problems with arthritis, and, hypothyroidism, hyperparathyroidism, that I am con...

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Mark 15 month side view

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