Comments on: Avoid Wrong Diagnosis http://www.jpouch.net/2008/04/15/avoid-wrong-diagnosis/ Stories: Ostomy, Ileostomy, Jpouch, Colitis, Crohn's, Surgery and Support Wed, 08 Sep 2010 02:59:38 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: marsupial http://www.jpouch.net/2008/04/15/avoid-wrong-diagnosis/#comment-246 marsupial Sat, 26 Jul 2008 00:53:56 +0000 http://ucstory.wordpress.com/?p=327#comment-246 This happened to me as well--2 months after I received my ileostomy, my surgeon sprung the news on me--he said my pathology report from the surgery "strongly favored Crohn's," and that getting the j-pouch a few months down the road may be tricky. I immediately burst into tears. After so many tests during the previous 2 years, never did anything ever indicate I had Crohn's. My surgeon said to meet with my GI. She reviewed the pathology report with a number of people, took some blood...a month later she also gives me the Indeterminate Crohn's/Colitis diagnosis, yet felt I was still a strong candidate for the j-pouch, and said she would make this argument to my surgeon. He trusted her opinion, and after he discussed withe me the complications that could arise if I indeed have Crohn's with a j-pouch, he felt comfortable doing the surgery on me. He said everything looked great when they did the j-pouch--no signs of Crohn's, yet even that pathology report came back favoring Crohn's. So, who the hell knows? All I know is that, knock on wood, I've had next to no problems in the 9 months since getting my j-pouch. If Crohn's does eventually rear its ugly head and I have to get a permanent ileostomy, I think now I'm in a better emotional state of mind to handle it, not to mention my body has returned to full strength. Thanks for the info about the webcast--I will definitely tune in. This happened to me as well–2 months after I received my ileostomy, my surgeon sprung the news on me–he said my pathology report from the surgery “strongly favored Crohn’s,” and that getting the j-pouch a few months down the road may be tricky. I immediately burst into tears. After so many tests during the previous 2 years, never did anything ever indicate I had Crohn’s. My surgeon said to meet with my GI.

She reviewed the pathology report with a number of people, took some blood…a month later she also gives me the Indeterminate Crohn’s/Colitis diagnosis, yet felt I was still a strong candidate for the j-pouch, and said she would make this argument to my surgeon. He trusted her opinion, and after he discussed withe me the complications that could arise if I indeed have Crohn’s with a j-pouch, he felt comfortable doing the surgery on me.

He said everything looked great when they did the j-pouch–no signs of Crohn’s, yet even that pathology report came back favoring Crohn’s. So, who the hell knows? All I know is that, knock on wood, I’ve had next to no problems in the 9 months since getting my j-pouch. If Crohn’s does eventually rear its ugly head and I have to get a permanent ileostomy, I think now I’m in a better emotional state of mind to handle it, not to mention my body has returned to full strength.

Thanks for the info about the webcast–I will definitely tune in.

]]>