Potential Problems After Surgery
by Mark on Sunday, June 29, 2008 5:34This entry is filed under: Ulcerative Colitis
Many people are concerned about the longevity of their jpouch. How long will it last? What types of complications might potentially occur? Here is a link to an excellent site that gives you really good in-depth and objective info on the Potential Problems Following J-Pouch Surgery
Image to the left shows the large intestine and rectum removed, the formation of the temporary ileostomy, and the jpouch. The whole series of photos can be found by clicking on the following jpouch.org link.
Image via: Jpouch.org
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John says:
July 22nd, 2008 at 4:56 am
Hi there, I had a j pouch constructed 9 years ago and after all the initial setbacks eg:-10 15 toilet stops a day, it settled down to around 8 to 10 visits a day and 1 or 2 during the night.
Six months ago I developed a feeling of extreme tiredness and hot and cold sweats followed by vague abdominal pain, eventualy I collapsed in a heap only to find myself in emergency surgery for peritonitis. After the surgery was completed I was informed that the J pouch had perforated at the seam and the pouch had to taken down leaving me with a permanent Ileostomy. As much as this is disappointing I was wondering if anyone else has had such an experience. regards from John in Australia
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mark says:
July 23rd, 2008 at 3:07 am
John,
That is the first time I’ve read about a situation where the pouch tears at the seam – I bet thought you are not the only one that this has happened to. Have you ever shared your story on jpouch.org? I bet there we could find some more info out similiar situations as yours.
How are you doing living with the ileo? I know Rob on who posted a few days ago is going in for a perm ileo soon for major cancer complications.
Mark
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John says:
July 24th, 2008 at 3:22 am
Mark,
I absolutley hate this Ileostomy, as much as I have to put up with it its awful.My surgeon said my quality of life should improve no end after a while and assured me I would be better off as I am. But I,m not so sure I mean it was real convenient to sit on the loo rather than mess around with this bag. But I have to wait and see as she (surgeon ) said I have to give it 6 months before I condemn the Ileostomy.
Thanks for your interest regards from John
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daryl says:
November 8th, 2009 at 5:15 pm
is there anyone out there with a jpouch that is experiencing frequent burning, i have regular bouts of what seems like my bum is on fire, creams and more creaams only work for awhile, what could be causing this? i have had my jpouch for ten years and i can handle the regular trips to the bathroom but this burning is holding me back from enjoying life as i should, there is no warning, it just comes on, please if you have any suggestions or experiences i would be eternally grateful. cheers daryl
[Reply]
Mark Reply:
November 15th, 2009 at 7:13 pm
Daryl, See below comment from Tim and myself.
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Mark says:
November 9th, 2009 at 6:49 am
What you are calling “frequent burning” is what we all call so blatantly “BUTT BURN.” There are a couple things I could suggest for you to consider (1) Learn more about fiber supplements because i was told in the hospital to use Benefiber ONLY when I had the ostomy and to use Metamucil when ONLY when I had the takedown. Apparently Metamucil will make you too thick when you have the ostomy and works better after you have the takedown. (2) As for the butt burn when you get your fiber regulated, you might also want to try slowing your system down by using something like immodium, that will cut down on some BM’s. and (3) You might want to try NOT WIPING but pressing to absorb the waste and then use a wet wipe to clean the waste residue. (4) There are a ton of cream options out there and you might want to try exploring other options, I go inbetween being a fan of Tucks cream or my ultimate favorite cortizone cream. (5) And after 10 years why your pouch is acting up to give you BB is a bit odd so you may want to contact your GI and let them know. (6) Has anthing in your diet changed lately? Are you on any new medicines? I know when I eat poorly my BB acts up. Also over at http://www.jpouch.org, they have a great forum for BB related concerns and you will get lots of feedback there to maybe help ease your concerns. If you go to their “Find” section and type in burning, or butt burn you’ll find lots of pre-answered comments.
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Tim says:
November 15th, 2009 at 5:57 pm
Daryl, had my pouch done in 1991 had my share of ups and downs along with a blockage needing a resection summer of 08. As I have gotten older my joints have given me some problems and with taking anti-inflamitory drugs my fanny will come alive with burning and in general great irratation. So I have taken them off the list of things to take. You might want to take a look and see if that might be a problem. The one ointment that has worked for me with all that we go through with our lower units is Calmoseptine ointment. Get in and see you Dr. Good luck.
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