Veracruz, Mexico Photos!

by on Monday, June 2, 2008 17:55
This entry is filed under: j pouch surgery photos

Here is Mark just grubbing on some good mexican food, and drinking a margarita.  It was really nice to be able to sit on this beach side restaurant and watch the ocean, the local families and just enjoy the day for a few hours before it was back to me since our trip to Veracruz was both business for me and a few days of relaxing.  While we were outside he never had online casino to use the bathrooom or anything, and were were there for about 4 hours, 2 margaritas later :)  He did say though that this lunch and hooch was hard on him that night and he was gassy and in the bathroom a lot that night.

Unfortunately Mark has some sort of head and chest cold while we were there. He hasn”t had too many colds or such since his surgeries over a year ago, which is nice that he is usually really healthy.

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10 Responses to “Veracruz, Mexico Photos!”

  1. avatar

    Jason Pa says:

    June 23rd, 2008 at 4:43 pm

    Even though I dont go on the jpouch site anymore, a friend of mine from the site sent me the link to this page. I try and keep up with friends on the site. Loved the page, photos and thrive for a better life you guys have. I know Mark went through the operations, but like my wife … I am sure if it wasnt for you Mark would have had a longer road! I am so proud of you guys and even though we never met or talked I feel like you are friends for life! Glad your pouch is working great and keep on living life!
    As for me … Have my perm illeo now over a year… Playing full check ice hockey and wearing the gun belt and working the roads again. Oh ya.. and eating like a pig! Drop me a email now and then and let me know how life is!
    Thanks Again For the Great Page
    Jason PA “)

    [Reply]

  2. avatar

    mdhilton says:

    June 23rd, 2008 at 5:23 pm

    Hey Jason,

    Glad to hear you are living well with your perm ileo, I know getting you back to healthy was a long road. It is funny but we link to one of your old jpouch forum posts from the past regarding how to care for your ostomy. It is one post that gets clicked on this site rather frequently, I think that caring for the skin and ostomy is tricky for most people and I felt your advice was most helpful and that is why I wanted to share it with others – hoping it would help them the way it helped me.

    http://ucstory.wordpress.com/surgery-2-inbetween-surgeries/

    [Reply]

  3. avatar

    Jmanlife says:

    July 25th, 2009 at 5:12 pm

    I am new to this site and had a total colectomy and J-pouch surgery in 1993. I have never met anyone else with a J-pouch to talk with. After reading a few of the postings I am amazed at how many people are having this surgery. At the time I had my surgery the doctors told me that this was considered an experimental procedure. It was definatley a life changing event for me and I can honestly say that I have no regrets. I turned 40 this year and have almost lived as long witht the J-pouch as I did without. I have often wondered if having this surgery could affect a persons life expectancy. If there are individuals out there that have survived to a ripe old age after going throught this type of procedure from a young age, it would put my mind at ease. My wife is always waiting for the other shoe to drop. There have been alot of ups and downs over the years and its nice to know there is a resource like this to turn to for sharing information.I look forward to visiting this site to offer insight or hope to encourage fellow J-pouchers.

    [Reply]

    avatar

    Mark Reply:

    Hi There, Welcome to the site! Glad you have found your people :) There are many many people out there with jpouches. We are definitely expected to have a long life span like a person with a colon. I’ve heard of a 1 jpouch that is 4o years old, but the majority of older jpouches I’ve heard about are 20+. Elizabeth has commented on here before and her pouch is 20 years old and she is doing great. You can assure your wife that you have as a good a life expectancy as she does. The only thing we could deal with (worst case scenario) would be pouchitis or related pouch problems. And I figure if that were the worst thing to happen and by chance I lost my jpouch I’d have to live with a perm ileo, and that wouldn’t be that bad. As long as I’m healthy with a jpouch or an ileostomy. I figure we all have complications here and there but anything beats being sick. Share your veteran story with us, tell us more about why you had the surgery, how life has been, etc….Also, you might find the support group at http://www.jpouch.org interesting. Lots of jpouchers posting over there too.

