Comments on: Potential Problems After Surgery

By: Mary BEth Catterton

Mary BEth Catterton — Mon, 09 May 2011 22:51:52 +0000

LAFEM DID YOU NOT HAVE THE DISEASED INTESTINES REMOVED FIRST THEN THE J POUCH I WOULD REALLY LIKE MORE INFO SO I COULD ALSO UNDERSTAND MY SURGERY IS A DAY AWAY mARY bETH

By: lafem

lafem — Fri, 29 Apr 2011 19:38:04 +0000

J pouch surgery is NOT a cure. Fuck those doctor bastards. Get the word out to people necessary ? YES. A cure ? NO!

By: mike

mike — Thu, 02 Dec 2010 13:47:30 +0000

no marissa, dont do it…here’s why: butt burn is so painful that I cant even begin to explain what it feels like. Imagine battery acid coming out your butt hole or imagine sitting on a camp fire bare butt! the only good thing about a jpouch is you dont have to mess with a bag but after a year with it i wish i would have kept the bag because i would not have to be using creams, vicodin, protiein/fiber to control the frequency of bowel movements and burning pain! with a jpouch you will be anchored to the toilet between 5-25 times a day depending on how much you eat.

By: pamela brown

pamela brown — Mon, 11 Oct 2010 20:37:04 +0000

i can only tell you 5 yrs ago i was offered the reversal and after a long hard think i took the reversal…..today i regret it i have had more problems tha
n i ever anticipated never expected it to be like this unfortunatly after lots of bouts of pouchitis and but burn rectum pain and frequent bowel movements that control my life night time incontenience the list goes on …..please please think about it carefully im going back to a bag it was easier to live with at least i was not confined to the house so much and im forced to sit on any public lav available and they can be horrible at times at least with a bag you dont even have to remove your underwear to empty ……i have cried at nights with lack of sleep as my frequency sarts at 6pm and continues all evening i have been in hospital had the pouch examined and its healthy ive treid all forms of treatment but nothing helps …if the bag is working for you keep it .

By: pamela brown

pamela brown — Mon, 11 Oct 2010 20:28:40 +0000

ive had my j pouch 5 yrs and like you have had a lot of problems using toilet
from 6pm in the evening non stop i am like a recluse and am considering going
back to a bag and like yourself after an evening inside my rectum is in pain cant stand it anymore sorry your having same problems but bag was so much easier to cope with .

By: marissa

marissa — Wed, 29 Sep 2010 23:37:12 +0000

i have the bag.but my doc is saying i might can get the j pouch cause i am so tired of having the bag.so should i go ahead an get the j pouch or should i just keep my bag.someone help me out here cause i’m not sure what to do.

By: Christina

Christina — Mon, 13 Sep 2010 16:35:48 +0000

You might have ulcers in your pouch. I’ve tried anti-heartburn medication and it has seem to fix things for me. Avoid NSAIDs for pain too.

By: Rhonda

Rhonda — Sat, 07 Aug 2010 17:12:46 +0000

I had my j-pouch done in 2002 and I end up with a case of pouchitis like every six months. I also have the burning, it feels like my but is on fire and I aslo have a pain that I can not even begin to describe in my rectum every time I use the bathroom. Do anyone else have this severe pain?

By: Mark

Mark — Mon, 16 Nov 2009 02:13:38 +0000

Daryl, See below comment from Tim and myself.

By: Tim

Tim — Mon, 16 Nov 2009 00:57:42 +0000

Daryl, had my pouch done in 1991 had my share of ups and downs along with a blockage needing a resection summer of 08. As I have gotten older my joints have given me some problems and with taking anti-inflamitory drugs my fanny will come alive with burning and in general great irratation. So I have taken them off the list of things to take. You might want to take a look and see if that might be a problem. The one ointment that has worked for me with all that we go through with our lower units is Calmoseptine ointment. Get in and see you Dr. Good luck.