HI EVERYONE!
by Pixiesndust on Sunday, November 23, 2008 23:07
- before it all began
Hi everyone. My name is Casey, I’m 21 and live in Florida. I took a lot of pictures through the last year of my surgeries and decided to share in hopes of helping someone going through the same situation. Feel free to ask questions or just leave comments! my email is yesac87@hotmail.com
sick times
I was diagnosed with ulcerative colitis in Jan ’07 when I was 19. I was put on Asacol and did not respond. For some reason I missed the learning period of being able to swallow pills and was chewing them unaware that they were a time release medication. About 2 mo. later I was hospitalized for a month to get the first flare up under control. They took me off Asocol and started me on IV steroids and Cyclosporine. I had many blood transfusions because I was losing a lot of blood in my stool. It was a very tough month, I was vomiting everything I tried to eat and lost about 30lbs. I was still taking cyclosporine and prednisone 11 mo. later when I decided to go through with surgery.
big face
Mary says:
November 24th, 2008 at 7:26 pm
Hi Casey,
Thanks so much for sharing your story. Sounds like you are doing much better now and you handled your surgery and health problems with such a positive spirit!
Stay well,
Mary
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Casey says:
February 9th, 2011 at 5:13 pm
HEY GUYS! I need some imput immediatly. Hss anyone had Dr. Tan at UF Shands or a positive experience with a surgeon they would reccomend? Also, anyone had positive effects of Remicade? My mom has UC for 30 years now and her meds are officially not working. She will try remicade and if it doesn’t work, she’ll move to surgery. ANy advice/ imput that you can give would be greatly appreciated.
Casey
[Reply]
John says:
April 19th, 2011 at 6:47 am
I recieved Remicade December 2010. Worked for 3 days then all of my UC came back strong. Surgery the 4th day. But while on Remicade, I had no bleeding, no rushing to the bathroom, and I could eat without throwing up. But I had a bad case! I hope every thing goes good.
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