    [Reply]

  4. avatar

    Jmanlife says:

    July 30th, 2009 at 4:12 am

    Thank you for the warm welcome and replying to my message. I am happy to share my story. It has been quite a journey not only a physical one but a spiritual one as well. In 1992 my health began taking a turn for the worse. The physicians in California had a difficult time diagnosing my illness because I had multiple symptoms and began treating me for a variety of illnesses one of which they thought to be proctitus. I became frustrated and my condition worsened. I eventually could not perform my job due to having an average a twenty two bowel movements a day, which seemed like nothing but blood. I ended up extremely anemic. I thought for sure I was going to die and without a job was forced to move back to Washington State in hopes that my illness could be diagnosed. In 1993 I was diagnosed with Inflammatory Bowel Disease which I had never heard of before. It progressed rather quickly and had become life threatening. There is still no known cause or cure for this disease with the exception of surgery. At age 24 I was at a crossroads in my life and had to make the decision to go through with surgically removing my large intestine, colon and rectum. With little time to waste the doctor asked me to make a decision.
    I have had a total of six surgeries since then. After the surgery I was having a difficult time emotionally trying to cope with my ordeal. I asked the doctors questions to which they had no answers. They said I was a pioneer and this was still considered an experimental surgery. Later that year I was hospitalized for complications and was once again at deaths door. I had to go back in and to have my gall bladder removed which the felt was caused as a result of the ulcerative colitis. We were living in South Everett Washington at the time and I was very ill, I tried driving myself to Swedish Hospital which was in down town Seattle. I was stuck in rush hour traffic and new if I did not get to the hospital I was going to die in my car. When I got there the doctors said you drove yourself hear! I don’t think you realize how serious this is…if you didn’t get here when you did, you’d be dead. I was in the hospital for five days because of an intestinal obstruction. They had to feed me intravenously and pump my stomach which gave my bowels time to rest and the obstruction a chance to clear.
    In 2003 I noticed a sharp pain in my perineum that felt like I had been stabbed with a knitting needle. I immediately went in to the emergency room to be examined but they could find nothing wrong. I returned a second time to the E.R. and my symptoms were getting worse. My “T” cell count went from 11,000 to 16,000 so they gave me a CT scan with contrast and found nothing unusual. I later returned to my regular physician and he ordered blood work and my “T” cell count had jump to 24,000 he became very alarmed and admitted me into the hospital. I was examined again by two other doctors and was told to call my wife to inform her that in 30 minutes I would be going in for life saving surgery for a pari-anal absence. I won’t go into details but I can tell you that it scared me to death and was no fun at all. Once that healed I noticed I was still having drainage from the incision site. I decided to return to the original surgeon whom determined it to be a fistula. After examining me further it ended up being two fistulas. One passed through the wall of the inner sphincter muscle. My doctor had a heart to heart with me and asked me how important it was for me to keep my J-pouch. I said I was willing to do anything to keep it. I’ve had four surgeries to resolve my fistula problems and I am still not sure they are fully gone.
    I have been plagued with joint problems from the ulcerative colitis. Some days I cannot walk at all. Although the surgery has eliminated the ulcerative colitis it has left a lot of damage in its wake. I am able to live a pretty normal life and continue to take loperamide (Imodium) one capsule in the morning and one at night. I can make it through the night with one bowel movement on an average. I can eat almost anything without too much trouble except coconut, fruits or vegetables with the skin on them or too many nuts. Spicy foods at times can bother me. Calmoseptine is a life saver and warm baths to sooth the skin and help with blockages. I live in a relatively small town where people including doctors do not know much about J-pouches or Ulcerative Colitis. It’s not unusual for a crowd to gather around an x-ray of my abdomen or an ultrasound technician to freak out when they begin running the wand over my belly. I have learned to appreciate the little things in life and take nothing for granted. It hasn’t been easy as many of you are finding out. This site is great for support and I can tell by reading the stories that surgical procedures have come a long way since I had mine. I have a road map of scars which serve as a constant reminder of where I have been and that I am a survivor. There is a spiritual side of this story that I would love to share with anyone who is interested. My life has been profoundly change by it and I know without it there would be no way I could have survived my journey. I would like to encourage anyone who is struggling, emotionally and physically to share their struggles and triumphs with others on this site so you can know that you are not alone and there is hope and a future.

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