Ileostomy Stoma Photos
by Mark on Sunday, June 29, 2008 5:51This entry is filed under: Ulcerative Colitis
Instead of Providing you with ONLY photos of Mark’s Temporary Loop Ileostomy, we’ve started asking others to contribute their stoma photos. Now, please note, these are Loop Ileostomies, which means that they are likely temporary. There are other types of ileostomies like end ileo, we do not have any pictures of those.
Below is Ashely, she was about 21 years old when she had surgery, in 1 week she found out she had UC and then she was in surgery. Here she is showing her stoma, and her after the reversal her scar:
Here is Ashley’s scar after she had her “takedown’ surgery so she lost her stoma and now has a J-Pouch. Ashley is awesome and a real inspiration, here are her other photos Ashley’s Photos.
These posts might also help out:
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Eric says:
June 29th, 2008 at 11:38 am
I have an end illeostomy and it is temporary.
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mdhilton says:
June 29th, 2008 at 5:59 pm
Eric,
Thanks for the clarification. Do you know why some people get a temp loop versus a temp end ileo?
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bellyluv0sofine says:
June 30th, 2008 at 6:13 am
Thanks so much for sharing. I am due for this same surgery soon and I am concerned about the scarring as I am a belly dancer by hobby. Looks like your surgeon did a very nice job.
Carmen
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Eric says:
July 2nd, 2008 at 2:17 pm
It seems that those of us who have a “temp loop” were healthy enough going into surgery to have the 2 step process. Whereas, those of us who have the “temp end” — like myself — were really really sick. I was suffering from Toxic Megacolon (sounds like a bad nintendo game, eh?) and therefore had to have the 3 step process 1)remove colon, apply end ileostomy 2)make pouch and apply another end ileostomy 3) connect it all together. For me, surgery was not an option, it was a life and death issue. Thanks for raising these issues, I was interested in the difference and didn’t really understand it either until I started reading and thinking about your posts.
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Carter Sturdivant says:
July 7th, 2008 at 1:59 am
I’ve got some photos of mine. I just got home today from the hospital. I had my takedown operation. How can I upload the pictures or should I e-mail them?
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mark says:
July 7th, 2008 at 2:23 am
Carter, sounds like your surgery went well? That is awesome that you’ve got pictures you are willing to share! This is great because we had so many views on Ashley’s photos which indicates to us that others are in need of realistic images. If you email the pics to us, we will post them a thread: mdhilton@gmail.com
Also, if you can include any clarification text that will help make the pictures more clear to someone new, we have many people reading who are just learning about surgery, so we are trying to not scare them but help them understand through information. Maybe share your story some, your age, how long sick, the flavor of your disease, etc…
This is great! thanks for sharing.
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tammy says:
August 22nd, 2008 at 4:20 pm
Hi. Ive been trying to read and see everyones comments on surgery. I again am a 40yr.old thats worried about what the scars look like too. Seen several types of scars so I was hoping for women they do, do a bikini cut. The only thing now is just found out yesterday I am getting a hysterectomy since Im gonna get my colon out my GYN suggest go in take my woman parts too. How scary is that? I dont have a blog or anything but I would like peoples to email me and tell me some stories. I think Ill be getting my surgery sometime in Sept. beamers68@hotmail.com is my email love to hear from someone.
Scary in PA
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Mary says:
August 22nd, 2008 at 9:03 pm
Tammy,
You may want to share your story with the other women on http://www.jpouch.org
There is a whole section forum for Women’s Health & Pregnancy that you should check out. I bet you’ll find others that can relate with your situation.
wishing you improved health through your journey,
Mary
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Gil Knafelc says:
October 21st, 2008 at 2:02 am
I just had the first surgery where they removed my large intestine and made an ileostomy and and a temporary stoma. I got diagnosed with UC when I was 11. I lived in pain for 5 years. When my sergin took out my colon, he said it was the worst one he’s ever seen. My mom gave him a disposable camera to take into the OR and he got a few pictures of my large intestine! Im going to have the J-pouch surgery in a few months, and when I recover from that, I will have another surgery to “turn the J-pouch on” and reverse the stoma! I don’t care what anyone says about my bag. Even if I had to live with it the rest of my life and there was no J-pouch, I still would have done it. MY UC IS GONE! Im 16 years old and UC has put me through hell and back. I have documented my entire surgery and plan to make a website. These pictures and knowing there are other people out there really helped. Thank you!
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Megan says:
October 24th, 2008 at 8:24 am
Gil,
You are much to young to have had so much reality already, but you do sound like you’ve got a great future. It is great that you are going to pay it forward by putting out your story on a blog.
Do tell us when you get blog up and running and we’ll make sure to let our readers know your story is available. Since UC affects so many young people it is great to have the story of young people surviving and moving on with their lives!
Keep in touch!
Megan
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Jeane says:
January 7th, 2009 at 10:43 am
Thank you so much for being so brave to share. YOu are a lovely girl and your scars will fade in time. Who did your surgery as I am in theprocess of consults now.
Thanks,
Jeane
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Megan says:
January 7th, 2009 at 12:08 pm
Hi Jeane,
Ashely is indeed a lovely woman and actually, Ashely was the first stoma Mark and I saw prior to his surgery. She had posted a few pictures on http://www.jpouch.org forum and it was from there we got the idea to document Mark’s surgery. Anyway, Ashley may not get back to you, she is happily living a very full life as a college student in Canada. I don’t know her doctors but I am pretty sure it was all done in Canada.
Megan
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Eric says:
January 22nd, 2009 at 3:41 pm
I had emergency surgery about two years ago to remove by large intestine due to UC. I lost an astonishing 65 pounds and luckily stayed alive. Doctors tried everything they could do until the only option was surgery in Cleveland Clinic. My surgeries, like you all know, left some really deep physical scars. I was wondering if anyone had any remedies or tricks to help the scars to heal along quickly and go unoticeable. I was really into athletics and had a great set of abdominals and never worried about wearing a shirt. I am sooo happy to be alive but the scars still suck. I know its definently something that would not go away with out cosmetic surgery…but I would rather not go under the knife again. Any ideas????
Much Appreciated, ERIC esemels20@hotmail.com
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Jamie Reply:
May 13th, 2010 at 7:43 am
Eric, though I am by no stretch of the imagination, a dermatologist, I have had wonderful results with Mederma. Though it is a bit pricey and takes several weeks, I have noticed significant lightening of my surgical scars along my knee.
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kenia says:
April 11th, 2009 at 7:29 pm
i’ve just had leostomy reversal about 2months ago. my problem is that I have diarreah all the time even though I’m takeing lots of medicine for it. Will it ever get better as time goes by or is this now part of my life.
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Mallory Reply:
July 13th, 2010 at 8:59 am
Kenia,
I had my final reversal done in Dec. 2008, and had the same issue for the first few months while my body adjusted. I think it is mainly a matter of healing time, and learning what sorts of foods your “new” system tolerates best.
For example, my stomach has trouble digesting meats, so I eat a TON of vegetables…if I’m not careful, this can cause major diarrhea. I’ve learned that the problem lessens when I eat small amounts of veggies at a time, and if I eat them with more starchy, “heavy” foods, such as a potato or bread product (bagels work wonders for me). Lettuce, spinach, and iceberg lettuce in particular, pull WAY too much water into my pouch, so I eat these very sparingly.
Also, do you use Metamucil, Benefiber, or anything like that? I find that the powder can be helpful in adding bulk, particularly when eating starchy foods.
Hope this helps!
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Bill Shaffer says:
November 2nd, 2009 at 10:48 am
I`m going in tomorrow to have mine reversed.I Had the surgery 2 months ago, it went quicker than I thought.I`ll keep you updated.
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Mark Reply:
November 4th, 2009 at 8:36 am
Bill – that is great news about your quick reversal time. I could have had mine at 2 months but opted for 3 because of work issues. It will be great for you to just get your jpouch and learn to live your new and healthy life. Please let us know how you are doing, and we are here if you need anything adjusting to your new pouch.
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Teneille says:
June 28th, 2010 at 7:15 pm
Ashley, You ROCK!!!! Thanks for the photos. I am a Nursing Student Grad and was researching and saw your pictures. Thanks a lot. Teneille
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sergio says:
July 25th, 2010 at 9:39 pm
I have UC for 4 years now.I’m on Asacol and Azathioprane,i don’t eat process food,spicy,or lactose.I only drink water.I don’t have simptoms,i’m feel pretty well,but i considered to have the surgery.Is the Jpouch a bag inside your body?,if it is.,Do i have to change the bag after move your bowls?.Where the excrements go?.Sorry for my grammar,is because i’m from Spain.I will apreciate some information,thank you very much and keep the hard work
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Mallory says:
July 25th, 2010 at 10:35 pm
Sergio,
A J-pouch is actually created out of your small intestine inside your body (no bag on the outside, though you might have a temporary ileostomy bag between surgeries). The J-pouch should work like your large bowel; no bag or anything to change, and you would be able to just go to the bathroom like anyone else. If you are doing well with medicine, though, then you should probably hold off on surgery unless you start having really bad symptoms.
The jpouch.net site you’re on now has tons of info about the surgery; you can find a good picture of a j-pouch here: http://www.jpouch.net/2008/09/02/jpouch-images/
Hope this helps!
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